Presentation on theme: "Challenging Stigma Through Survivor’s Stories. WE CAN SUMMIT. TANZANIA 2014 Udie Soko. Founder and Executive Director. Zambian Cancer Society."— Presentation transcript:
Challenging Stigma Through Survivor’s Stories. WE CAN SUMMIT. TANZANIA 2014 Udie Soko. Founder and Executive Director. Zambian Cancer Society
The Plan 1.Quick facts about cancer in Zambia. 2.The story behind the Zambian Cancer Society (ZCS) 3.The journey of our upcoming Book: Nthano Zathu – Breaking The Silence On Cancer In Zambia.
CDH New Wing. Scheduled to open in 2014
1989. UDIE SOKO. SINGLE BLACK FEMALE AGED 23. UNIVERSITY GRADUATE. LOVES DANCING. CURRENTLY UNDERGOING TREATMENT FOR CANCER OF THE LYMPHNODES STAGE 2 B. GIVEN 5 YEARS TO LIVE.
1 st Zambian to be trained by the ACS in running a non profit organisation. 2006
Cancer Does Not Discriminate ZCS’s MISSION: To Provide Information and Psycho-Social Support To Any Zambian Affected by Cancer Irrespective of Age, Gender or Type of Cancer
HOPE BASKET (2009)
Karl van Blerk with his aunty and cancer survivor Sonya van Blerk.
3 RD Annual Kids Fun Day Donation of Mosquito Nets Donation of blankets Donation of sweat shirts and shoes
2010. The journey of a thousand miles begins with one story.
2013.Re-connected with my former university mate and multi award winning author Ellen Banda – Aaku.
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COMMON THREADS Negative impact on Relationships Desire to have someone to talk to about what has happening Hope to go on and conquer cancer
Negative impact on relationships ‘Cancer aff ects relationships and I often tell the women I counsel to prepare themselves for the likelihood that their husbands will leave them because I have seen it happen often….’ Late Esther. Died of Cervical Cancer Aug. 2014
‘‘Sexual relationships tend to suffer. When men miss the intimacy with their women they tend to react in ways that put even more pressure on the woman who already has to deal with having cancer.” Aunty Rebecca - Cervical Cancer Survivor
‘‘With hindsight, I realise that he needed support. He watched his wife waste away and his pain manifested in different ways. I didn’t understand then that what he needed was psychological support. We all needed some form of counselling but none was available to us.” Jacqueline. Caregiver at 15 yrs. Lost her mother to Breast Cancer. Talk openly
Talk openly about the situation cont. ‘‘Although we spoke about other things, the cancer and what was happening to Tom hovered over us.’ Bwalya. Caregiver. Lost her husband to colon cancer.
‘‘I kept going because I reminded myself that despite everything, I was lucky to still be alive for my children”. Mwaba – Salivary Glands Cancer Survivor (x2). Hope.
‘‘I was on ARVs to manage my HIV status; I had TB and was on medication to treat it, so it would be senseless to allow cancer to defeat me.” Veronica – Pre Cervical Cancer Survivor. Hope contd.
Challenges 1.Getting the stories Cross cutting Men reluctant to share 2. Resources to Publish the book Say yes. Mean no. Launching Dec. 2014
What are we doing in the meantime Using the stories as talking points at various fora Sharing our stories at events Getting the contributors involved in our activities.
WE CAN make a difference ‘The book is important in that it informs; it allows people to talk about cancer and it provides strong advocacy for cancer victims, without which, many would shrink and lose hope.’ Dr. Sharon