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 Never Alone Perinatal Palliative Care Program Eileen Ludden, BSN, RNC –OB C-EFM Director Labor and Delivery Nancy Wood, BSN, RNC-OB, C-EFM, CDE Director.

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Presentation on theme: " Never Alone Perinatal Palliative Care Program Eileen Ludden, BSN, RNC –OB C-EFM Director Labor and Delivery Nancy Wood, BSN, RNC-OB, C-EFM, CDE Director."— Presentation transcript:

1  Never Alone Perinatal Palliative Care Program Eileen Ludden, BSN, RNC –OB C-EFM Director Labor and Delivery Nancy Wood, BSN, RNC-OB, C-EFM, CDE Director High Risk Perinatal Center Holy Cross Hospital Silver Spring, Maryland, 20910

2 Mission  To be the most trusted healthcare provider in the area  To serve patients and their families who elect to carry a pregnancy to delivery in which a poor outcome is expected

3 Prenatal Diagnosis Exists when a pregnant woman is determined to have a life-threatening or serious illness or when her unborn fetus is anticipated to be born with a life-limiting birth defect that will likely result in a neonatal death.

4 Birth Defects  In the U.S. up to 20,000 infants are born annually with conditions that are considered incompatible with life beyond the first year  In the State of Maryland 1 in 6 births result in a birth defect

5 What is Palliative Care?  Model of care that is holistic and extensive specifically for a patient who is not expected to “ get better ”  Planned intervention by trained interdisciplinary staff members who support the family and deliver care in an empathetic and sensitive manner  Goal is to prevent and relieve physical pain and suffering of the patient and to improve the conditions of living and dying  Focus is on the family as a unit, on preserving the dignity of life and helping to memorialize whatever brief time they may have together  A team approach to alleviate physical, psychological, social, emotional, and spiritual suffering

6 Potential vs. Actual Referrals Of the forty patients in FY10 who were potential referrals to this program, zero referrals were received

7 Problem Statement Patients with a prenatal diagnosis, medical staff, nursing staff and the community were not aware of the Perinatal Palliative Care Program

8 Goal To educate the medical and nursing staff and community about the existence of the Never Alone Perinatal Palliative Care Program

9 Why does this matter?  With advanced planning, patient’s wishes for their delivery and the care of their baby are addressed  Decreases stress on the patient, family, and staff  Staff is better able to support the family when there is a plan of care

10 Process Metrics & Baseline Measures  Number of referrals  Pre & post implementation knowledge surveys  Zero referrals in Fiscal Year 2010  A pre-implementation survey of the medical and nursing staff indicated only 33% had any knowledge of the existing Perinatal Palliative Care Program

11 Pre-Implementation Knowledge Survey – December 2010

12 Identified Problems  Knowledge deficit  No single phone number to call to enter patient into program  No intake sheet to get information regarding patient’s diagnosis  No marketing of the program

13 Action Plan After survey results were reviewed, education opportunities were provided  OB/GYN Dept. Meeting  Staff Meetings  Fact sheet for physician offices  Brochure for patients and physician offices  Community Outreach-Isaiah’s Promise and Archdiocese of Washington, DC

14 Summary of Improvement  Identity of the program occurred through name recognition  Education-staff meetings & department meetings  Development & Implementation  Patient brochure  Fact sheet for the physicians  Intake Information Sheet  A sample birth plan  Re-educate on the Perinatal Alerts Binder  Community Outreach-Isaiah’s Promise, Archdiocese of Washington, DC

15 Post Implementation Survey

16 The Never Alone Program is not about Finances  Revenue to HCH for a routine Mother Baby stay of 2-3 days averages $5,000 for the mother and $1,000 for the baby  Revenue for a NICU 5 day stay averages $8,800  “Revenue ” or potential benefit to the patient who has the support of the Never Alone program is PRICELESS!!!  Families will partner with us for their future health care needs and may refer others to us because of the care and support that they received

17 Challenges  Large number of physician groups and multidisciplinary staff to educate about program  Communication of patient’s plan of care to their physician, neonatology and nursing departments  Program Identity

18 Change Management  Marketing-competing agendas with other areas of the hospital and the new hospital  Develop relationships with other departments and the community  It is not easy!!! Make sure you communicate effectively

19 Lessons Learned  Communication is vital to the success of any program  Increased knowledge base in regards to the development of a brochure  Importance of “branding” and name recognition  Be prepared for the plan of care to change

20 Miles Emmanuel April 23, April 24, 2011 But Jesus called them to him, saying, “ Let the children come to me, and do not hinder them, for to such belongs the kingdom of God. ” –Luke 18:16


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