Presentation on theme: "Development of a questionnaire to survey stakeholders views on outcome measures Sarah Thurgood BSc (Hons) MSc MBPsS Researcher Leeds Addiction Unit Perspectives."— Presentation transcript:
Development of a questionnaire to survey stakeholders views on outcome measures Sarah Thurgood BSc (Hons) MSc MBPsS Researcher Leeds Addiction Unit Perspectives in Outcome Measurement for Addiction Interventions SSA Conference 8 th and 9 th November 2012 Leeds Addiction Unit The NIHR CLAHRC for Leeds, York and Bradford
Why do we need this research? Result Outcome package designed by professionals Are measures meaningful and accessible to those who use them? Consultation with LTLA and Leeds Researchers
Consultation Learning to Live Again (LTLA): A service user led aftercare programme ◦ Using a questionnaire design ◦ Participants have knowledge of addiction Leeds Researchers: A group of service users and carers who are interested in research ◦ 2 stage process to develop questionnaire 1. Exploring what are important outcome measures 2. Prioritising the outcomes for inclusion in questionnaire.
Stage 1 Identifying outcome measures considered important to service users, their friends and family in recovery from addiction. Stage 1: Generating a list of items Stage 2: Producing questionnaire Stage 3: Piloting the questionnaire Stage 4: Distributing questionnaire
Findings Being Better Positive life Improvements when recovered Reasons for use Reasons for drink or drug use Consequences of use Negative impact on life when addicted Process of change Aspects involved in the process of recovery “So if that’s a craving, but you’ve got to deal with it... And you do find ways to get on and deal with it” “Like everybody thinks you’re a thief, everybody thinks you’re dirty, everybody thinks that you’re stupid, whatever, they just…” “I know that my treatment is working when I get up every day and just do the ordinary everyday things that people do, and I enjoy them”. “What happens when people have no money and things are getting worse, that's where they turn because they need that escapism, to drugs and alcohol”.
What is being better? Being better Relationships Social Situation Self awareness AbstinenceActivitiesHealth Friends and family
Relationships FG5: I see my wife three times a week sometimes ya know compared with nine months ago I didn’t see her at all FG2: have you got new friends, have you got, you know, have you got a social circle of non-drug users. FG6: she knows she can’t go back to those people because she’ll probably well, I, god forbid, hopefully you know but she could use again.
Activities FG2: So there’s something about your ability to look after yourself that’s important, to take care of yourself FG3: Coz you actually get up on a morning and do something and focus what your guna do and you go do it. FG2: you need something to fill the time and that is a big killer FG2: I’m at college doing two courses a week I’m doing cooking course, sewing courses
Stage 2 Defining outcome measures in a way that is meaningful to service users, their friends and family. Stage 1: Generating a list of items Stage 2: Producing questionnaire Stage 3: Piloting the questionnaire Stage 4: Distributing questionnaire
Stage 2 Method Initial definitions Consultation interviews Service user meaningful definitions Final definitions to be used for the pilot questionnaire
Consultation feedback Having money Having money in your pocket Having enough money to live comfortably Accommodation Having proper accommodation Having suitable accommodation
What’s next? Stage 3 Pilot questionnaire Incorporate feedback Stage 4 Distribution of final questionnaire
Research contribution: “This presentation is part of independent research funded by the National Institute of Health Research (NIHR) through the NIHR Collaboration for Leadership in Applied Health Research and Care for Leeds, York and Bradford. The views expressed are those of the authors and not necessarily those of the NHS, NIHR or the Department of Health. The NIHR had no role in the study design, collection, analysis or interpretation of the data, writing the presentation, or the decision to submit for dissemination.”
Qualitative Analysis: Initial code generation 1 st level coding 1564 quotes Searching for themes 2 nd level coding 12 general categories 3 rd level coding 84 specific categories Reviewing themes 4 th level coding 4 main themes The transcribed data was coded sentence by sentence across all five focus groups Twelve, 2 nd level coding categories were created. Each of the these categories were further broken down to create a third level of coding Through inspecting the third level codes it was decided that they could be collapsed into four broader categories: being better, process of change, consequences of use and reasons for use. Following Thematic Analysis by Braun & Clarke (2006) Improved relationships Social Effect on relationships Being better Improvement in relationship with family and friends Mm, I’ve got down getting on with family and friends, yeah.
What is Being better? Relationships o With friends and family improved o New friendships with non users o Staying away from users Social Situation o Money o Accommodation Self Awareness o Confidence o Self esteem o Trust o Optimism Abstinence o Not taking any medication o Stopping using Activities o Personal Care o Day to day tasks o Alternative activities o Personal development Health o Mental Health o Physical Health o Sense of wellbeing Friends and family o Wellbeing of friends and family o Support for friends and family Being better Relationships Social Situation Self awareness AbstinenceActivitiesHealth Friends and family
Process of change: Support o Awareness o Relapse o Professional o Social o Peer Coping o Strategies o Good addiction Stages of recovery o Making the decision to change o Building confidence o Involvement in own recovery Awareness of relapse o Signs of relapse o Cycle of relapse Reducing amount used Treatment o Follow up o Individual treatment o Addressing issues o Psychiatric treatment Activities o Non using activity o Group Activity o Filling time Barriers o Negative influences o Housing o Confidentiality o Non users understanding Process of change Support Coping strategies Stages of recovery Awareness of relapse Reducing amount used TreatmentActivitiesBarriers
Consequences of use: Social Situation o Availability of accommodation Addiction o Cravings o Dependence o Worry about relapse Self awareness o Low confidence o Feeling ashamed o Making mistakes Activities o Effect on whole life o Negative behaviour when using o Not part of normal life o Using activity o Lack of personal care o Lack of motivation Treatment by others o Being judged o Treatment by the police o Social stigma o Media view o Penalties for drug use o Appearance of a drug user o Not being trusted Relationships o Exposure to other users o Effect on relationships with family and friends Effect on health o Psychological wellbeing o Physical health o Mental health o Pain masked Consequences Social situationAddictionSelf awarenessActivities Treatment by others Effect on Relationships Effect on health
Reasons for use: Reasons for use To escape problems Suppress feelings Mental Health Problems To celebrate Feeling miserable To forget about things