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Nutrition Support for Stickler Syndrome

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1 Nutrition Support for Stickler Syndrome
Lori Bryant, RD, LD, NSCA-CPT

2 Support: To bear the weight of, to hold in position so as to keep from falling, sinking, or slipping; to be capable of bearing; withstand; to keep from weakening or failing; strengthen; to provide for or maintain The advice in today’s presentation is not intended to replace advice given by your doctor or other health professional. Discuss any new treatments with your doctor. Slide 2 That is the power of nutrition for people with Stickler Syndrome. I want you to be inspired today to use nutrition as a support to aid you in your walk with Stickler, to set you up for the most success, to improve your quality of life. Including reducing pain.

3 Can nutrition really affect a genetic disorder?
Nutrition can change outcomes of conditions like diabetes, heart disease, and hypertension. Patients with Cystic Fibrosis (a genetic disorder) can thrive on the right diet. Each body is unique genetically, therefore, each body needs unique nutrition. The best nutrition advice is tailored to your lifestyle, environment, food preferences, personality and now we add genetics. A dietitian can help you individually. Nutrition could explain the varying degrees of expression of Stickler Syndrome in generations. Slide 3 Diabetes, Heart Disease, etc have genetic component. Nutrigenomics-study of how nutrition affects genetics and how specific diets can affect specific genes. Unique nutrition, especially with a genetic disorder. Blood type diet as possibility, not a bad idea to try So, yes, nutrition can help people with Stickler Syndrome to thrive. Decrease pain.

4 Ruth DeBusk says you don’t have to accept defeat due to your DNA: “Genes matter, but they’re not necessarily destiny. Our challenge is to learn what our genetic makeup is and then to make the appropriate diet and lifestyle choices throughout our lives."

5 Nutrition Support from Food
Let food be thy medicine, thy medicine shall be thy food. ~Hippocrates ca. 460 BC – ca. 370 BC Allow good nutrition to lift any burdens on the body and nourish the cells so that they might perform at optimum levels. Nutrition Support from Food

6 Lift the burden Nourish the cells
What foods might I be eating that are increasing my burden? How do I know? Cleanse or Detox Food elimination, reintroduction with rotation Eliminating toxic foods indefinitely Nourish the cells Every bite that we take becomes a part of us. We can be deficient in essential nutrients. How can I nourish the cells? Support with food Support with supplements Slide 6 Lift the burden-no extra weight on the supporting bridge. Describe how a detox might be done-focus on nutrition. Reboot to the system. Reintroduction helps you to see what foods don’t work well. Will talk more about elimination later. Toxic foods-what are they-ask the audience. Anything causing more of a strain than an aid. Think about each cell getting what you are putting in your mouth. Would you like the cell to get the goods from a donut or spinach? How do we know that we are deficient? Sometimes it is obvious and sometimes we simply do not feel well. Sometimes we don’t know until we try something. Sometimes testing.

7 Control free radical damage
Oxidative stress on the body is a natural process in aging-our bodies break down over time. As metabolic processes occur in the body, free radicals are produced and cause damage to cells. How do I control free radicals? Lower calories Control portions Eat when physically hungry Prevent storage Keep in mind the oxidative stress as you reach for second helpings. “Exercising it off” also produces free radicals Add anti-oxidants via good nutrition and supplements to squelch free radical activity Slide 7 Fireplace analogy Studies show effectiveness of Calorie restriction Lower calories: many studies have shown the benefit of calorie restriction on minimizing oxidative stress. Less free radicals are produced that have to be neutralized. Studies have also shown a decrease in inflammation due to calorie restriction. Prevent storage: the storage of fat from excess calories and the subsequent pulling out of storage is a taxing process on the body which produces many free radicals. Preventing the storage in the first place is key in reducing free radicals


9 Reduce inflammation Inflammation is part of the complex biological response of tissues to harmful stimuli. Inflammation is an attempt by the organism to protect itself. Inflammation can be caused by poor diet or inappropriate diet per individual. How do I reduce inflammation? Eliminate foods with known inflammatory response. Choose foods with a low Glycemic Load. Add foods known to be anti-inflammatory. Slide 9 From Latin word to set on fire. Inflammation is more than just pain-inflammation can be at the cell level and can be exponential in nature. Harmful stimuli-pathogen, damaged cells, irritants 3 ways to reduce inflammation in regards to diet

10 Eliminate foods with inflammatory response
Foods associated with food allergies, intolerances, and sensitivities Lactose and dairy, wheat protein, gluten, yeast, soy, egg, artificial sweeteners, flavors, and colors, peanuts, artificial fats, sweeteners, some proteins (shellfish, processed meats) Foods which you react to negatively based upon elimination/reintroduction trials or food allergy testing Possibly avoid nightshade family TEPP Tomatoes, Eggplant, Potatoes (white), Peppers Slide 10 What are foods with inflammatory response? Common foods from literature and practice. Explain how elimination/reintroduction would work

11 Choose foods with low Glycemic Load
Glycemic Load (GL): a measure of how quickly a portion of food turns to blood glucose and induces an insulin response. Low (0-10) Moderate (10-20) High (>20) GL is a better measure and more useful tool than GI because portion is considered. Choose foods with more protein and fiber 1 cup blueberries GL=3 1/3 cup raisins GL=23 2 Tbsp almond butter GL=0 ¾ cup baked potato GL=23 ¾ cup baked sweet potato GL=8 Combine foods to lower the GL Slide 11 Studies have shown the effect of low GL and GI on inflammation and oxidative stress You will see a lot of information available on Glycemic index which is also useful. But, GL takes into consideration the portion. Just be aware that there are two ways of looking at it. Beans have a very low GL

12 Add foods which decrease inflammation
Mediterranean diet Rich in whole grains, beans, veggies, fruit, oils, seafood Vegan diet Known high anti-oxidant foods Colorful fruits and veggies, omega 3 oils and essential fatty acids, nuts Consume as many foods in raw, natural state Choose foods based on inflammation factor Slide 12 Studies have shown effectiveness of Mediterranean and vegan diet in decreasing pain and weight loss was side effect Pain decreased by 1.89 on scale of 1-10 and by 14 on scale of 1-100 Share color story about Brandon (cheetos, cauliflower) Introduce you to website



15 Lift the Burden Nourish the Cell Control Free Radical Damage Reduce Inflammation -eliminate foods with inflammatory response -choose low GL foods -add foods which decrease inflammation

16 Nutrition Support from Supplements
Add supplements to support body part affected by Stickler Syndrome General collagen support Eyes Ears Joints Slide 16 We do our best to get it through food but sometimes we need to supplement-especially if we are deficient. Or genetically our bodies might need more to put us at the correct level than the next person. As we go through supporting the body through supplementation we will also refer to some specific foods that can be effective for each. You will find repetition in some confirming the importance of that nutrient or substance. Nutrition Support from Supplements

17 Collagen support Glucosamine/Chondroitin Quercitin Vitamin C Vitamin E
Black and green tea, capers, apples, red grapes, leafy greens, berries Vitamin C Rose hip, red pepper, guava, kiwi, broccoli, brussel sprouts, strawberry, orange Vitamin E Wheat germ oil, almonds, olives, leafy greens Biotin organ meats, oatmeal, egg yolk, soy, mushrooms, bananas, peanuts, and brewer's yeast Folic Acid Leafy greens, legumes, liver, baker’s yeast, sunflower seeds Calcium Yogurt, milk, cheese, spinach, legumes, canned salmon Vitamin D Unrefined cod liver oil, salmon, mackerel, tuna, sardines, egg yolk, liver Magnesium Halibut, whole grains, nuts and seeds (pumpkin), legumes, sea salt Standard Process/MediHerb specific formulas Collagen C Cataplex E Ligaplex I Slide 17 General collagen support, Get to more pain support in a minute. Based on studies Encourage you to get it from food. Whole food based supplements very effective because the body utilizes the nutrients without imbalances. Specifically important with Vitamin E. Do you see a theme here?

18 Eye Support Carotenoids Omega 3 fatty acids DHA Taurine (amino acid)
Xanthophylls Lutein, Zeaxanthin Protective pigments (anti-oxidants) found on lens and retina of eye Spinach, kale, greens Carotenes Alpha-carotene, beta-carotene Carrots, pumpkin, sweet potato, spinach, greens, Omega 3 fatty acids Cold water fish, cod liver oil, algae extracts DHA Taurine (amino acid) Brewer’s yeast, eggs, fish, red meat Vitamin C, Vitamin E, Beta-Carotene, Zinc, Copper EPO-Erythropoietin Juice Plus, raised lutein/zeaxanthin by 44% Standard Process/MediHerb specific formulas Iplex Vitanox Bilberry Slide 18 Study in 1995 showed that Healthy Eating Index score was the strongest modifiable predictor of low prevalence of nuclear cataract among numerous risk factors investigated in this sample. Xanthophyll pigments protect lens and retina from cataracts and macular degeneration A linolenic A converts to DHA and EPA, ALA is in other sources-flax seed, walnuts, One study showed the effectiveness of a group of nutrients-not sure which nutrient effective. EPO is given in injectable form, EPO Boost has many nutrients discussed as base. On this website, some of the formulas include many of the individual compounds we are referencing. Juice Plus is whole food supplement with 17 fruits, and veggies and grains high in anti-oxidants. Hyaluronic acid helps with keratoconus but by injection in all studies sighted. Some of you might have been treated with HA.

19 Ear Support Magnesium Halibut, whole grains, nuts and seeds (pumpkin), legumes, sea salt Free radical scavengers Vitamins A, C, E in combination with Mg Zinc Oysters, beef, soybeans, chickpeas, wheat germ, pumpkin seeds Anti-oxidants Omega 3 fatty acids-EPA/DHA Alpha Lipoic Acid Red meat, organ meats, broccoli, spinach, Brewer’s yeast Gingko Biloba Butcher’s Broom Standard Process/MediHerb specific formulas Congaplex (immune support-prevent infection in ear) Gingko Slide 19 Zinc increases superoxide dismutase (enzyme acting as an anti-oxidant) Body makes ALA but if body needs extra anti-oxidant support, could be beneficial

20 Joint Support Omega 3 fatty acids Alpha Lipoic Acid Vitamin E
Vitamin K Parsley, leafy greens, brussel sprouts, broccoli, cabbage, asparagus Quercitin Nucleoproteins (from organ meats) Salacia Reticula Conjugated Linoleic Acid Grass fed beef, eggs Glucosamine/Chondroitin Hyaluronic Acid Exercise Standard Process/MediHerb specific formulas Saligesic Ostarplex Catalyn Slide 20 More of these will help reduce pain. Some of these studies were done on rheumatoid arthritis and others on Collagen Induced Arthritis to reduce pain. You will see repeated recommendations Hyaluronic Acid also effective in eye SP protocol along with Ligaplex I and Collagen C Saligesic-pain relief, contains phenol glycosides, Salicin from Willow Bark Extract, might recognize from asprin-similar compound

21 Conclusion Nutrition Support from Food
Choose a diet, based upon personal tolerance and needs, rich in leafy greens and other vegetables, colorful fruits, nuts, legumes, oils and omega 3 fatty acids, certain types of fish, eggs, and some red and organ meats concentrating on portion control and low glycemic load choices. Nutrition Support from Supplements Supplement with nutrients which could be deficient in diet and therefore in body Basic whole food based multi-vitamin Omega 3 fatty acids Anti-oxidants Others specific to condition

22 Lori Bryant, RD, LD, NSCA-CPT
1901 Gateway Dr. Suite 175 Irving, TX office: cell:

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