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The Survey of Well-being of Young Children (SWYC) Ellen C. Perrin, M.D. R. Christopher Sheldrick, Ph.D.

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Presentation on theme: "The Survey of Well-being of Young Children (SWYC) Ellen C. Perrin, M.D. R. Christopher Sheldrick, Ph.D."— Presentation transcript:

1 The Survey of Well-being of Young Children (SWYC) Ellen C. Perrin, M.D. R. Christopher Sheldrick, Ph.D.

2 We have no relevant financial relationships with the manufacturer(s) of any commercial product(s) and/or provider(s) of commercial services discussed in this CME activity. We do not intend to discuss an unapproved/investigative use of a commercial product/device in this presentation.

3 Historical perspective Rosie D. lawsuit CBHI Available Instruments – Lengthy – Proprietary – Scoring complex – Fragmented

4 Our goals Surveillance Instrument (birth to 5) – First level screening – Integrate “behavior” and “development” – Include family context/risks – Quick to fill out, score & interpret – “Developmental growth curve” Free and in public domain Amenable to electronic format – Computer – Telephone – Internet

5 Development Behavior Family Context

6 Development Behavior Internalizing Externalizing Family Risk Baby Pediatric Symptom Checklist (BPSC) Preschool Pediatric Symptom Checklist (PPSC)

7 Development Delays Autism Behavior Internalizing Externalizing Family Risk Baby Pediatric Symptom Checklist (BPSC) Preschool Pediatric Symptom Checklist (PPSC) Milestones Parent’s Observations of Social Interactions (POSI)

8 Development Behavior FAMILY RISK FACTORS Family Risk FAMILY RISK FACTORS Depression  PHQ-2 Substance Abuse  Alcohol  Tobacco  Other drugs Parental Discord Hunger

9 Four Domains Social-emotional-behavioral – BPSC (Birth to 18 months) – 12 items – PPSC (18 months to 5 years) – 18 items Cognitive, Language and Motor – Milestones (each WCV) – 10 items Autism – POSI (18 to 36 months) – 7 items Family Risks – Each WCV - 11 items

10 SWYC Psychometrics! Latent variable modeling Comparative effectiveness

11 Item 1 Item 2 Item 3 Item 4 Item 5 Item 6 Item 7 Item 8 Item 9 Item 10 Item 11 Item 12 Item 13 Item 14 Item 15 Item 16 Item 17 Item 18 Social/ emotional problems f1 f2 f3 Latent variable modeling PPSC bifactor model general factor item clusters Reliability Differential Item Functioning SES ?

12 PPSC ASQ-SE PPSC ASQ-SE PRIMARY CARE SAMPLE SensitivitySpecificity Total Internalizing Externalizing CBCL Total Internalizing Externalizing CBCL

13 PPSC ASQ-SE SensitivitySpecificity PPSC ASQ-SE Total Internalizing Externalizing CBCL Total Internalizing Externalizing CBCL CLINIC SAMPLE

14 SensitivitySpecificity ADHD Anxiety Behavior or Conduct Any diagnosis Parent report of existing diagnosis Specificity PPSC ASQ-SE CBCL

15 Other SWYC studies POSI v MCHAT Milestones v ASQ-3 BPSC v ???

16 Example SWYC Forms 12-Month24-Month Milestones Social/ Emotional Behavior

17 Page 2 (on the back) 12-Month24-Month Autism Family Risk Questions

18 Summary Surveillance/first level screening instrument Includes – Cognitive, language, motor, and social- emotional development – Autism spectrum disorders – Family context/risks Compares well with older instruments Free, public domain English and Spanish Convertible to computer platform – Tailored for child’s age – Link to follow-up questionnaires

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