Presentation on theme: "Just Talk About It: Using Videos as Triggers for Advance Directive Discussions."— Presentation transcript:
Just Talk About It: Using Videos as Triggers for Advance Directive Discussions
Objectives 1.Review the process of developing advance directives 2.Identify the benefits of using videos as triggers for advance directive discussions 3.Describe how to facilitate advanced directive discussions
Take Charge of Your Life The mission of the Take Charge of Your Life Partnership is to educate, support and empower all people to deal with end-of-life issues through outreach to consumers, professionals, community organizations and corporations.
History: 2000 On Our Own Terms: Moyers on Dying – If we are going to change the way we die, then we are going to have to start talking about it, and then, take action. End-of-Life Partnership of Western PA National Issues Forum
History: 2001-2002 501(c)(3) non-profit status Take Charge of Your Life campaign Rethinking End-of-Life Care – Continuing the Conversation And Thou Shalt Honor
History: 2003-2004 Take Charge of Your Life Partnership Take Charge Online Rallying Points grant Heart2Heart online interviews Award of Excellence from Rallying Points
History: 2005-2006 Coalition for Quality at the End of Life (CQEL) Community Conversation Plenary meetings
History: 2007… Improving End-of-Life Experience's for Pennsylvanians Just Talk About It videos
Just Talk About It Discussion Video Guides Advance Care Planning – A Family Way – A Friend in Need – Where There’s A Will Caregiving – Support Group – So Guilty – Conference Call
Just Talk About It Discussion Video Guides Hospice and Palliative Care – Hospice in the Home – Sooner Rather Than Later – Nursing Home Hospice Pain Management – What’s Right For You – I’m Fine – Old Buddies
Group Discussion Guide Gather a group Review the topics Select one or more scenarios Introduce a topic Break into groups Discuss the challenges and opportunities Regroup and empower participants to “take charge”
Just Talk About It Video Discussion Group Guides Introduction Scenarios – Discussion points Questions Possible answers Options
Why do nursing home patients sometimes not receive the services of hospice?
Nursing Home Hospice What are the advantages to using hospice services within the nursing home setting for the patient? – …the family? – …the nursing home staff? – …the hospice staff?
Nursing Home Hospice What are some of the challenges that confront family members who live at a distance compared to family members who live nearby and have the bulk of the caregiving responsibility?
Advance Directive References Pew Research Center for the People and the Press. (2006). More Americans discussing – and planning – end-of-life treatment: Strong public support for right to die. Washington, DC: Author. Retrieved June 6, 2010 from http://people-press.org/reports/pdf/266.pdf. Prendergast, T.J. (2001). Advance care planning: Pitfalls, progress, promise. Critical Care Medicine, 29(2) Supplement, N34-N39.
Caregiving References Alzheimer’s Association and National Alliance for Caregiving. (2004). Families care: Alzheimer’s caregiving in the United States. Chicago, IL: Alzheimer’s Association and Bethesda: National Alliance for Caregiving. Houser, A., & Gibson, M.J. (2008). Valuing the invaluable: The economic value of caregiving, 2008. Update. AARP Public Policy Institute, Washington, DC. Scharlach, A., Sirotnik, B., Bockman, S., Neiman, M., Ruiz, C., & Dal Santo, T. (2003). A profile of family caregivers: Results of the California statewide survey of caregivers. Berkeley: Center for the Advanced Study of Aging Services, U.C. Berkeley Press. Schulz, R., & Beach, S.R. (1999). Caregiving as a risk factor for mortality: The caregiver health effects study. Journal of the American Medical Association, 282, 2215-2219.
Hospice and Palliative Care Reference National Hospice and Palliative Care Organization. (2009). Facts and figures: Hospice care in America. Washington, DC.
Pain Management References Kirsch, B., Berdine, H., Zablotsky, D., et al. (2000). Management strategy: identifying pain as the fifth vital sign. Veterans Health System Journal, 49–59. Phillips, D., for the Joint Commission on Accreditation of Healthcare Organizations. (2000). JCAHO pain management standards are unveiled. Journal of the American Medical Association, 284, 428-429.