1. Board of Trustees Jo Darby Governance & Legacy Officer
Sharon Stinton PA to CEO
Sally Light CEO
Chris James Director of External Affairs
Linda Cherrington Director of Finance
Douglas Graham Director of Fundraising
Steve Bell Director of Care (North)
Karen Pearce Director of Care (South)
Brian Dickie Director of Research
Chris Wade Director of Engagement
PR & Media
Policy
Campaigns
High Profile Relationships
Communications, Information & Education
Awareness & Profile
Publications
Digital Media
Conference & Events
Branch Support
Management Accountants
Budgets
Payroll
Gift Aid
Legal Services
ICT
Site Services
Governance
Community
Corporate
Supporter Development
Income & Supporter Services
Trusts
Major Donors
Regional Care
MND Connect
Care Centres
Welfare benefits project
Safeguarding
International Alliance
Regional Care
Regional Admin
Care Support Services
Financial Support
Equipment Loan
Care Centres
Projects Office
Data Protection
Grants Programme
DNA Bank
International Symposium
Research Communication HR
Learning & Development
Volunteering

2. External Affairs Chris James Director of External Affairs Tina Downs
PA to Director
Philippa Sillis
Head of Communications
Claire McArthur
Digital Media Manager
Alison Railton
Public Affairs Manager
Raj Johal
National Campaigns
Manager
Richard White
High Profile Relationship Manager
Emma Yorke
Campaigns Officer
Paula McGrath
Editor
Jennifer Bedford
Partnership Development Manager
Oscar Maddison Digital Project Manager
Susan Darrall Project & Publications Developer
Julie Compton
Campaigns & Development Manager
Vacant
Forum and Social Media Co-ordinator
Beverley Goodman
Professional Information Developer
Bethany Robertson
Communications Officer
Emma Johns
Communications Manager
Alice Fuller
Campaigns & Development Manager
Melanie Smith
Forum and Support Portal Co-ordinator
Kaye Stevens
Care information Manager
Chris Maden
Conference & Events Administrator
Pam Aston
Conference & Events Manager
John Kell
Policy Manager
Simon Hoggarth
Website Administrator
Lisa Cousins
Care Information Developer
Lina DelGrosso Conference & Events Admin Support
Ellie Munro
Policy Officer
Jasmine Harwood
Special projects
Sara Murray
Young Persons Information Developer

3. Statutory Accounts Linda Cherrington Director of Finance
David Phillips
Management Accountant
Andrew Zielinski Financial Controller
Darren Carr
Head of Facilities Management
Simon Cooper
Head of ICT
Anita Stockman
Financial Accounts Assistant – Treasury
Jane Adams
Management Accounts Assistant
Phil Day Facilities Manager
Paul Ette
ICT Services Manager
Lorraine Findlay
Financial Accounts Assistant – Braches & Groups
Deborah Simms
Purchase Ledger
Nina Smith
Facilities Assistant
Tracey Harper
ICT Officer
Kris Burrows Financial Accounts Administrator
Katy Bradley
Receptionist
Maurine Rust
ICT Officer
Teresa Deacon
Receptionist
(Temp)
Michael Thomas
ICT Officer

4. Fundraising Douglas Graham Director of Fundraising
Denise Davies Head of Community Fundraising
Shabz Khokhar Fundraising Income Support Manager / Assistant to Director of Fundraising
Vacant Head of Corporate Development
Ian Gardner Head OF Development Fundraising
Julie Desborough Database Manager
Sarah Webb Head of Direct Marketing & Personal Membership
Luci Jago Trusts Fundraising Manager
Fundraising
Angeles Garcia Direct Marketing Manager
Sarah Clay Trusts Fundraising Manager
David Reichle Income Procession Officer
Vacant New Business Development Manager
See slide 5
Amanda Jansen Development Officer
Suraiya Khawaja Data Support & Analysis Officer
Stephen May Marketing Manager & Tribute Funds
Madeline Collins Trusts Fundraising Manager (P/T)
Maureen Crane Income & Supporter Services Officer
Ben Sharpe Senior Corporate Fundraising Officer
Vacant
Data Post
Debbie Philip Membership Officer
Helena Farrell Income Processing Officer
Tess Moore Support Services officer (P/T)
Vacant Income Processing Officer
Vacant
Direct Marketing Officer
Rachel Toner Supporter services Administrator
Vacant Digital Post

5. Fundraising continued: Community Fundraising
Denise Davies Head of Community Fundraising
Sarah Hampton
Regional Fundraiser Team Leader – South
Mandy Metcalf
Regional Fundraiser Team Leader – North
Trudi Sadler
Senior
Community & Events Fundraiser
Anita Solan
Community & Events Fundraiser
Esther Fifield
Community & Events Fundraiser
Sarah Davies
Community & Events Fundraiser
Vacant
Community & Events Fundraiser
Vacant
Community & Events Fundraiser
Roger Widdecombe Regional Fundraiser (East)
Donna Young Regional Fundraiser (Central England)
Julie Naismith Community Fundraising Administrator
Stuart Town Community Fundraising Co-ordinator
Alanah Gelling Community Fundraising Co-ordinator
Pamela Fry Regional Fundraiser (South East
Richard Shackelford Regional Fundraiser (Wales & Mid England)
Vacant Regional Fundraiser (London)
Vacant
Regional Fundraiser

6. Liz Cooper/Lindsay Goward
Care
Steve Bell
Director of Care (North)
Karen Pearce
Director of Care (South)
PA to Directors Sue Squire
Chris Bennett
Regional Delivery Manager
Wales, Northern Ireland and West England
John Gillies
Regional Delivery Manager
East of England and London
Tracey Thompson Regional Delivery Manager
Northern England
Hilary Fairfield Regional Delivery Manager
Southern England
RCDA’s:
Christine Strohmeier
South London
Alison Manning
North East London
Paulette Riley
North & West London
Kim Iliffe
East Midlands
Liz Cooper/Lindsay Goward
East Anglia
Rachel Boothman
Central Midlands
Liz Pybus
Herts & Essex
RCDA’s :
Vacant
South West
Kent & East Sussex
Neil Drinkwater
Bristol and West
Louise Rickenbach
South Central
Kathy Hymas
Thames Valley
Jane Giles
Surrey & West Sussex
RCDA’s:
Jenny James
North East & East & West Cumbria
Colin Pearson
Cleveland, East and North Yorkshire
Sue Smith
West Yorkshire
Chris Lynch
Greater Manchester
Maxine Harris
Lancashire, South Cumbria & Blackpool
Jane Evans
South York, North Derbyshire, North Lincs and North East Lincs
RCDA’s
Kevin Thomas
North Wales & Isle of Man
Helen McClean
Northern Ireland
Carol Smith
South Wales
Jackie Dornford-May
West Midlands North
Alison Noakes
West Midlands South
Paula Sutton
West Lancs and the Wirral, Merseyside & Cheshire

7. Care continued: Benefits, Care & Connect
Steve Bell Director of Care (North)
Karen Pearce Director of Care (South)
Vacant
Welfare Benefits, Project Manager
Scott Maloney
MND Connect Team Leader
Nigel Starkey (Interim)
MND Care Support Services Team Leader
Pauline Matheson
Project Manager
DCP MND Wheelchair Service Therapists
Jenny Rolfe – Oxford
Christine Orr – Leeds
Fiona Eldridge and Paul Graham - Leatherhead
Derek Williamson Wheelchair service coordinator
MND Connect Advisors
Rachel Brown
Ruth Paintin
Karen Welsenaer
Adele O’Toole
Jacqui Roughton
Equipment Loan Support:
Tracey Richards
Amanda Stredwick
Helen Strausa
James Baker
Care Centres
Nottingham
Addenbrookes
Care Centres
West Peninsula
Bristol, Barts, Kings, National, Southampton
Oxford
Matthew Hollis
Care Team Administrator
Philip Coker Data Input Administrator
Jane Skelton
Connect Volunteer
Sue Jenkins
Care Team Administration
Care Centres:
Newcastle
Middlesbrough
Leeds
Manchester
Preston
Sheffield
Care Centres:
South Wales
Northern Ireland Care Network
Birmingham
Liverpool

8. Research Brian Dickie Director of Research Development Pauline Frear
PA to
Director of Research Development & Team Administrator
Belinda Cupid
Head of Research Development
Samantha Price
Research Information
Co-ordinator
Lucy Smith
Research Information Administrator
Sadie Vile
Research Grants Manager
Natasha Rowe
Research Grants
Laura Harris
Administrator

9. Engagement Chris Wade Director of Engagement
Rachel Breeds PA & Team Admin
Peter Reeve Head of HR
Jools Cook Head of Volunteering
Claire Ayling Volunteer Information Coordinator
Elice Craske Information & Knowledge Manager
Sam Marshall Volunteering Recruitment, Learning & Development Coordinator
Kelly Jones HR Business Partner
Anneka Minter Learning & Development Co-ordinator
Volunteer Development Coordinators Angela Lee (maternity cover for Lucy Etheridge) Karen Hickmore Annabel Lotsu Chris Noble Neil Penson Sarah Milner Jo Cunnah Claire Tucket
Laurie Clemenceau Volunteer Best Practice Developer
Eve Adu-Bofour HR Business Partner
Jennifer Saunders
HR Administrator
Emma Connolly Volunteer Best Practice Developer
Sally Edwards HR Business Partner (Temp)
Emily Schanche
HR Business Partner
(Maternity Leave)

10. East of England & London
John Gillies Regional Delivery Manager
Volunteering Development Coordinators (VDC’s)
Neil Penson
Angela Lea
Annabel Lotsu (maternity leave)
Regional Fundraisers (RF’s)
Donna Young
Roger Widdecombe
Vacant
Regional Care Development Advisors (RCDA’s)
Liz Pybus
Liz Cooper / Lindsay Goward Kim Iliffe Rachel Boothman
Christine Strohmeier Alison Manning Paulette Riley
Branches / Groups
Derbyshire MND Support Group | Nottinghamshire Branch | Lincolnshire Group |Leicestershire & Rutland Branch | Northamptonshire Branch |Cambridgeshire Branch |North Bedfordshire Group | Kings Lynn Fundraising Group | Norwich & Waveney Branch | Milton Keynes Branch | Suffolk Fundraising Group | Luton & South Beds Branch | North & East Hertfordshire Branch |Colchester & North East Essex Group |South Hertfordshire Branch |Chelmsford & Mid Essex Branch |South Essex Branch | West London & Middlesex Branch |South London Group |North London Branch | North West London Branch |East London Development Group

11. West of England, Wales & Northern Ireland
Chris Bennett Regional Delivery Manager
Volunteering Development Coordinators (VDC’s)
Karen Hickmore
Jo Cunnah
Regional Fundraisers (RF’s)
Richard Shackleford
Regional Care Development Advisors (RCDA’s)
Paula Sutton
Helen McClean
Alison Noakes
Jackie Dornford-May
Kevin Thomas
Carol Smith
Branches / Groups
Shropshire Branch |Staffordshire Support Group |Merseyside Branch |Cheshire Branch | Coventry & Warwickshire Group |Worcestershire Branch |Wirral Group |Walsall & Sandwell Group |Birmingham & Solihull Group |Dudley & Wolverhampton Group |Herefordshire Branch |Northern Ireland Branch |Isle of Man - Manx Branch (affiliate) |Gwynedd & Ynys Mon Group |Clwyd Branch |Montgomeryshire Branch |Cardiff and Vale of Glamorgan Branch |South East Wales Branch |South West Wales Branch

12. North of England
Tracey Thompson Regional Delivery Manager
Volunteering Development Coordinators (VDC’s)
Chris Noble
Sarah Miller
Regional Fundraisers (RF’s)
Mandy Metcalf
Regional Care Development Advisors (RCDA’s)
Jenny James
Maxine Harris
Sue Smith
Chris Lynch
Jane Evans
Colin Pearson
Branches / Groups
North & West Cumbria Branch |North Lancs/South Cumbria Branch |Furness & District Support and Fundraising Group |Tyne & Wear Branch |Durham Fundraising Group |Cleveland Branch |West Yorkshire Branch |Yorkshire Dales Branch |Scarborough Support Group | Hull & East Yorkshire Group |South Yorkshire Branch |Grimsby Branch |Central & East Lancashire Support & Fundraising Group |Blackpool, Wyre & Fylde Branch | Manchester & District Branch |South Lancashire Branch.

13. South of England Branches / Groups
Hilary Fairfield Regional Delivery Manager
Volunteering Development Coordinators (VDC’s)
Angela Lea
Claire Tucket
Regional Fundraisers (RF’s)
Sarah Hampton
Pamela Fry
Regional Care Development Advisors (RCDA’s)
Louise Rickenbach
Cathy Finnis
Neil Drinkwater
Kerry Palmer
Jane Giles
Kathy Hymas
Branches / Groups
Gloucestershire Branch |Oxfordshire Branch |South Buckinghamshire Branch |Reading & West Berks Branch |Windsor & East Berkshire Group |North Wiltshire Group |Bristol, Bath, Weston & Winsley Group |South & East Somerset Branch |South & West Somerset Branch |North & West Devon Fundraising & Support Group |Cornwall Branch |Plymouth & District Support & Fundraising Group | Exeter & East Devon Branch |Torbay & District Fundraising Group |East Kent Development Group | Mid Kent Branch |West Kent Branch | North West Kent Branch |South West Surrey Branch | East Surrey Branch |East Sussex Branch |West Sussex North Branch | West Sussex South Branch | Southampton & Winchester District Group |Isle of Wight Branch |Portsmouth & S E Hants Group | West Dorset Branch | Basingstoke & District Group | East Dorset & New Forest Branch | Guernsey Branch (affiliate) | Jersey Branch (affiliate).