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National Blood Clot Alliance National Survey About Blood Clots and Stroke Risk Among Atrial Fibrillation Patients Awareness, Information, Prevention, Adherence.

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Presentation on theme: "National Blood Clot Alliance National Survey About Blood Clots and Stroke Risk Among Atrial Fibrillation Patients Awareness, Information, Prevention, Adherence."— Presentation transcript:

1 National Blood Clot Alliance National Survey About Blood Clots and Stroke Risk Among Atrial Fibrillation Patients Awareness, Information, Prevention, Adherence Key Survey Findings for Healthcare Professionals in Cardiology Made Possible by a Grant from Janssen Pharmaceuticals, Inc.

2 National Blood Clot Alliance Patient Governing Board Board Volunteer based, patient led Volunteer based, patient ledSciencedrivenSciencedriven Medical & Scientific Advisory Board Medical & Scientific Advisory Board Dedicated to the prevention & quality treatment of blood clots that cause DVTs, PEs, stroke

3 Awareness Advocacy Stopthe Clot ® National Blood Clot Alliance

4 Perspectives in Atrial Fibrillation (AF) AF affects 2.6 million in the U.S. Five-fold increased risk for ischemic stroke Mortality rates have increased in past two decades 12 million AF cases projected by 2050

5 Overview: The NBCA AF Blood Clot/Stoke Awareness Survey Responds to growing recognition of AF public health burdens Benchmarks awareness, prophylaxis experiences Demonstrates gaps in information and evidence-based prophylaxis

6 Methodology Development Questions developed by Survey Steering Committee MASAB members Implementation National survey firm Internet panels 2010 extensive evaluations 2011 data unveiled

7 Methodology Mean patient age % aged % aged % aged % female InformationInformation ProphylaxisProphylaxis AdherenceAdherence AwarenessAwareness 500 AF patients screened from an online panel

8 Blood Clot Awareness n=500 AF patients n=495 AF patients 99%

9 Risk Awareness/Information Sharing

10 Patient-Reported Prophylaxis Experiences n=500 AF patients

11 Tx Difficulty of Use: Warfarin n=259 AF patients prescribed warfarin

12 Patient-Reported Treatment Barriers: Warfarin 76% n=84 AF patients prescribed warfarin who report it is moderately/very difficult to use

13 Additional Findings: Warfarin Adherence Among AF Patients 74% of 259 warfarin users report adherence 83% given information or education about the therapy 26% stopped therapy  MD advised

14 Additional Findings: AF Patient Preferences Therapeutic Options Cited by Patients to Optimize Treatment 55% minimal bleeding complications, 52% fewer drug interactions, 46% no monitoring required, 43% fewer dietary restrictions 60% of AF Patients Given or Referred to Education/Information 85% brochure/pamphlet, 37% Websites, 30% articles 12% books, 8% CDs/DVDs AF Patients Say They Prefer CD/DVD 93%, Websites 78%, books 74%, articles 72%, brochures/pamphlets 52%

15 Conclusions and Future Directions Fill gaps related to blood clot/stroke risk awareness Optimize education programs/ prophylaxis among patients Research new therapies to address treatment barriers Opportunities exist for improved patient education General awareness is high Gaps do remain General awareness is high Gaps do remain Additional information limited Information referrals limited Additional information limited Information referrals limited Warfarin Tx barriers identified Patients report adherence Warfarin Tx barriers identified Patients report adherence Aspirin use is high Prophylaxis varies Aspirin use is high Prophylaxis varies Awareness Information Prophylaxis Adherence

16 Reduced risks and reduced complications Reduced risks and reduced complications Improved blood clot/stroke understanding and prophylaxis Improved blood clot/stroke understanding and prophylaxis Decreased morbidity, mortality, costs Imperatives Moving Forward

17 Thank You for Your Commitment The National Blood Clot Alliance thanks you for your commitment to increase awareness of blood clots and to help prevent blood clot complications like stroke.

18 Jack E. Ansell, MD - Steering Committee Chair Chairman, Department of Medicine, Lenox Hill Hospital, Professor of Medicine, New York University School of Medicine, New York, NY Alan P. Brownstein, MPH Chief Executive Officer, National Blood Clot Alliance, Tarrytown, NY Richard J. Friedman, MD, FRCSC Chairman, Department of Orthopaedic Surgery, Roper Hospital, Clinical Professor of Orthopaedic Surgery, Medical University of South Carolina, Charleston, SC Greg A. Maynard, MD, MSc, SFHM Chief, Division of Hospital Medicine, University of California, San Diego, CA Elizabeth A. Varga, MS, CGC Certified Genetic Counselor, National Children’s Hospital, Clinical Assistant Professor of Pediatrics, The Ohio State University, Columbus, OH The National Blood Clot Alliance extends its appreciation to members of the NBCA Awareness Survey Steering Committee

19 LF&A, Inc. Lisa Fullam, President, Scottsdale, AZ Dry Heat Productions, Inc. Scottsdale, AZ Communications and Production Services

20 The NBCA Awareness Survey Was Made Possible by a Grant From The NBCA Awareness Survey Was Made Possible by a Grant From

21 For More Information, Contact the National Blood Clot Alliance On the Web: On Facebook: By phone: 877.4N O. C LOT © NBCA 2011


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