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Dementia Roadmap Helping primary care to support people with dementia

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Presentation on theme: "Dementia Roadmap Helping primary care to support people with dementia"— Presentation transcript:

1 Dementia Roadmap Helping primary care to support people with dementia

2 Dementia Roadmap Helping primary care to support people with dementia Declarations of Interest NHS: – East Surrey CCG – SCN SE Coast Clinical Lead Dementia – Honorary research Fellow Wolfson Institute King’s College London – Co-developer of MoodHive (Depression Anxiety Pathway) Royal College of General Practitioners – Clinical Champion Dementia – Chair Learning Disability Special Interest Group – Member Dementia Roadmap Steering group Consultancy / Advisory Boards / Speakers Bureau : – AstraZeneca, Alzheimer’s Society, Cerestim Ltd, Chase Pharmaceuticals, Edmund de Rothschild, Eli Lilly, Otsuka, Pfizer, Roche, Servier, Wellcome Trust – psi-napse

3 Dementia Roadmap Helping primary care to support people with dementia Rationale There is a wealth of information, guidance, tools and resources that can optimise assessment treatment and care … BUT … this is difficult to access to support effective diagnosis and treatment from the desktop computer.

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5 Dementia Roadmap Helping primary care to support people with dementia Key features Provides high quality NATIONAL information about the dementia journey alongside LOCAL information about services, support groups and care pathways. National - common to all Dementia Roadmaps Local - customised to individual roadmaps Designed by & for primary care to assist primary care, people with dementia, family & carers with more effective support A coherent structure reflecting the dementia journey Accessible and easy to use Available on mobile, tablet and desktop devices

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7 Dementia Roadmap Helping primary care to support people with dementia Usage 15,826 sessions 12,166 users 59,709 pageviews 4.5 pages / session 3.5 mins avg session duration 23% returning visitors 77% new visitors Popular topics Understanding-dementia Diagnostic process Post diagnosis support Popular content Helping you to assess cognition: A practical toolkit for clinicians Dementia diagnosis in primary care North Somerset dementia pathway Dementia information prescription

8 Dementia Roadmap Helping primary care to support people with dementia Usage

9 Feedback We use the information within the Roadmap to reassure patients and their carers by signposting them to local support Our Roadmap helps us to refer patients onto specialist services The Roadmap is an incredibly useful resource for anyone wanting to know more about dementia, and the local services available It’s helping us to provide better support after diagnosis

10 Dementia Roadmap Helping primary care to support people with dementia A Rolling Success As of February 2015 there are 15 local Dementia Roadmaps with an estimated 20 local Roadmaps in place by April. 15 installations to date with 2 more expected this week 6 of the local Dementia Roadmaps are visible to the public; 9 are currently being developed; Birmingham, Cambridgeshire, Doncaster, Devon, Durham and Darlington, Gateshead, Isle of Wight, North Somerset, North Tyneside, Salford, Shropshire, South Gloucestershire, South of Tyne, Surrey, Waltham Forest

11 Dementia Roadmap Helping primary care to support people with dementia A Success - Testimony from Users “We use the information within the Roadmap to reassure patients and their carers by signposting them to local support.” “The Roadmap is an incredibly useful resource for anyone wanting to know more about dementia, and the local services available.” “It’s helping us to provide better support after diagnosis.” “I like the term map as it seems to be like a journey, it includes how to navigate many issues. It incorporates practical tips, education, information & an easy to follow layout. As a carer it feels supportive & provides tools to look for certain changes.”

12 Dementia Roadmap Helping primary care to support people with dementia dementiaroadmap.info/northtyneside

13 Dementia Roadmap Helping primary care to support people with dementia Developing a local Roadmap What we offer Installation Initial training and online learning environment Management of platform and knowledgebase Marketing materials What you need to contribute Stakeholder engagement Project management Content development Promotion

14 Dementia Roadmap Helping primary care to support people with dementia Preparing for your Roadmap Share information with your local stakeholders Establish a local project team to oversee your work Develop a business case to help secure resources Gather information about local groups and resources Discuss with neighbouring localities

15 Dementia Roadmap Helping primary care to support people with dementia Key features Provides high quality NATIONAL information about the dementia journey alongside LOCAL information about services, support groups and care pathways. National - common to all Dementia Roadmaps Local - customised to individual roadmaps Designed by & for primary care to assist primary care, people with dementia, family & carers with more effective support A coherent structure reflecting the dementia journey Accessible and easy to use Available on mobile, tablet and desktop devices

16 Dementia Roadmap Helping primary care to support people with dementia facebook.com/dementiaroadmap youtube.com/dementiaroadmap Keep in touch


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