Presentation on theme: "The Survey of Well-being of Young Children (SWYC) Ellen C. Perrin, M.D. R. Christopher Sheldrick, Ph.D."— Presentation transcript:
The Survey of Well-being of Young Children (SWYC) Ellen C. Perrin, M.D. R. Christopher Sheldrick, Ph.D.
We have no relevant financial relationships with the manufacturer(s) of any commercial product(s) and/or provider(s) of commercial services discussed in this CME activity. We do not intend to discuss an unapproved/investigative use of a commercial product/device in this presentation.
Historical perspective Rosie D. lawsuit CBHI Available Instruments – Lengthy – Proprietary – Scoring complex – Fragmented
Our goals Surveillance Instrument (birth to 5) – First level screening – Integrate “behavior” and “development” – Include family context/risks – Quick to fill out, score & interpret – “Developmental growth curve” Free and in public domain Amenable to electronic format – Computer – Telephone – Internet
Development Behavior Family Context
Development Behavior Internalizing Externalizing Family Risk Baby Pediatric Symptom Checklist (BPSC) Preschool Pediatric Symptom Checklist (PPSC)
Development Delays Autism Behavior Internalizing Externalizing Family Risk Baby Pediatric Symptom Checklist (BPSC) Preschool Pediatric Symptom Checklist (PPSC) Milestones Parent’s Observations of Social Interactions (POSI)
Development Behavior FAMILY RISK FACTORS Family Risk FAMILY RISK FACTORS Depression PHQ-2 Substance Abuse Alcohol Tobacco Other drugs Parental Discord Hunger
Four Domains Social-emotional-behavioral – BPSC (Birth to 18 months) – 12 items – PPSC (18 months to 5 years) – 18 items Cognitive, Language and Motor – Milestones (each WCV) – 10 items Autism – POSI (18 to 36 months) – 7 items Family Risks – Each WCV - 11 items
PPSC ASQ-SE PPSC ASQ-SE PRIMARY CARE SAMPLE SensitivitySpecificity Total Internalizing Externalizing CBCL Total Internalizing Externalizing CBCL
PPSC ASQ-SE SensitivitySpecificity PPSC ASQ-SE Total Internalizing Externalizing CBCL Total Internalizing Externalizing CBCL CLINIC SAMPLE
SensitivitySpecificity ADHD Anxiety Behavior or Conduct Any diagnosis Parent report of existing diagnosis Specificity PPSC ASQ-SE CBCL
Other SWYC studies POSI v MCHAT Milestones v ASQ-3 BPSC v ???
Example SWYC Forms 12-Month24-Month Milestones Social/ Emotional Behavior
Page 2 (on the back) 12-Month24-Month Autism Family Risk Questions
Summary Surveillance/first level screening instrument Includes – Cognitive, language, motor, and social- emotional development – Autism spectrum disorders – Family context/risks Compares well with older instruments Free, public domain English and Spanish Convertible to computer platform – Tailored for child’s age – Link to follow-up questionnaires