Presentation is loading. Please wait.

Presentation is loading. Please wait.

Proprietary and Confidential©2011 Outcome Sciences, Inc. All rights reserved. Proprietary and Confidential. Developing the Registry of Patient Registries.

Similar presentations


Presentation on theme: "Proprietary and Confidential©2011 Outcome Sciences, Inc. All rights reserved. Proprietary and Confidential. Developing the Registry of Patient Registries."— Presentation transcript:

1 Proprietary and Confidential©2011 Outcome Sciences, Inc. All rights reserved. Proprietary and Confidential. Developing the Registry of Patient Registries September 19, 2011 Dan Levy - Chief Technology Officer Outcome Sciences, Inc.

2 Proprietary and Confidential Task 1 - Develop the Registry of Patient Registries – Engage stakeholders in the design and development of the RoPR, a searchable central listing of patient registries in the U.S. that is compatible with ClinicalTrials.gov Primary Objective 1

3 Proprietary and Confidential Goals of the RoPR System Stakeholder engagement process Implementation plans for the system Topics 2

4 Proprietary and Confidential Provide a voluntary, searchable, central listing of patient registries in the U.S. Encourage and facilitate the use of common data elements and definitions in similar conditions (to improve opportunities for sharing, comparing, and linkage) through the listing and searching of such elements. Provide a central repository of searchable summary results Offer researchers a search tool to locate existing data to request for use in new studies (secondary analyses, linkage studies). Serve as a recruitment tool for researchers and patients interested in participating in patient registries. RoPR Goals 3

5 Proprietary and Confidential Use-Centered Design: Design a system that is responsive to user needs. Approach: Involve users throughout all stages of the development lifecycle: formulating the requirements, designing the system, and building the system. Involve users seeking to perform various tasks, such as:  Developing registries  Using data from registries  Evaluating registries  Reviewing manuscripts based on registry data  Participating in a registry. Stakeholder Engagement Process 4

6 Proprietary and Confidential Patients/consumers Physicians, hospitals, other health care providers, and physician associations Payers, including private health plans, employers, and public insurance programs (e.g., Medicare, State Medicaid, State Children’s Health Insurance Program) Funding agencies (e.g., NIH) Government regulatory and public health agencies, (e.g., FDA, CDC, state health departments) Researchers Industry, including pharmaceutical and device manufacturers Journal editors Stakeholder Groups 5

7 Proprietary and Confidential TopicWeb ConferencesIn-person Meetings General RequirementsNov. 18, 23, 30May 3 Use CasesDecember 9, 10, 14Jan. 13 Policies and ProceduresJan. 13, 18 Data ElementsJanuary 4, 6Jan. 13 Feb. 15 March 7, 17, 24 Search and Search ResultsFebruary 3, 8, 10 Standardized Outcome Measures and Data Elements Feb. 15 March 7, 17, 24 April 11 Stakeholder Participation (>320) 6

8 Proprietary and Confidential RoPR Development Lifecycle 7 RequirementsDesignBuild Actor Catalog Use Case Catalog Detailed Use Cases System Requirements Data Elements  System Design  Usability Testing  Test Plan  Test Scripts  Traceability Matrix  Develop  Test  UAT  User Documentation  Deploy

9 Proprietary and Confidential Actors 8 1.Funding Agency 2.Government Regulatory 3.Industry Representative 4.Journal Editor 5.Patient/Consumer 6.Payer 7.Pharmacist 8.Healthcare Provider 9.Physician Association 10.Public Health Agency 11.Researcher 12.Hospital 13.Social Worker 14.Patient Advocacy Group 15.Legal Representative 16.Registry Administrator 17.Registry Reviewer

10 Proprietary and Confidential Actor Catalog 9 Actor ID Name Description Role RoPR AC1 Funding Agency Responsible for providing funding in the form of grants, bonds, research grants, scholarships, or through some other financing option. * Funding agencies exist at the federal and state level. Registry Seeker RoPR AC2 Government Regulatory Responsible for providing overall jurisdiction responsibility over the legislation (acts and regulations) for a given sector. * Regulatory agencies exist at the federal and state level. Registry Seeker RoPR AC3 Healthcare Provider Responsible for providing all aspects of medical care, treatment, diagnosis, counseling, or referral of a patient. Registry Holder Registry Seeker RoPR AC4 Hospital Responsible for providing patient treatment by specialized staff and equipment. Registry Holder Registry Seeker RoPR AC5 Industry Representative Responsible for representing processes and procedures that specific industry currently has in place and the changes that will be made. Registry Holder Registry Seeker RoPR AC6 Journal Editor Responsible for reviewing and editing submissions to a professional journal for a professional association. Registry Seeker RoPR AC7 Legal Representative Responsible for representing the legal rights of patients and providers. Registry Seeker RoPR AC8 Patient Advocacy Group Responsible for ensuring that ongoing projects and those being considered for funding will directly impact patients' lives, improving delivery of care and support for tertiary care. Also responsible to analyze cost containment and act as a proponent for best practices, advocating better protection for patients and providers for the greater good of society. Registry Holder Registry Seeker Actor IDNameDescriptionRole RoPR AC1Funding Agency Responsible for providing funding in the form of grants, bonds, research grants, scholarships, or through some other financing option. * Funding agencies exist at the federal and state level. Registry Seeker RoPR AC2Government Regulatory Responsible for providing overall jurisdiction responsibility over the legislation (acts and regulations) for a given sector. * Regulatory agencies exist at the federal and state level. Registry Seeker RoPR AC3Healthcare Provider Responsible for providing all aspects of medical care, treatment, diagnosis, counseling, or referral of a patient. Registry Holder Registry Seeker RoPR AC4Hospital Responsible for providing patient treatment by specialized staff and equipment. Registry Holder Registry Seeker RoPR AC5Industry Representative Responsible for representing processes and procedures that specific industry currently has in place and the changes that will be made. Registry Holder Registry Seeker RoPR AC6Journal Editor Responsible for reviewing and editing submissions to a professional journal for a professional association. Registry Seeker RoPR AC7Legal Representative Responsible for representing the legal rights of patients and providers. Registry Seeker RoPR AC8 Patient Advocacy Group Responsible for ensuring that ongoing projects and those being considered for funding will directly impact patients' lives, improving delivery of care and support for tertiary care. Also responsible to analyze cost containment and act as a proponent for best practices, advocating better protection for patients and providers for the greater good of society. Registry Holder Registry Seeker

11 Proprietary and Confidential RolesPurposeFunctionsActors Registry Seeker Users seeking information about registries for a wide variety of purposes such as identifying registries for patient enrollment, finding existing registries, and collaborating with registry holders. Search View Results Listings Link to Registry Details Healthcare Provider, Patient, Researcher, Payer, Government Regulatory, Journal Editor, Funding Agency, Industry Representative, Pharmacist, Physician Association, Public Health Agency, Hospital, Social Worker, Patient Advocacy Group, Legal Representative Registry Holder Users interested in posting a registry to the RoPR database for the purpose of sharing information about their work, recruiting patients, and collaborating with others. Enter Registry Details Industry Representative, Healthcare Provider, Physician Association, Public Health Agency, Researcher, Hospital, Patient Advocacy Group AdministratorUsers tasked with managing RoPR accounts, and ensuring registry profiles are kept up to date. Manage Accounts Monitor Registries Registry Administrator ReviewerUsers tasked with reviewing posted registries. Review/Approve Posted Registries Registry Reviewer Roles 10

12 Proprietary and Confidential Use Cases 11 1.Registry Holder Account Management 2.Account Management 3.Registry Profile Update Administration 4.Approve Registry Profile 5.Create a Registry Profile 6.Modify a Registry Profile 7.Registry Profile Management 8.Submit Registry Profiles 9.Delete a Registry Profile 10.Search for Information 11.Search for Participation 12.Search for Collaboration 13.Evaluating Registry-Based Studies 14.Search to Validate Funding Opportunity 15.Notifications 16.Data Audit 17.Search to Verify Commitment 18.Search for Progress Report 19.Search to Validate Payment 20.Search for Legal Information 21.Search for Redundancy 22.Search for Duplication 23.Search for Best Practices 24.ClinicalTrials.gov Integration

13 Proprietary and Confidential Use Case - Registry Seeker Workflow 12 SearchResults Listing Registry Details Refine Search

14 Proprietary and Confidential Use Case - Registry Holder Workflow 13 Registry Holder Login Web Entry Posted Registry Upload or

15 Proprietary and Confidential Use Case Catalog 14 UC IDNameDescription Functional Area Actor (s) RoPR UC1 Registry Holder Account Management A Registry Holder shall be able to request a new account, and manage the personal profile information for that account. AdministrationAll Registry Holders: Healthcare Provider, Hospital, Industry Representative, Patient Advocacy Group, Physician Association, Public Health Agency, Researcher RoPR UC2 Account ManagementA Registry Administrator shall be able to create, modify and delete RoPR accounts, as well as assign permissions to accounts, so as to allow users to create, modify and delete registries. AdministrationRegistry Administrator RoPR UC3 Registry Profile Update Administration A Registry Administrator shall be able to view all registry profiles that require updating, so that their owners can be contacted if the recommended time period for updating is near or past. AdministrationRegistry Administrator RoPR UC4 Approve Registry ProfileA Registry Reviewer shall be able to approve a registry profile to ensure data integrity before it is released to search. ReviewRegistry Reviewer RoPR UC5 Create a Registry ProfileA Registry Holder shall be able to create a registry profile so as to post their registry data. RegistrationAll Registry Holders: Healthcare Provider, Hospital, Industry Representative, Patient Advocacy Group, Physician Association, Public Health Agency, Researcher RoPR UC6 Modify a Registry ProfileA Registry Holder shall be able to modify a registry profile when changes to their registry data occur. RegistrationAll Registry Holders: Healthcare Provider, Hospital, Industry Representative, Patient Advocacy Group, Physician Association, Public Health Agency, Researcher RoPR UC7 Registry Profile Management A Registry Holder shall be able to view and manage all registry profiles that they have created or own. RegistrationAll Registry Holders: Healthcare Provider, Hospital, Industry Representative, Patient Advocacy Group, Physician Association, Public Health Agency, Researcher

16 Proprietary and Confidential UC ID Basic Flow Alternate Flow Exceptions Detailed Use Case 15 Basic Flow Alternate Flow 1 Alternate Flow 2 Exceptions

17 Proprietary and Confidential Detailed Use Case – Search 16 RoPR UC10: Search for Information Use Case IDRoPR UC10 Use Case NameSearch for Information Description/Goal A Registry Seeker that is a potential registry developer shall be able to search for registries that are relevant to a specific disease, condition, procedure and/or symptom to understand what types of registries exist, their purposes, and what information is being collected. Functional AreaSearch Actor(s) Patient, Pharmacist, Healthcare Provider, Physician Association, Public Health Agency, Hospital, Social Worker, Patient Advocacy Group Pre-conditionsN/A Post-conditionsN/A Frequency of UseFrequent RoPR UC10 Basic FlowDescription Exceptions (E) & Alternate Flows (AF) Step 1Registry Seeker accesses RoPRE1 Step 2Registry Seeker navigates to Basic Search page E2 AF 2.1, AF 2.2 Step 3Registry Seeker enters in search criteria relevant to the disease or conditionE5, E6 Step 4Summary results are displayed with links to more detailed informationAF4.1, AF4.2, AF4.3, AF4.4 Step 5Registry Seeker clicks on a resultE7 Step 6Registry Seeker contacts the registry holder E10 AF6.1

18 Proprietary and Confidential Search UC – Alternate Flows 17 RoPR UC10: Search for Information Alternate Flow 2.1Description Exceptions (E) & Alternate Flows (AF) Step 2.1.1Registry Seeker navigates to Advanced Search pageE3 Step Registry Seeker enters in text based search criteria, as well as selecting other detailed options from within required data elements in registry profiles N/A Alternate Flow 2.2Description Exceptions (E) & Alternate Flows (AF) Step 2.2.1Registry Seeker navigates to Topic Search pageE4 Step Registry Seeker browses through registry profile summaries grouped by Topic, then listed by sub-topic N/A Step Registry Seeker browses through registry profile summaries grouped by Topic, then listed alphabetically N/A

19 Proprietary and Confidential Search UC – Exceptions 18 RoPR UC10: Search for Information ExceptionsDescription E1RoPR website unavailable E2Basic Search page unavailable E3Advanced Search page unavailable E4Topic Search page unavailable E5Registry Seeker is unable to enter in detailed search criteria E6Registry Seeker is unable to enter basic search criteria E7Clicking on a link displays a blank page E8Registry Seeker is unable to download results E9Registry Seeker is unable to download results in a usable format E10The listed contact information is incorrect

20 Proprietary and Confidential RoPR – System Components 19 SearchRegistrationAdminReview

21 Proprietary and Confidential Requirements Breakdown (104) 20 Search (46) All Search Basic Search Advanced Search Topic Search Search Results Results Display Detailed Registry Profile Notifications Registration (30) Registry Profile Data Entry Create Update Registry Profile Upload Administration (22) Account Create Account Update Review (6) Registry Profile Review

22 Proprietary and Confidential Requirements – Registration (High) 21 TitleReq IDUC IDRequirement NameRequirement Description Priority (H-M-L) Registry Profile Management 01 R29UC1Account LoginAs a Registry Holder, I want to be able to log in to my account.High Registry Profile Management 02 R30UC1Account LogoutAs a Registry Holder, I want to be able to log out of my account.High Registry Profile Management 03 R31 UC5, UC7 Registry Profile Modification Access As a Registry Holder, I want to be able to create and manage registry profiles tied to my user account. High Registry Profile Management 04 R32UC5 In-Progress Registry Profile As a Registry Holder, I want to be able to save a partially completed registry profile.High Registry Profile Management 05 R33UC6 In-Progress Registry Profile Editing As a Registry Holder, I want to be able to edit a partially completed registry profile at any time. High Registry Profile Management 06 R34UC9 In-Progress Registry Profile Deletion As a Registry Holder, I want to be able to delete a partially completed profile at any time.High Registry Profile Management 09 R37UC5-6 Registry Profile Business Rules As a Registry Holder, I want business rules applied automatically to my inputs in the registry profile, to ensure integrity of the registry profile record. High Registry Profile Management 15 R43UC5-6Registry Profile UID As a Registry Holder, I want each of my registry profiles to have a unique and uneditable identifier so that I have a way to find and link to it. High Registry Profile Management 17 R45UC5-6Registry Required Data As a Registry Holder, I want to be able to see what data elements are required vs. optional to complete my registry profile. (see Data Elements document for complete list of required data elements) High Registry Profile Management 18 R46UC5-6Registry Distinct Data As a Registry Holder, I want distinct language used to label registry specific data elements, so that I can easily differentiate them from ClinicalTrials.gov study data elements. High Registry Profile Management 23 R51UC8 Registry Profile Submission As a Registry Holder, I want to be able to submit my registry profile for approval, once all required data elements are completed. (see Data Elements document for complete list of required data elements) High Registry Profile Management 24 R52UC5-6 Derivative Registry Capture As a Registry Holder, I want to be able to input a derivative study or studies into my registry profile. High Registry Profile Management 25 R53UC5-6Registry Quality Metrics As a Registry Holder, I want to be able to input key registry quality assurance procedures into my registry profile. High Registry Profile Management 26 R54UC5-6Progress Report CaptureAs a Registry Holder, I want to be able to input progress report data into my registry profile.High Registry Profile Update 03 R58UC8 Updated Registry Approval As a Registry Holder, I want to be able to submit my updated registry profile for approval, so the update will appear in search results. High

23 Proprietary and Confidential Requirements – Search (High) 22 Title Req ID UC ID Requirement Name Requirement Description Priority (H-M-L) All Search Types 01 R59 UC10-14, UC17-23 Search AccessAs a Registry Seeker, I want to be able to search all approved registry profiles.High All Search Types 03 R61 UC10-14, UC17-23 Navigation As a Registry Seeker, I want to be able to navigate between search options using a tabular interface. High Basic Search 01R62 UC10-14, UC17-23 Basic Text Search As a Registry Seeker, I want to input free text to search and find specific registry profiles.High Advanced Search 01 R64 UC10-14, UC17-23 Advanced Search Data Points As a Registry Seeker, I want to be able to search using data elements which are required in all registry profiles. (see Data Elements document for definition of required data elements) High Search Results 01R77 UC10-14, UC17-23 Search Return Summary As a Registry Seeker, I want my search to return a summary list of results.High Detailed Registry Profile 02 R91 UC10-14, UC17-23 System URLs As a Registry Seeker, I want to be able to share links to detailed registry information with others. High Detailed Registry Profile 03 R92 UC10-14, UC17-23 Registry Profile Data As a Registry Seeker, I want the detailed registry profile to contain all data in the registry profile. (see Data Elements document for data elements definitions) High Detailed Registry Profile 08 R97 UC10-14, UC17-23 Detailed Profile Data Elements As a Registry Seeker, I want the detailed registry profile to show me data elements that are unique to patient registries. High Detailed Registry Profile 09 R98 UC10-14, UC17-23 Detailed Profile Registry Version As a Registry Seeker, I want the detailed registry profile to show me the registry version.High Detailed Registry Profile 10 R99 UC10-14, UC17-23 Detailed Profile Registry Geography As a Registry Seeker, I want the detailed registry profile to show me the registry geography. High Detailed Registry Profile 11 R100 UC10-14, UC17-23 Contact Registry Holder As a Registry Seeker, I want the detailed registry profile to identify the interest and availability of a registry holder to be contacted. High

24 Proprietary and Confidential 1.Registry Description 2.Registry Classification and Purpose 3.Sponsor and Conditions of Access 4.Registry Design 5.Eligibility 6.Conditions, Exposures, and Keywords 7.Common Data Element Groups by Condition 8.Status 9.Quality Procedures 10.Progress Report 11.Related Information RoPR Data Element Sections 23

25 Proprietary and Confidential 1. Registry Description 24 1.R EGISTRY D ESCRIPTION This section contains Registry identification and description information. Data Element NameFormat Required / Optional Description Registry TitleTEXTRequiredRegistry title intended for the lay public. Registry VersionTEXTOptionalRegistry version identifier. Date of EntryDATE Required (auto- populated) Original date of Registry data entry into the RoPR. Date of UpdateDATE Required (auto- populated) Date of update of any Registry information. Brief DescriptionTEXTRequired Short description of the Registry intended for the lay public. Long DescriptionTEXTOptional Extended description of the Registry, including more technical information (as compared to the Brief Description). Registry Geography SELECT Single Institution/Practice, State, Regional, National, Global OptionalIdentify geographic area of Registry providers. Select one. Registry IDTEXTRequired Unique identification assigned to the Registry by the sponsoring organization. Secondary ID(s)TEXTOptionalOther identification numbers assigned to the Registry. Derivative Study ID(s)TEXTOptionalStudy or studies derived from the Registry.

26 Proprietary and Confidential 2. Registry Classification and Purpose R EGISTRY C LASSIFICATION AND P URPOSE This section contains information about the type of Registry and intended purpose. Data Element NameFormatRequired / OptionalDescription Registry Classification MULTI-SELECT Disease/Disorder/Condition Service, Procedure Service, Encounter (office) Service, Hospitalization Product, Drug Product, Device Product, Biologic Pregnancy Vaccine Transplant Tumor Other (TEXT) Required Type of Registry. Select all that apply. Enter Other if none or additional Classifications apply. Registry PurposeMULTI-SELECT Natural History of Disease Clinical Effectiveness Cost Effectiveness Comparative Effectiveness Safety or Harm Quality Improvement Clinical Practice Assessment Public Health Surveillance Payment/Certification Other (TEXT) RequiredPurpose of Registry. Select all that apply. Enter Other if none or additional Purposes apply.

27 Proprietary and Confidential 3. Sponsor and Conditions of Access S PONSOR AND C ONDITIONS OF A CCESS This section contains information about the sponsor, collaborators, conditions of access, and related contact information. Data Element NameFormat Required / Optional Description SponsorTEXTRequired Name of primary organization that oversees implementation of the Registry. CollaboratorsTEXTOptional Other organizations (if any) providing support, including funding, design, implementation, data analysis, and reporting. Responsible Party (name, title, , phone, organization) TEXTRequired The sponsor of the Registry or the Principal Investigator of the Registry if so designated by the sponsor. Interest in being contacted? SELECT Yes No Required Identify if the sponsor is interested in being contacted for reasons listed below. Reasons for being contacted? MULTI-SELECT Data Access More Information Collaboration Participation, Investigator Participation, Participant Other (TEXT) Required Identify sponsor’s reasons for being contacted. Enter Other if none or additional Reasons apply. Contact Person (name, title, , phone, organization) TEXTRequired The primary contact person, as designated by the sponsor, able to respond to interested parties. Link to Conditions of AccessTEXT (URL)Optional A link, including to a document describing conditions of access required by sponsor. Uploaded file containing Conditions of Access FILEOptionalAn uploaded document describing conditions of access required by sponsor.

28 Proprietary and Confidential 9. Quality Procedures Q UALITY P ROCEDURES This section contains information about the quality procedures being conducted for the described Registry. Data Element Name FormatRequired / OptionalDescription Registry Procedures MULTI-SELECT Quality plan. Data checks are employed using range and consistency checks. Data is compared to medical record or other external data sources for accuracy, completeness, or representativeness. Data encoding dictionary with clear definitions. Number of participants or participant years needed to demonstrate an effect has been specified. There is a plan to address missing data. There is a statistical analysis plan. Optional Identify all quality procedures implemented as part of the Registry. OtherMULTI-SELECT 3 rd party certifications. On-site audit performed. External use of data for research. Other (TEXT) OptionalIdentify other factors that contribute to the quality of the Registry.

29 Proprietary and Confidential 10. Progress Report P ROGRESS R EPORT This section describes progress information associated with the Registry and includes information about the growth of the Registry and any relevant references to available progress reports. Data Element Name Format Required / Optional Description Date of Progress Update DATE Required (auto- populated) Date that this progress report section is updated. Progress Report Summary TEXTRequired Summary of all relevant progress report information. May include summary of interim reports, annual reports, and/or other related Registry progress reports. Link to Progress Report TEXT (URL)OptionalLink to relevant Registry progress report(s). Progress ReportFILEOptionalUpload of relevant Registry progress report(s). Number of Participants in Registry NUMBERRequiredProgress data identifying the current number of participants in the Registry. Length of Follow-up TEXTOptionalProgress data identifying the length of follow-up data currently available within the Registry.

30 Proprietary and Confidential Stakeholders wish to leverage ClinicalTrials.gov (awareness, existing investment, infrastructure and capabilities) – In use since 2000 – Over 100,000 studies listed Modify ClinicalTrials.gov to accommodate patient registries – Add new ‘Patient Registry’ study type – Add ~6 new patient registry specific data elements to ‘Design’ section Introduce links between ClinicalTrials.gov and to RoPR – Link to RoPR record Registration System (RRS) – Link to RoPR Public Search Web Site – Link between ClinicalTrials.gov record (NCT#) and RoPR record (RoPR#) Integrating with ClinicalTrials.govClinicalTrials.gov 29

31 Proprietary and Confidential Integration Pathways 30 ClinicalTrials.gov System ClinicalTrials.gov System RoPR System RoPR System CTgov PRS Login PRS Data Entry PRS database RoPR database CTgov Record RoPR Record RoPR Search CTgov Search RoPR Data Entry CTgov - ClinicalTrials.gov PRS - Protocol Registration System RoPR - Registry of Patient Registries

32 Proprietary and Confidential Registering a Registry Searching Wireframes 31

33 Proprietary and Confidential ClinicalTrials.govClinicalTrials.gov - Patient Registry 32 New: Patient Registry

34 Proprietary and Confidential ClinicalTrials.govClinicalTrials.gov – link to RoPR Data Entry 33 Design Section New: Patient Registry Data Elements New: Link to RoPR Record

35 Proprietary and Confidential RoPR Data Entry 34

36 Proprietary and Confidential RoPR – Registry Description 35 RoPR Sections RoPR Data Elements

37 Proprietary and Confidential RoPR – Registry Classification and Purpose 36 Multi-Select Other

38 Proprietary and Confidential RoPR – Preview Registry Profile 37

39 Proprietary and Confidential RoPR – Save and Release 38

40 Proprietary and Confidential Searching – Basic Search 39 Google-like Search

41 Proprietary and Confidential Searching – Advanced Search 40 Select from set of Required Fields

42 Proprietary and Confidential Searching – Topic Search 41 Topics

43 Proprietary and Confidential Searching – Search Results 42 Total Found Registry 1 Registry 2

44 Proprietary and Confidential The Agency for Healthcare Research and Quality (AHRQ) Effective Health Care (EHC) Program is pleased to announce that the following draft report is now available and open for comment on the EHC Web site until October 10, 2011 To view and comment on these reports, please visit: available-for-comment/comment-draft- reports/?pageaction=displayDraftCommentForm&topicid=311&pro ductID=777 For more information By By phone: Willet Hossfeld at Information about the RoPR Project 43

45 Proprietary and Confidential©2011 Outcome Sciences, Inc. All rights reserved. Proprietary and Confidential. Thank you!


Download ppt "Proprietary and Confidential©2011 Outcome Sciences, Inc. All rights reserved. Proprietary and Confidential. Developing the Registry of Patient Registries."

Similar presentations


Ads by Google