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Enforceable Specification of Privacy Peter Mork Jean Stanford CEM IR&D
© 2011 The MITRE Corporation. All rights reserved Problem Growing need for Health Information Exchange –Continuity of care –Decreased costs –Public health reporting –Facilitate clinical research Health Information Exchange requires patient consent: –Paper-based –One form per transaction –Non-transferrable –Signed with limited time to think
© 2011 The MITRE Corporation. All rights reserved Background Paper consent forms prevent seamless health information exchange VA DoD
© 2011 The MITRE Corporation. All rights reserved Objective Support Meaningful & Granular Patient Consent Globally Accessible by: –Patients and –Record Holders Platform Adaptable Modular Design adapts to: –Technology Changes –Legal Changes
© 2011 The MITRE Corporation. All rights reserved Activities Developed rules language for consent: –Basic constructs = purpose, topics, datatypes, time, etc. –Two forms of negation –Terminological hierarchies –Reusable knowledge components Policy reasoner: –Input = Patient preferences + request –Output = Minimized rule tree Policy enforcement: –Conversion to XACML –Prototype of EHR with XACML engine
© 2011 The MITRE Corporation. All rights reserved Highlight Request Server (e.g., hData) Record Holder Server EHREHR BrowserBrowser Consent Server Consent DB Policy Reasoner Policy Enforcer
© 2011 The MITRE Corporation. All rights reserved Demonstration Allow Direct Care Providers X = Primary Care Provider Referral from X to Recipient Purpose = Treatment Allowed Categories MedicationsAllergies ¬ Mental Health Purpose = Treatment Dr. BlassResearch Purpose = Research Anonymized¬ Imagery ¬ Mental Health Purpose = Emergency ¬ Mental Health Dr. Walsh: Purpose = Treatment Dr. Walsh: Purpose = Treatment (Medications or Allergies) and not Mental Health
© 2011 The MITRE Corporation. All rights reserved Impacts Sponsor Engagements: –Office of the National Coordinator –Substance Abuse and Mental Health Services Administration –Department of Veteran’s Affairs Other Engagements: –Healthcare Information and Management Systems Society –GE Healthcare –United Health Open Source: –https://sourceforge.net/projects/kaironconsents/https://sourceforge.net/projects/kaironconsents/
© 2011 The MITRE Corporation. All rights reserved Future Plans Policy Maturity Accepted Practices Inchoate Technical Complexity Low High Preemptory Access Patient Review & Approve Integrate with State Mandates Intelligent Redaction Credential Matching Eliciting Patient Preferences Automated Enforcement Implemented Grand Challenges Under Development Integrate Care Relationships Audit
1 Collaboration and Concept Exploration Nationwide Health Information Organization (NHIO) Gateway March 28, 2007.
Testbed A Sun Microsystems PDP Domain A VMSlice Domain B VMSlice Jericho Systems PDP IP Address: xxx.xxx.xxx.xxx Duane’s Laptop IP Address: xxx.xxx.xxx.xxx.
The Patient as Steward of Healthcare Data Managing Consent Preferences John D. Halamka MD Louis Sullivan Lecture.
© 2013 The MITRE Corporation. All rights reserved. Systems Engineering: MITRE & SERC Dr. J. Providakes Director, SE Tech Center “The SERC-MITRE Doctoral.
Information Exchange Workgroup Recommendations to HIT Policy Committee October 3, 2012 Micky Tripathi, Larry Garber.
HIT Policy Committee Meeting Nationwide Health Information Network Governance June 25, 2010 Mary Jo Deering, PhD ONC, Office of Policy and Planning NHIN.
A Plan for a Sustainable Community Behavioral Health Information Network Western States Health-e Connection Summit & Trade Show September 10, 2013.
HEALTH HOMES HEALTH HOMES TECHNOLOGY SIMULATION WORKSHOP Ron HendlerNish Thakker.
Project AViVA A Web-Based Electronic Health Record Based on Apollo, MDWS, and VistA March 8, 2010 Peter L. Levin Senior Advisor to the Secretary & Chief.
Health Insurance portability and Accountability Act (HIPAA)
Clinical Management for Behavioral Health Services (CMBHS)
Veterans Health Administration Office of Informatics and Analytics Do You See a Non-VA Health Care Provider? The Virtual Lifetime Electronic Record (VLER)
National HIT Agenda and HIE John W. Loonsk, M.D. Director of Interoperability and Standards Office of the National Coordinator Department of Health.
Youth Mental Health April 9, Overview History Current Youth Mental Health Resources – Wraparound Orange Youth Mental Health Proposal Action item.
Whose Responsibility is it? Karen Korb TELUS Health Solutions November 24, 2009 Privacy and Confidentiality in the EHR:
Working with Health IT Systems Introduction & Overview: Components of HIT Systems This material (Comp7_Unit1) was developed by Johns Hopkins University,
16 February, 2003medXchange© 2003 Private & Confidential 1 PATIENT CENTRIC META DATA BASE AND INFORMATION SYSTEM FOR MEDICAL CALL CENTER SUPPORT.
Health Management Information Systems Unit 3 Electronic Health Records Component 6/Unit31 Health IT Workforce Curriculum Version 1.0/Fall 2010.
Automating Maintenance of Care Team Relationships from Electronic Health Administrative Data to Decrease Variability of Care Coordination using the Health.
Chapter 1 Introduction to Electronic Health Records Copyright © 2011 by Saunders, an imprint of Elsevier Inc.
International Forum - Quality & Safety in Healthcare |1 | An overview of the Guidance points Ethical issues in Patient Safety Research An overview.
+ Leveraging the power of North Carolina’s health information exchange to improve patient outcomes Organization Name Date.
Health Homes: SPA Application Process August 17, :00AM 1.
Veterans Health Administration Office of Informatics and Analytics Do You See a Non-VA Health Care Provider? VLER Health may benefit you! VLER Health is.
Metadata Analysis to the HIT Standards Committee April 20, 2011.
EMRs, EHRs, PHRs, questions and answers
BENEFITS OF ELECTRONIC HEALTH INFORMATION. Health IT Video from HealthIT.gov (Please wait for the video to load and click on the arrow to play)
January 23, 2015 This product is supported by Florida Department of Children and Families Substance Abuse and Mental Health Program Office funding.
August 10, 2011 A Leading Provider of Consulting and Systems Engineering Services to Public Health Organizations.
This material was developed by Oregon Health & Science University, funded by the Department of Health and Human Services, Office of the National Coordinator.
Privacy and Security Tiger Team Today’s Discussion: Query/Response Scenarios for Health Information Exchange February 21, 2013.
Georgia Department of Community Health
© 2006, The MITRE Corporation Toward a Standard Rule Language for Semantic Enterprise Integration Ms. Suzette Stoutenburg
Chapter 4: Nursing Resources for Epidemiology. Introduction Data collection and analysis is a core area of epidemiology. Epidemiologists gather data from.
Moderator Kevin Larsen, MD Medical Director, Meaningful Use Office of the National Coordinator for Health Information Technology Washington, D.C. Using.
Unit 5a: Care Coordination HIT Design for Teamwork and Communication This material was developed by Johns Hopkins University, funded by the Department.
1 Health Information Security and Privacy Collaboration (HISPC) National Conference HISPC Contributions to Massachusetts HIE Privacy and Security Progress:
Stakeholder Engagement and Transparency in The Effective Health Care Program Supriya Janakiraman MD MPH AHRQ.
TEXAS Health Information Technology Advisory Committee (HITAC) Track 1: Getting Started, Organization and Governance Tim Turner Tim Turner & Associates,
FY15 Rural Opioid Overdose Reversal Grant Program HRSA PRE-REVIEW CONFERENCE CALL.
Privacy, Security and Data Exchange Committee Annual Report 2009 PHDSC Home Page PHDSC Annual Meeting November 12, 2009.
HIPAA and Academic Medical Centers, Colleges and Universities Presented By: Michael L. Blau, Esq.Tina S. Sheldon McDermott, Will & EmeryAssistant Compliance.
Regional Health Information Exchange: Getting There Ed Barthell – Wisconsin Health Information Exchange Hugh Zettel, GE Healthcare.
CAPTA and Beyond: Referrals for developmental screenings for children involved with child welfare Introduction to Frequently Asked Questions Online Resource.
Jan 14, 2009 Presentation to: 2009 ORD Local Accountability for Research Seth Eisen, MD, MSc Director, Health Services Research & Development HSR&D: The.
One Health Information Exchange’s experience in responding to the changing landscape Funding: AHRQ Contract ; State of Tennessee; Vanderbilt.
OpenPASS Open Privacy, Access and Security Services “Quis custodiet ipsos custodes?”
Brave New World: Understanding and Managing Privacy Programs in an E-Health World e-Health Conference 2013: Accelerating Change May 28, 2013, a.m.
Community-wide Coordinated Care. © 2011 Clarity Health Services The typical primary care physician has 229 other physicians working in 117 practices with.
Joint Health IT Committee Meeting Precision Medicine Task Force March 10, 2016 Leslie Kelly Hall, Co-Chair Andy Wiesenthal, Co-Chair.
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