1. Establishing an HIV Services Internet Portal to Enhance Access and Retention in Care John Sapero Program Coordinator, Phoenix EMA Ryan White Planning Council November 29, 2012

2. Purpose To provide you with an understanding of the experience I have had leading the development of a statewide online HIV resource Process I’ll provide an overview of the Phoenix EMA, the rationale used to define the site, the development process, and some takeaway thoughts Payoff You’ll be better prepared when you begin to start your own initiative

3. Preface I am not an expert, but I have knowledge and experience you may find helpful I have biases, opinions and preferences, and will share these openly and honestly. You may disagree – that’s OK, and it doesn’t make either of us wrong Please feel free to ask questions as they come to you, or wait until the end

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6. Prevalent HIV & AIDSCases% By Gender Male908686.6 Female140613.4 By Race/Ethnicity White Non-Hispanic5971 56.9 Black Non-Hispanic1293 12.3 Hispanic2678 25.5 A/PI/H Non-Hispanic135 1.3 AI/AN Non-Hispanic271 2.6 MR/O Non-Hispanic144 1.4 By Mode of Transmission MSM6397 61.0 IDU1096 10.4 MSM / IDU887 8.5 Heterosexual1014 9.7 Other/Hemophilia/Blood Product/Transfusion121 1.2 No Reported Risk/Unknown Risk977 9.3 TOTAL10492 100%

7. time Once upon a

9. July 2011

10.  =

11. MEPPIO CPIO PIT OK CIT OK the department of redundancy department OK P P P

13. meanwhile…

14. we all wanted the same info

15. 90% had internet access

17. National HIV/AIDS Strategy reduce incidence | increase access| reduce disparities

22. what was my vision?

23. not a gateway destination a

24. Up-to-date local testing/provider locator Crowd-sourced providers (“Yelpish”) Info sharing – providers and clients Streamlined – simple, clean, elegant Quickly connect to people, not info Video walk-throughs – appts, testing, etc. Bilingual

25. Not a community-wide referral source Not a forum to bash providers No personals No politics Not meant to the “library of Alexandria”

27. Goal/ActivityCost Content Development: Consumer & Provider Input$1,300 Content Development: Research/Compilation of Content$5,000 First Year Project Support: ARF Staff$4,300 Establish Advisory Board & Conduct Meetings$650 Development of Policies and Procedures$100 Website Development$22,500 Training and Development$1,250 Marketing and Promotion$10,500 Translation Services$3,000 Total Project Budget$47,350

32. developing your vision ToP Strategic Planning ©The Institute of Cultural Affairs

33. what do you want to see in 3-5 years?

34. what is blocking you from your vision? No “lack of” statements!

35. what innovative, substantial actions will move you forward?

36. what will be your specific, measurable accomplishments for the first year?

37. takeaways

38. #1 focus!

39. #2 adhere to your vision

40. #3 white space is your friend

41. #4 brevity

42. #5 do only what you need

43. #6 develop a unique voice

44. #7 avoid the usual suspects

45. #8 define every process

46. #9 welcome failure

47. #10 celebrate your success

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49. Questions?

50. John Sapero 602-506-6321 JohnSapero@mail.maricopa.gov