Presentation on theme: "Louisiana Deafblind Project Cassondra Glausier Coordinator Deafblindness: Defining, Educating & Empowering Children Resources for families."— Presentation transcript:
Louisiana Deafblind Project Cassondra Glausier Coordinator Deafblindness: Defining, Educating & Empowering Children Resources for families
Project Updates What deafblindness? Associated terminology Prevalence of deafblindness Causes of deafblindness The challenges dual sensory impairments Accurate identification practices Resources for families and parents
Technical Assistance & Dissemination Transferred To the Human Development Center Office of Special Education Programs (5year) Children birth through 21 years old Both vision & hearing loss present Services are at no cost & are confidential A Deafblind Project is located in every state
Training, Support, and Resources Information and Referral IEP & Transition Teams Technical Assistance to Families & Educators Statewide Project & Registry Resource Library LA Deafblind Project Website Project Facebook Page
Project website & other TA documents Print or video resources SPARKLE Project Family-to-family network and call Project sponsored trainings Help in finding resources Home and/or school visits Facebook Page Resources
Information about the project How do you refer a child? What happens after a child is referred? What assistance can be provided? How does a family or service provider get assistance? Where is assistance provided? Is there a cost? What are the benefits?
What happens after referral? Referral packet reviewed Potential phone calls for clarification on some questions Intro binders mailed to parent and service provider: TA request forms, all tip sheets, newsletter & more Introductory phone call and/ or visit
Federal Definition of Deafblindness “Concomitant of hearing and visual impairments, the combination of which causes such severe communication, developmental and education problems that the individual cannot be accommodated in programs solely for individuals who are deaf or blind.” (2004, IDEA)
Deafblindness is a disability of ACCESS to information and communication.
Children and youth with deafblindness have a combination of hearing AND vision loss that limits access to auditory and visual information, impacts communication, or restricts participation in daily activities and environments. The effects of the combined losses, even if both are mild, create unique challenges for the child, family, & educator.
Affects 10,000 children across USA 3 in 100,000 births 91 children in Louisiana 70 known causes Louisiana high impact of Usher Syndrome Any level of the dual sensory loss
The Diversity of “Deafblindness” Although “deafblind” implies a total absence of vision and hearing, this is not the case with most individuals who are deafblind. Most children and youth who are deafblind have some useable hearing and/or vision. There is no single profile of a learner who is deafblind.
A deaf individual who cannot see Or A blind individual who cannot hear Deafness + Blindness = Deafblindness
Deafblindness / Deaf-Blindness Co-Occurring Sensory Loss Dual Sensory Impairment / Loss Combined Vision and Hearing Loss Multidisabled (with sensory loss)
Usher Syndrome CHARGE Congenital Rubella Severe Head Injury Stroke Cytomegalovirus Meningitis Undetermined Hydrocephaly Trisomy 21 Cornelia de Lange Fetal Alcohol Syndrome Maternal drug use Tumors Hydrocephaly Direct Trauma Prenatal/Congenital Postnatal/Noncongenital Microcephaly
Critical Factors that Influence the Impact of Deafblindness Age at onset of loss Degree, type, and stability of vision and hearing loss Accompanying disabilities (90%) Support variables
Children under identified Children under referred Under a different category Community awareness Understanding of the term deafblind Accommodations consider both losses
Address sensory loss early to optimize sensory function. Appropriate intervention of developmental and/or academic challenges. Access and communication needs are identified and supported through strategies and possible adaptive equipment.
Impact of Deafblindness Sensory Social and Emotional / Relationships Communication ◦ Receptive ◦ Expressive Motor / Movement Limited access to information Cognitive / Learning / Academics Activities of Daily Living / Self Help
Learning Impact A great deal of learning comes from observing and imitating of what others are doing. Child may develop unique learning style. Concept development External / internal world confusion. May develop fragmented or distorted concepts due to lack of full experience. Abstract concepts may be more difficult to learn
Look for us on Facebook www.facebook.com/lsuladbp
National Consortium of Deafblindness www.nationaldb.org American Association of Deafblind www.aadb.org National Association for the Deafblind www.nfadb.org Helen Keller National Center www.hknc.org Texas School for the Blind/Visually Impaired www.tsbvi.org Perkins School for the Blind www.perkins.org www.perkins.org
Louisiana Deafblind Project www.hdc.lsuhsc.edu/ladbp Louisiana for the Deaf & Visually Impaired www.lsdvi.org Federal Quota Funds email@example.com Affiliated for the Blind www.Affiliatedblind.org Lighthouse Louisiana www.lighthouselouisiana.org Louisiana Rehabilitation Services www.laworks.org Louisiana Center for the Blind www.lcb-ruston.com
If you have a child who has a hearing and vision loss at the same time and would like assistance who do you contact? Louisiana Deafblind Project
Hand in Hand Remarkable Conversations Deaf-Blind Perspectives Deaf-Blind Infants and Children: A Developmental Guide, by J.M. McInnes and J.A. Treffry, University of Toronto Press, Toronto, Canada, 1997.National Consortium on Deaf-blindness Thanks to the following projects: NV, NM, UT, NY, MN, CO, WY