Presentation on theme: "Nutrition Support for Stickler Syndrome"— Presentation transcript:
1 Nutrition Support for Stickler Syndrome Lori Bryant, RD, LD, NSCA-CPT
2 Support: To bear the weight of, to hold in position so as to keep from falling, sinking, or slipping; to be capable of bearing; withstand; to keep from weakening or failing; strengthen; to provide for or maintainThe advice in today’s presentation is not intended to replace advice given by your doctor or other health professional. Discuss any new treatments with your doctor.Slide 2That is the power of nutrition for people with Stickler Syndrome. I want you to be inspired today to use nutrition as a support to aid you in your walk with Stickler, to set you up for the most success, to improve your quality of life. Including reducing pain.
3 Can nutrition really affect a genetic disorder? Nutrition can change outcomes of conditions like diabetes, heart disease, and hypertension.Patients with Cystic Fibrosis (a genetic disorder) can thrive on the right diet.Each body is unique genetically, therefore, each body needs unique nutrition.The best nutrition advice is tailored to your lifestyle, environment, food preferences, personality and now we add genetics.A dietitian can help you individually.Nutrition could explain the varying degrees of expression of Stickler Syndrome in generations.Slide 3Diabetes, Heart Disease, etc have genetic component.Nutrigenomics-study of how nutrition affects genetics and how specific diets can affect specific genes.Unique nutrition, especially with a genetic disorder.Blood type diet as possibility, not a bad idea to trySo, yes, nutrition can help people with Stickler Syndrome to thrive. Decrease pain.
4 Ruth DeBusk says you don’t have to accept defeat due to your DNA: “Genes matter, but they’re not necessarily destiny. Our challenge is to learn what our genetic makeup is and then to make the appropriate diet and lifestyle choices throughout our lives."
5 Nutrition Support from Food Let food be thy medicine, thy medicine shall be thy food.~Hippocrates ca. 460 BC – ca. 370 BCAllow good nutrition to lift any burdens on the body and nourish the cells so that they might perform at optimum levels.Nutrition Support from Food
6 Lift the burden Nourish the cells What foods might I be eating that are increasing my burden?How do I know?Cleanse or DetoxFood elimination, reintroduction with rotationEliminating toxic foods indefinitelyNourish the cellsEvery bite that we take becomes a part of us.We can be deficient in essential nutrients.How can I nourish the cells?Support with foodSupport with supplementsSlide 6Lift the burden-no extra weight on the supporting bridge.Describe how a detox might be done-focus on nutrition. Reboot to the system.Reintroduction helps you to see what foods don’t work well. Will talk more about elimination later.Toxic foods-what are they-ask the audience. Anything causing more of a strain than an aid.Think about each cell getting what you are putting in your mouth. Would you like the cell to get the goods from a donut or spinach?How do we know that we are deficient? Sometimes it is obvious and sometimes we simply do not feel well. Sometimes we don’t know until we try something. Sometimes testing.
7 Control free radical damage Oxidative stress on the body is a natural process in aging-our bodies break down over time.As metabolic processes occur in the body, free radicals are produced and cause damage to cells.How do I control free radicals?Lower caloriesControl portionsEat when physically hungryPrevent storageKeep in mind the oxidative stress as you reach for second helpings.“Exercising it off” also produces free radicalsAdd anti-oxidants via good nutrition and supplements to squelch free radical activitySlide 7Fireplace analogyStudies show effectiveness of Calorie restrictionLower calories: many studies have shown the benefit of calorie restriction on minimizing oxidative stress. Less free radicals are produced that have to be neutralized. Studies have also shown a decrease in inflammation due to calorie restriction.Prevent storage: the storage of fat from excess calories and the subsequent pulling out of storage is a taxing process on the body which produces many free radicals. Preventing the storage in the first place is key in reducing free radicals
9 Reduce inflammationInflammation is part of the complex biological response of tissues to harmful stimuli.Inflammation is an attempt by the organism to protect itself.Inflammation can be caused by poor diet or inappropriate diet per individual.How do I reduce inflammation?Eliminate foods with known inflammatory response.Choose foods with a low Glycemic Load.Add foods known to be anti-inflammatory.Slide 9From Latin word to set on fire.Inflammation is more than just pain-inflammation can be at the cell level and can be exponential in nature.Harmful stimuli-pathogen, damaged cells, irritants3 ways to reduce inflammation in regards to diet
10 Eliminate foods with inflammatory response Foods associated with food allergies, intolerances, and sensitivitiesLactose and dairy, wheat protein, gluten, yeast, soy, egg, artificial sweeteners, flavors, and colors, peanuts, artificial fats, sweeteners, some proteins (shellfish, processed meats)Foods which you react to negatively based upon elimination/reintroduction trials or food allergy testingPossibly avoid nightshade family TEPPTomatoes, Eggplant, Potatoes (white), PeppersSlide 10What are foods with inflammatory response?Common foods from literature and practice.Explain how elimination/reintroduction would work
11 Choose foods with low Glycemic Load Glycemic Load (GL): a measure of how quickly a portion of food turns to blood glucose and induces an insulin response.Low (0-10) Moderate (10-20) High (>20)GL is a better measure and more useful tool than GI because portion is considered.Choose foods with more protein and fiber1 cup blueberries GL=31/3 cup raisins GL=232 Tbsp almond butter GL=0¾ cup baked potato GL=23¾ cup baked sweet potato GL=8Combine foods to lower the GLSlide 11Studies have shown the effect of low GL and GI on inflammation and oxidative stressYou will see a lot of information available on Glycemic index which is also useful. But, GL takes into consideration the portion. Just be aware that there are two ways of looking at it.Beans have a very low GL
12 Add foods which decrease inflammation Mediterranean dietRich in whole grains, beans, veggies, fruit, oils, seafoodVegan dietKnown high anti-oxidant foodsColorful fruits and veggies, omega 3 oils and essential fatty acids, nutsConsume as many foods in raw, natural stateChoose foods based on inflammation factorSlide 12Studies have shown effectiveness of Mediterranean and vegan diet in decreasing pain and weight loss was side effectPain decreased by 1.89 on scale of 1-10 and by 14 on scale of 1-100Share color story about Brandon (cheetos, cauliflower)Introduce you to website
15 Lift the BurdenNourish the CellControl Free Radical DamageReduce Inflammation-eliminate foods with inflammatory response-choose low GL foods-add foods which decrease inflammation
16 Nutrition Support from Supplements Add supplements to support body part affected by Stickler SyndromeGeneral collagen supportEyesEarsJointsSlide 16We do our best to get it through food but sometimes we need to supplement-especially if we are deficient.Or genetically our bodies might need more to put us at the correct level than the next person.As we go through supporting the body through supplementation we will also refer to some specific foods that can be effective for each.You will find repetition in some confirming the importance of that nutrient or substance.Nutrition Support from Supplements
17 Collagen support Glucosamine/Chondroitin Quercitin Vitamin C Vitamin E Black and green tea, capers, apples, red grapes, leafy greens, berriesVitamin CRose hip, red pepper, guava, kiwi, broccoli, brussel sprouts, strawberry, orangeVitamin EWheat germ oil, almonds, olives, leafy greensBiotinorgan meats, oatmeal, egg yolk, soy, mushrooms, bananas, peanuts, and brewer's yeastFolic AcidLeafy greens, legumes, liver, baker’s yeast, sunflower seedsCalciumYogurt, milk, cheese, spinach, legumes, canned salmonVitamin DUnrefined cod liver oil, salmon, mackerel, tuna, sardines, egg yolk, liverMagnesiumHalibut, whole grains, nuts and seeds (pumpkin), legumes, sea saltStandard Process/MediHerb specific formulasCollagen CCataplex ELigaplex ISlide 17General collagen support, Get to more pain support in a minute.Based on studiesEncourage you to get it from food. Whole food based supplements very effective because the body utilizes the nutrients without imbalances. Specifically important with Vitamin E.Do you see a theme here?
18 Eye Support Carotenoids Omega 3 fatty acids DHA Taurine (amino acid) XanthophyllsLutein, ZeaxanthinProtective pigments (anti-oxidants) found on lens and retina of eyeSpinach, kale, greensCarotenesAlpha-carotene, beta-caroteneCarrots, pumpkin, sweet potato, spinach, greens,Omega 3 fatty acidsCold water fish, cod liver oil, algae extractsDHATaurine (amino acid)Brewer’s yeast, eggs, fish, red meatVitamin C, Vitamin E, Beta-Carotene, Zinc, CopperEPO-ErythropoietinJuice Plus, raised lutein/zeaxanthin by 44%Standard Process/MediHerb specific formulasIplexVitanoxBilberrySlide 18Study in 1995 showed that Healthy Eating Index score was the strongest modifiable predictor of low prevalence of nuclear cataract among numerous risk factors investigated in this sample.Xanthophyll pigments protect lens and retina from cataracts and macular degenerationA linolenic A converts to DHA and EPA, ALA is in other sources-flax seed, walnuts,One study showed the effectiveness of a group of nutrients-not sure which nutrient effective.EPO is given in injectable form, EPO Boost has many nutrients discussed as base.On this website, some of the formulas include many of the individual compounds we are referencing.Juice Plus is whole food supplement with 17 fruits, and veggies and grains high in anti-oxidants.Hyaluronic acid helps with keratoconus but by injection in all studies sighted. Some of you might have been treated with HA.
19 Ear SupportMagnesiumHalibut, whole grains, nuts and seeds (pumpkin), legumes, sea saltFree radical scavengers Vitamins A, C, E in combination with MgZincOysters, beef, soybeans, chickpeas, wheat germ, pumpkin seedsAnti-oxidantsOmega 3 fatty acids-EPA/DHAAlpha Lipoic AcidRed meat, organ meats, broccoli, spinach, Brewer’s yeastGingko BilobaButcher’s BroomStandard Process/MediHerb specific formulasCongaplex (immune support-prevent infection in ear)GingkoSlide 19Zinc increases superoxide dismutase (enzyme acting as an anti-oxidant)Body makes ALA but if body needs extra anti-oxidant support, could be beneficial
20 Joint Support Omega 3 fatty acids Alpha Lipoic Acid Vitamin E Vitamin KParsley, leafy greens, brussel sprouts, broccoli, cabbage, asparagusQuercitinNucleoproteins (from organ meats)Salacia ReticulaConjugated Linoleic AcidGrass fed beef, eggsGlucosamine/ChondroitinHyaluronic AcidExerciseStandard Process/MediHerb specific formulasSaligesicOstarplexCatalynSlide 20More of these will help reduce pain.Some of these studies were done on rheumatoid arthritis and others on Collagen Induced Arthritis to reduce pain.You will see repeated recommendationsHyaluronic Acid also effective in eyeSP protocol along with Ligaplex I and Collagen CSaligesic-pain relief, contains phenol glycosides, Salicin from Willow Bark Extract, might recognize from asprin-similar compound
21 Conclusion Nutrition Support from Food Choose a diet, based upon personal tolerance and needs, rich in leafy greens and other vegetables, colorful fruits, nuts, legumes, oils and omega 3 fatty acids, certain types of fish, eggs, and some red and organ meats concentrating on portion control and low glycemic load choices.Nutrition Support from SupplementsSupplement with nutrients which could be deficient in diet and therefore in bodyBasic whole food based multi-vitaminOmega 3 fatty acidsAnti-oxidantsOthers specific to condition
22 Lori Bryant, RD, LD, NSCA-CPT 1901 Gateway Dr. Suite 175Irving, TXoffice:cell: