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 Know the facts  Examine our attitudes  Face our fears  Come together.

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Presentation on theme: " Know the facts  Examine our attitudes  Face our fears  Come together."— Presentation transcript:

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2  Know the facts  Examine our attitudes  Face our fears  Come together

3  A new Alzheimer’s Society initiative  Create Dementia Friendly Communities by recruiting 1 million Dementia Friends by March 2015  A Dementia Friend needs to know 5 key facts  And make a commitment as to how they can turn that understanding into action  No action is too small

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5  You forget people’s names more easily?  Words won’t come as easily?  Getting to the top of the stairs and thinking ‘what did I come up here for?’  Your brain generally does not seem quite as ‘whizzy’ as it used to be?  If so, DON’T WORRY – THIS IS NORMAL!

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7  Not just forgetting names and details but whole events or conversations  Memories do not come back even with prompting  Getting lost in familiar, rather than new, places  Finding it difficult to keep up with events and becoming disorientated  Frequently repeating conversations  Signs of progression in terms of frequency and severity of problems

8  If you are not happy with the response of your GP please get in touch with Healthwatch  New organisation to help people find the health and social care services they need and make their voices heard

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10  Depression  Delirium  Vitamin B deficiency  Hypothyroidism

11 Age in 50 Age in 20 Age in 5 Dr Elizabeth Milwain:

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13  Core features:  Memory – new learning  Thinking – drawing everything together  Planning and decision-making  Specific difficulties:  Language  Knowledge – old learning  Spatial awareness  Visual perception

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16 Cortex Limbic system Brain stem Vital functions Automatic behaviours Understanding me Understanding of the wider world

17 The world beyond what I can see (memory) The world I can see (vision) My body (feeling)

18 ‘Normal life’ Information Thinking Goals Complex Remembered Fast ‘Life in the moment’ Emotion Sensing Experiences Simple Enjoyed Slow 18

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20 Isolated Worthless Failing

21  To feel safe  To feel they have control  To feel valued  Personhood  I-Thou versus I-It

22 Looks? Independence?

23 Standard Effect of dementia Therapeutic relationship

24 Person Carer Others

25 GriefHurt Guilt Tired 25 ‘Normal life’ ‘Life in the moment’

26  Affected families often do not welcome offers of help – stigma and denial are big problems  Most of us experience disabling emotions in the face of dementia:  Fear  Distaste  Grief  Guilt

27 “Aaahh!” “Aaahh”? Or “Eeww”?

28  Understand more about it  Change your own attitude – learn to stand against the difficult emotions  Challenge (but with sensitivity please) the attitudes of others  Get alongside someone you know who is affected:  be willing to try  be willing to feel uncomfortable  be willing to get it wrong  Volunteer in your local community:  Support groups  Befriending of couples in which one has dementia

29  Look at the books on the table  Gaynor Hammond’s books are especially good  Resource lists, details of helpful organisations and other useful guides are available on the Diocese of Bradford website – or get in touch with Jacqui Hand if you would like hard copies  Please fill out the interest form if you would like me to keep you informed of events and developments

30  If you want to be counted as a Dementia Friend please put your hand up now  When I get the badges I will provide a supply to Jacqui Hand – if you would like a badge please put your name and contact details on the sign up sheet on the resources table  If you are on the internet visit to sign up as a Dementia Friend and register your action (helpful for the Alzheimer’s Society if you do this)


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