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Quality Cancer Data Saves Lives The Vital Role of Cancer Registrars in the Fight against Cancer.

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Presentation on theme: "Quality Cancer Data Saves Lives The Vital Role of Cancer Registrars in the Fight against Cancer."— Presentation transcript:

1 Quality Cancer Data Saves Lives The Vital Role of Cancer Registrars in the Fight against Cancer

2 18 Million

3 1.5 million


5 67%

6 Cancer Registries n Statistics n Treatment strategies n Public health initiatives

7 Goal The ultimate goal of collecting cancer information is to prevent and control cancer and improve patient care

8 Result Assist physicians in assessing the efficacy of diagnostic and therapeutic methods

9 Result Aid in the decision making about unmet needs, physician recruitment, space needs, resource allocation, and health planning

10 Result Respond to local needs through an assessment of referral patterns, cancer trends, and development opportunities

11 Cancer-related Information n Medical history n Diagnosis and prognosis indicators n Treatment patterns n Cancer recurrence n Survival rates n Health care coverage n Patient eligibility

12 Different Kinds of Cancer Registries

13 Hospital Cancer Registry

14 State Cancer Registry

15 Surveillance Epidemiology and End Results Program (SEER)

16 National Program of Cancer Registries

17 Today, NPCR and SEER registries work collaboratively to collect and report cancer statistics on the entire U.S. population. npcr/uscs/

18 NPCR provides national leadership to Cancer Registries NAACCR Certified State Registries 2011 Gold Silver Black- did not meet certification requirements

19 CDC: National Standards n CDC has established national standards to ensure the completeness, timeliness, and quality of Cancer Registry data

20 National Cancer Data Base ncdb/index.html

21 How Registries Collect Cancer Data

22 The techniques used by Cancer Registrars allow for uniform data collection

23 Abstracting Abstracting is converting a patient’s medical information to uniform cancer data

24 Electronic Medical Records

25 Cancer Registries have embraced technology

26 The Flow of Cancer Information: A Case Study

27 Diagnosis to treatment n Jane Smith learns from her internist that she likely has breast cancer

28 Diagnosis to treatment n Further tests are completed at the hospital

29 Diagnosis to treatment n Jane’s doctor proposes a course of treatment

30 Diagnosis to treatment n Follow-up tests show Jane to be cancer free

31 Diagnosis to treatment n Jane’s data is added to other SEER and Michigan central Cancer Registry data, and the National Cancer Data Base, where it will go through more quality processes and refinement

32 Diagnosis to treatment n The Cancer Registrar will regularly follow- up

33 Cancer Information is Used to Improve Prevention, Research, and Care

34 Evaluate patient outcome, quality of life, and satisfaction issues and implement procedures for improvement Cancer information is used in thousands of ways, including —

35 Provide outcome information for cancer surveillance npcr/uscs/

36 Provide information for cancer prevention activities

37 Allocate resources at local, state, and national levels

38 Develop educational programs for health care providers, patients, and the general public

39 Cancer data form much of the body of knowledge used by medical professionals, epidemiologists, policymakers, and public health officials

40 Minnesota In Minnesota, a rare type cancer caused by asbestos exposure was identified, leading the state to look for increased state funding for occupational-related disease

41 New York Cancer registry data are now used to educate New Yorkers about cancer risk factors

42 Cancer Registrars Ensure Accuracy and Privacy

43 Inaccurate data is useless, expensive, and often harmful

44 National data is only as good as state and local data Health care providers record patient information and diagnosis Hospital-based cancer registrar abstracts patient information into uniform data sets and checks for an existing record for each patient Patient data is aggregated on a state level, and then sent to national registries (SEER or NPCR)

45 Privacy concerns are paramount to Cancer Registrars

46 Cancer Registrars: A challenging career requires quality education, and certification

47 High quality data results from trained specialists: Cancer Registrars

48 The Cancer Registrar must have comprehensive knowledge about cancer diagnoses, treatment, and information management

49 Education for Health Information Management Professionals and Cancer Registrars are similar

50 Hospital-based Registrar’s Role Goes Beyond Data Collection n Cancer Program Management n Cancer Committee Member n Monitor quality of Cancer Program Management n Provide benchmarks for quality comparison

51 n Data Analysis for Studies n Compiling Cancer Program Annual Report n Assess referral patterns Hospital-based Registrar’s Role Goes Beyond Data Collection

52 n Participate in cancer prevention n Present information to cancer committee, physicians, administration Hospital-based Registrar’s Role Goes Beyond Data Collection

53 n Edit the data from all facilities n Query the database for data quality reports n Merge duplicate records n Audit healthcare facilities to insure accurate, timely, complete data Registrars in Central Cancer Registries are Key Players in Insuring Quality Health Care

54 n Work with researchers n Contribute to data analysis for cancer program planning n Present data to the local community, schools, and others n Provide education and training for registrars Registrars in Central Cancer Registries are Key Players in Ensuring Quality Health Care

55 How Does One Become a Cancer Registrar?

56 Formal Education Programs Produce Excellent Cancer Registrars

57 CTRs have pursued higher education Some college, associates, bachelors

58 Certification of Cancer Registrars

59 Certification ensures quality results

60 In 1983, the National Tumor Registrars Association (now NCRA) administered the first certification examination for tumor registry professionals. NCRA’s Certification Examination

61 NCRA: Resources for Registrars

62 NCRA represents Cancer Registry professionals and CTRs

63 NCRA offers: n Multiple educational and networking opportunities n Annual national conference to build knowledge and expertise n Promotion of professional standards and ethics

64 NCRA offers: n Management of the CTR process and NCRA’s Council on Certification n Publication of a peer- reviewed scientific journal and a quarterly newsletter

65 NCRA offers: n A Web site offering a wide range of publications and information about educational opportunities n*

66 Cancer Registry is a Dynamic Profession

67 n Registrars are dedicated, enthusiastic, and self motivated professionals n Registrars work closely with physicians and administrators Cancer Registry is a dynamic profession

68 Cancer Registry careers are rewarding Associates Degree Masters Degree $39,000 $55,000

69 Cancer Registrars Have Many Career Opportunities n Hospitals and Health Care Facilities n Software Vendors n Government Agencies n Pharmaceutical Companies n Outsourcing or Contract services

70 You and Cancer Registries: A Smart Choice for a Bright Future

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