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The Penn CFAR CAB Welcomes You to the City of Brotherly Love and Sisterly Affection.

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Presentation on theme: "The Penn CFAR CAB Welcomes You to the City of Brotherly Love and Sisterly Affection."— Presentation transcript:

1 The Penn CFAR CAB Welcomes You to the City of Brotherly Love and Sisterly Affection

2 The Penn CFAR CAB Welcomes You To The 2nd Cross CFAR CAB Meeting June 10 -11, 2013 Philadelphia, Pennsylvania

3 Case/UHC/MetroHealth ACTU CAB Case Center for AIDS Research University Health Center MetroHealth AIDS Clinical Trials Unit Community Advisory Board

4 CWR U CFAR Mission Statement To integrate community involvement in HIV/AIDS-related research & clinical trials in order to promote developments in the medical treatment of people living with HIV/AIDS & in preventing further HIV transmission.

5 Community Members Clinical research participants (past & present), cross representation of targeted community Community Medical Personnel Clinical Physicians, Research Principal & Junior Investigator, Nurses Community/Agency Connections ACTU, CWRU, Recovery Resources, Domestic Violence Shelter, ATFGC, AFC, Ryan White Planning Council, Regional Advisory Group Describe the makeup of your CAB: CWRU

6 Case/UHC/MetroHealth ACTU CAB

7 Case/UHC/MetroHealth ACTU CAB: Network Engagement ACTG- AIDS Clinical Trials Group CFAR- Center for AIDS Network HVTN- HIV Vaccine Trials Network MTN- Microbicide Trials Network

8 Case/UHC/MetroHealth ACTU CAB: Community Involvement

9 Established, June 2010 Chicago CFAR CAB

10 NameRoleAffiliation Juana BallesterosMemberIndependent Consumer Advocate Lesley CraigChairHHS, Region V Moctezuma GarciaMemberIndependent Consumer Advocate Sanford GaylordMemberHHS, Region V Dale GreenCo-ChairAIDS Legal Council Keith GreenMemberStroger Hospital of Cook County Lisa LeeMemberChristian Community Health Center Peter McLoydMemberRuth Rothstein CORE Center Yaa SimpsonMemberChicago Department of Public Health Enid VasquezMemberT-PAN Alan LandayEx-officio MemberRush University Medical Center Linda BaumEx-officio MemberRush University Medical Center Audrey FrenchEx-officio MemberCook County Health & Hospitals System Kevin TomlinsonEx-officio MemberRush University Medical Center Chicago D-CFAR CAB Membership

11 Chicago D-CFAR CAB CAB Mission: To foster & maintain partnerships & open communication between community members and CFAR researchers to enhance HIV education, prevention, treatment & research activities reflecting the interest of the community & the investigators. Consumers: Chicago has the 4th highest HIV prevalence of large cities in the US with ~21,000 known infections and another 5,000 presumed infected who are undiagnosed. Those affected are predominantly impoverished minority men, women & adolescents residing in Chicago's inner city neighborhoods where HIV prevalence reaches 400-1,200/100,000. 79% of those infected in Chicago are men, 52% are non Hispanic Black, & 57% are MSM.

12 Chicago D-CFAR National Testing Day The Chicagoland National HIV Testing Collaborative (CNHTC) The CNHTC)is a social marketing & HIV testing campaign established by staff of the Ruth M. Rothstein CORE Center &> 30 community-based agencies & organizations throughout Cook County in recognition of National HIV Testing Day. Our goal is to test 5,000 citizens, educate on the importance of routine screenings & to link those who are directly impacted into HIV medical care. To achieve this goal, the collaborative annually hosts 2 large community HIV testing events & coordinates with over 30 CBOs to host small neighborhood HIV testing events. In 2012, the 23 agencies administered 5,693 tests identifying 28 newly-diagnosed HIV- positive individuals.

13 DC D-CFAR CAB George Washington U Mission Statement The DC D-CFAR CAB seeks to provide community perspectives & guidance to the DC D-CFAR & to inform the HIV/AIDS research agenda in Washington, DC.

14 DC D-CFAR CAB George Washington U Mission Statement (continued) More specifically, the CAB seeks to: Engage the community in collaboration on new HIV/AIDS research efforts; Ensure community representation on the selection of DC D-CFAR research awards; Ensure that the community is educated about HIV research activities in DC; Carry out roles set out by NIH & priorities as established by the CAB; & Foster partnerships for community research studies.

15 Source: DC D-CFAR CAB George Washington U

16 DC D-CFAR CAB George Washington U Activities since Cross CAB Meeting Community representation Development of By-laws Review of award applications Participation in Scientific Working Groups Facilitation of Scientific Interest Groups (e.g., women) Community Education IAS poster and “Turning the Tide” presentation Collaboration with DC Community Coalition (DCCC) and DC Government Participation at scientific conferences – IAS, ECHPP

17 DC D-CFAR CAB George Washington U Community Education Activities Development of Town Hall community seminar series with the following objectives: Increase community knowledge & understanding HIV research Build community capacity to participate in & advocate for HIV research advocacy Develop community informed HIV research priorities & agenda. Planned seminars for upcoming year: Prevention Post-CROI Post-IAS

18 DC D-CFAR CAB George Washington U Inter-CAB & Community Relations Collaboration with DC Community Coalition Post-conference community updates as a co-sponsor Advising/orienting other prospective CABs

19 DC D-CFAR CAB George Washington U Future CAB Activities CAB member expansion Planning for reapplication Participation in upcoming meetings – SWG/SIG, SBSRN, ECHPP Continued & expanded collaboration – DCCC, other CABs and community groups Education on trial participant protections & rights Mapping of & connectivity with other CABs Support development of Women & HIV SIG

20 Harvard University Center for AIDS Research Mission: Community input is essential to ensure that HU CFAR – CAB goals are being achieved with respect to community outreach & education. The HU CFAR supports a CAB that will provide the CFAR leadership with input on the most effective use of CFAR resources to address these areas: Provision of community education & engagement programming to bring clinical HIV research awareness via education & outreach activities. Timely dissemination of information to ensure that new & recent research findings related to HIV prevention, care, and treatment are shared with patients, clinicians, caregivers, HIV/AIDS service providers & interested persons in the community.

21 Harvard University CFAR Description of membership* Former Public Health Official/Communi ty Advocate PLWHA Faith- Based Leadership Health Care Providers Key Community Stakeholder s Research/ Hospital Representatives * Active recruitment to expand & enhance the diversify of the CAB to a 12- 15 member body (e.g. community youth advocate).

22 Harvard University Center for AIDS Research Pending Membership Applications Community Advocate: A community advocate living with HIV who runs a self-empowerment program for women, & volunteers for a local HIV/AIDS service agency. Program Director: The New England AIDS Education and Training Center (NEAETC), established in 1988, is one of eleven Regional Education Centers & 5 National Centers, funded by Health Resources Service Administration (HRSA) with Ryan White Part F dollars & sponsored regionally by Commonwealth Medicine at the University of Massachusetts Medical School. The New England HIV Education Consortium (NEHEC) is a HRSA Minority AIDS Initiative (MAI) Special Capacity Building funded program serving all 6 states in New England. The primary goal of NEHEC is to address the HIV-related training, educational, & support needs of the full, spectrum of providers as they provide state-of- the-art, quality and compassionate care to individuals living with HIV/AIDS. Innovative training formats address the needs of minority providers, providers serving racial/ethnic/linguistic minorities & communities of color, & those working in settings funded by the Ryan White CARE Act.

23 Harvard University CFAR Active Recruitment Efforts Manag er of Community Relations/Health Promotion, AIDS Action Committee, Inc. AAC’s Mission: To stop the epidemic and related health inequities by eliminating new infections, maximizing healthier outcomes for those infected and at risk, and tackling the root causes of HIV/AIDS. Youth Linkage to Care Coordinator, Strategic Multisite Initiative for the Identification, Linkage and Engagement in Care of Youth with Undiagnosed HIV Infection (SMILE in Caring for Youth) Fenway Health/Fenway Institute The SMILE Linkage to Care (LTC) Program is designed to provide linkage to medical care and psychosocial support for youth who are newly diagnosed, having difficulties staying engaged in care, or new to the Boston area. This project is for Boston youth ages 12-24. The SMILE program establishes referral relationships with collaborating agencies to identify HIV infected youth and connect these individuals with a Youth Linkage to Care (YLTC) Coordinator. Mission: The Fenway Institute is an interdisciplinary center for research, training, education, and policy development, focusing on national and international health issues. Our mission is to ensure access to quality, culturally competent medical and mental health care for traditionally underserved communities, including lesbian, gay, bisexual and transgender (LGBT) people and those affected by HIV/AIDS.

24 Harvard University CFAR Active Recruitment Efforts #2 Executive Director, Hispanic Black Gay Coalition (HBGC) HBGC’s Mission: Hispanic Black Gay Coalition (HBGC) is one of few non-profit organizations in Boston dedicated to the unique and complex needs of the Black, Hispanic & Latin@ LGBTQ community. Founded in 2009, we work to inspire & empower Latin@, Hispanic and Black LGBTQ identified individuals to improve their livelihood through activism, education, community outreach, & counseling. Medical Case Manager, Whittier St. Health Center WSHC’s Mission: Our mission is to provide high quality, reliable & accessible primary health care & support services for diverse population to provide wellness & eliminate health and social disparities. In addition: Membership recruitment efforts include seeking local governmental representatives.

25 Harvard University CFAR CAB Infrastructure CAB meets bimonthly, or more when additional meetings are required. Meetings are held in the Boston Metropolitan area. Does your CAB have a committee structure? The HU CFAR – CAB is a working board that is broad-based & created from a commitment to involving any & all segments of the community that have an interest in HIV-related research 8 -15 members (core group of 6-10 people)  Two chairs: Chair and Vice- chair work with HU CFAR staff to set the agenda seek advice & recommendations from other HU CFAR – CAB members  Executive Committee core group of 5 – 6 members CAB makes decisions by using Robert’s Rules of Order CAB members will receive a $30.00 stipend to attend meetings CAB is funded by HU CFAR Executive Committee—Administrative Core

26 Harvard University CFAR CAB Infrastructure #2 CAB sponsored community education events:  Forgotten Epidemic: Our Collective Responsibility, Response and Solutions to the AIDS Crisis in Black America Project Forgotten Epidemic Campaign Study Group National Survey  National Webinars  National HIV/AIDS Awareness Days  Other Local and national educational HIV programming  In the process of developing a strategic dissemination plan: Community education, outreach and engagement HU CFAR CAB has been in existence since 2009, whereas CAB members actively participated locally and nationally on HU CFAR – Community Education & Engagement Program’s HIV/AIDS programming (e.g. The Forgotten Epidemic Project, National HIV/AIDS Awareness days, etc). However, our CAB’s Bylaws were only recently ratified. Now that there is a procedural infrastructure in place, HU CFAR CAB will began to grow its membership from 7 current members to 12 (or possibly 15), as well as advance & execute its mission.

27 Community Participatory Advisory Board Baltimore HIV Collaboratory Susan Sherman & David Holtgrave, Co – Directors Jordan White, Program Manager Richard E. Chaisson, MD, PI & Chris Beyrer, MD, MPH, Co-PI

28 JHU CFAR Specific Aims To develop a new generation of HIV/AIDS researchers and recruit under-represented minorities into the HIV/AIDS field To recruit new investigators from relevant disciplines into HIV/AIDS research to address the growing need for knowledge in emerging areas that affect the HIV epidemic To enhance the productivity by promoting transdisciplinary innovation, integration and collaboration To mobilize the capabilities and capacity of Johns Hopkins University to combat the HIV epidemic in Baltimore through training, outreach and community-based intervention studies.

29 Baltimore HIV Collaboratory CFAR AIM #4 To mobilize capacity from across Johns Hopkins University to combat the HIV epidemic in Baltimore through engagement, training, outreach and community-based intervention studies.

30 Baltimore HIV Collabatory Objectives 1. To promote community linkages between JHU researchers with HIV focused NGOs, the BCHD, & people affected with HIV/AIDS through the creation of forums to exchange data, information, & resources. 2. To identify, recruit, & train under-represented minority undergraduates, graduate students, fellows, & junior faculty in community-based HIV/AIDS research in Baltimore. 3. To facilitate the development of research skills among Baltimore-based, HIV focused nonprofit organizations as well as develop and expand research collaborations between JHU, nonprofits, and BCHD.

31 Baltimore HIV Collabatory Activities 1.Bridge the Gap Conference – Annual Conference on HIV/AIDS Issues in Baltimore City  Potential Topic – Affordable Care Act Implementation for at People risk or living with HIV  Trainings and Workshops for NGOs and Community Members 2.Baltimore HIV/AIDS Scholars  15 underrepresented undergraduate students mentored in a variety of disciplines (epidemiology, chemistry, nursing, bioethics, neurology) 3.Gilead Project  Community based HCV testing and education program for students and peers

32 Rochester HIV/AIDS CAB Mission to provide a formal channel for ongoing education, communication, advocacy, and problem solving among representatives of the community and those involved in adult and pediatric HIV/AIDS treatment and preventive vaccine research Our purpose is to facilitate appropriate, timely, and ethical research efforts which may ultimately bring about an end to HIV Disease and AIDS.

33 Rochester HIV/AIDS Community Advisory Board The Rochester HIV/AIDS CAB has been in continuous operation since 1991, in support of UR’s ACTG (Adult & Pediatric) and AVEG/HVTN clinical research programs. In April of 2012 the CAB voted to include UR CFAR issues into the agenda of its monthly meetings.

34 Describe the makeup of your CAB: Rochester CAB membership academic faculty, representatives of agencies, organizations & community members & represents the community’s voice in the ACTG, CFAR, HVTN, IMPAACT, & Individual Investigator Research. CAB leadership Executive Committee (CAB, Vice-chair & Secretary), Active Community Education Committee Protocol Review Committee

35 Rochester Decisions are made by polling the voting CAB members. Meetings are run by Robert’s Rules of Order. New items for discussion can be brought forth by researchers, research staff & CAB members

36 Rochester CAB membership: academic faculty, representatives of agencies, organizations and community members & represents the community’s voice in the ACTG, CFAR, HVTN, IMPAACT, & Individual Investigator Research. CAB leadership consists of an Executive Committee (CAB Chair, Vice-chair and Secretary), an active Community Education Committee & Protocol Review Committee. Decisions are made by polling the voting CAB members. Meetings are run by Robert’s Rules of Order & new items for discussion can be brought forth by researchers, research staff & CAB members.

37 Describe the makeup of your CAB: Rochester The CAB meets monthly, except during Summer recess (July & August). Once a year, the usual CAB meeting is replaced by a retreat (February), a half-day session where topics of the CAB’s choosing are discussed.

38 Describe the makeup of your CAB: Rochester The Rochester CAB… Reviews protocols from ACTG & occasionally discusses HVTN protocols. Co-sponsors 1 large community education event each year – usually associated with World AIDS Day or other days recognizing HIV/AIDS. Advocates for HIV/AIDS interests on a local basis which may include working with local legislatures, but more often directed at communities that bear the greater brunt of HIV infections. Participates in a joint network CAB through monthly meetings to discuss issues & items of common concern.

39 UCLA CFAR Community Advisory Board Sung-Jae Lee, Ph.D. University of California, Los Angeles Center for HIV Identification Prevention and Treatment Services (CHIPTS)

40 UCLA CFAR CAB Members Representatives from the private sector PLWHA Local & State Health Departments CBOS AIDS Service Organizations Educational Institutions Established in 1997 as part of CHIPTS at UCLA

41 UCLA CFAR CAB Responsibilities Activities of CFAR/CHIPTS Cores- to ensure that they remain attentive to community concerns, needs, & priorities Relevance to community of the social/behavioral prevention & intervention research Efforts to identify opportunities for researchers & staff from racial/ethnic minority groups Impact on the “practice” of activities of CBOs and its overall relationship with the local community

42 UCLA CFAR CAB Membership Consists of 10-15 members At least 25% of the members are people living with HIV/AIDS. Knowledge and insight into communities affected by HIV/AIDS The term of appointment is 2 years. Members may serve no more than two consecutive terms.

43 UCLA CFAR CAB Meetings CAB meets quarterly. A yearly meeting schedule distributed at the start of the year Agenda prepared by the Executive Director & transmitted to members in advance of each meeting. CAB members can propose agenda items a week in advance of the meeting Meeting summary is generated after each meeting A yearly orientation for new CAB members

44 UCLA CFAR CAB Compensation CAB members are expected to participate in all 4 meetings per year Compensation based on attendance ($400 annually) CAB members can submit mileage & parking reimbursements forms CAB members provided with a 1099 statement each year for tax purposes.

45 UCSF Center for AIDS Prevention Studies (CAPS) Community Advisory Board Presenter: Byron Mason

46 UCSF CAPS Specific Aims Science to Community: Facilitate access to & use of HIV prevention science by stakeholders (i.e., community-based organizations, funders & policy makers); Community to Science: Support CAPS scientists’ use of community expertise; Foster Collaborative Research: Support community- involved research & ongoing collaborative research partnerships between CAPS scientists & communities.

47 UCSF CAPS Mission Provide input & feedback to CAPS projects, to bring community concerns to CAPS, & to assist CAPS in disseminating research. Provides input to all CAPS investigators, with particular input to the Executive Leadership.

48 UCSF CAPS Community Advisory Board Supported through CAPS’ P30 Grant (NIH) 17 members (13 active, 4 emeritus) 4 meetings per year Peer /Grant Reviews Members are paid for each meeting Formal by-laws govern CAB structure & activities

49 UCSF CAPS Activities & Products Represent CAPS at scientific & community meetings (International AIDS Conference) CAPS Innovative Dissemination Award Recommendations for Research Dissemination (2006, 2013)

50 UCSF CAPS Successes & Challenges Highly “functional” and motivated members Diversity of disciplines & backgrounds Close ties to a range of communities Provider (CBO), consumer, government (local, state & federal) and corporate inroads Engagement challenges General relationship between community & science Motivating academics to engage with community

51 Miami CFAR CAB Background Mission: To ensure that all research supported by the Miami CFAR is developed, conducted & reported in a manner that recognizes the needs of those affected by HIV living in the South Florida community. In 2012, the Miami CFAR transitioned from a D-CFAR to a full CFAR.

52 Admin Core B C DE Evelyn Ullah & Kira Villamizar (Broward Health Dept. & Miami Health Dept.) Co-Chairs: Chair: Guillermo Prado, PhD ( Director of Core E) Community Advisory Board HIV Providers & clinic staff Health Dept. Staff CBOs Public School System UM researchers & faculty Justice System Membership Miami CFAR CAB Structure

53 Miami CFAR CAB Structures & Goals To convene a group of local researchers & community agency representatives to align CFAR activities & HIV/AIDS research with community needs. To keep communities informed on Miami CFAR research & special initiatives. To foster idea sharing & collaboration among researchers, community agency representatives, &community members around efforts to reduce the local burden of HIV/AIDS.

54 Miami CFAR CAB Activities Community Clinical Collaborations -Reduce care redundancy & enhance the medical home by providing HIV expertise into CBOs with need -Broaden our reach for HIV community participatory research by leveraging these resources -Examples of partnerships: OB/GYN, TeleDerm, Psychiatry at Care Resource*, Borinquin Health Care Center* (*federally funded health clinic) Project SHARE (Sharing HIV/AIDS Research Efforts) Collaboration between Miami CFAR, Miami-Dade County Health Department & the Broward County Health Department. -“The AMIGAS Study: A CDC‐Defined Evidence Based HIV Intervention for Latina Women” by Drs Wingwood & DiClemente -“Evaluating Implementation of the National HIV/AIDS Strategy: Using Community Viral Load 7& Other Surveillance Indicators” by Dr. Moupali Das

55 Andre H Ford, PhD (Chair) Emanuel Hamilton Community Rep. Rev. Wesley Proctor, PhD Victory Christian Church Gladys Thomas Philly Faith in Action Ameena Al Amin Cardiac Center, UPenn Roy Hayes Philadelphia FIGHT Carol Rogers Healthy Philadelphia Cynthia Green Community Rep. Wesley AndersonJeffrey Jenne Philadelphia Dept. Public Health (AACO) Bob Schoenberg LGBT Center, UPenn Judith Peters School District of Phila. Robert Carter African American Resource Center, UPenn Andrea Lamour- Harrington Community Rep. Waheedah Shabazz-El Philadelphia FIGHT Tyrone Smith Community Rep. Penn CFAR Community Advisory Board Structure & Leadership- Membership 2013

56 Penn CFAR Community Advisory Board Mission & Structure Mission: To foster & maintain partnerships & open communication between Penn CFAR researchers & community members. The CAB also works to enhance HIV education, prevention, treatment & research activities reflecting both investigators' interests & community needs. CFAR CAB Chair CFAR CAB Vice Chair CFAR CAB Executive Committee Red Ribbon Awards Committee Finance Committee Education & Training Committee Medical Monitoring Project Committee Research Protocol Committee (new) AD HOC Bylaws Committee Policy Committee (new)

57 Penn CFAR Community Advisory Board Accomplishments (selected) Annual Red Ribbon Awards (2004 – 2012) Just the Facts: Briefing for Elected Officials (2004) Zip Codes / Focus Group Project (2004) Meeting of the Minds Symposium (2006) YOACAP's RARE Neighborhood Project (2006) CDC Medical Monitoring Project (2007) CFAR CAB Retreat (2008) CAB Faith-Based Summit (2008) First Cross-CFAR CAB National Meeting (2011) FC2: Bottoms Up (2012) BTAN Philadelphia Post AIDS 2012 HUB Community Update (2012) Individual Achievements

58 Penn CFAR Community Advisory Board Looking Ahead & Challenges Increase engagement activities Mentoring of other CFAR CABs (via Cross CFAR CAB network), junior investigators, high school students Educational opportunities Faith based communities Increase engagement & provide more feedback to investigators from planning to dissemination of research findings CFAR developmental awards NIH funded projects Challenges: Concerns about funding opportunities for continued growth Diversity

59 UAB 1917 Clinic Research CAB

60 Mission The 1917 Clinic Research Community Advisory Board (CAB) exists to provide input to the HIV/AIDS research clinic staff, & to help share information about HIV/AIDS research activities at the University of Alabama at Birmingham to the community at large The goal of this dialogue between the community &d the clinic’s research team is to facilitate AIDS research that meets the needs of medical science & the needs of the community served by our clinic, especially clinical trials participants. Dr. Michael Saag, CFAR Director

61 UAB 1917 Clinic Research CAB Mission The CAB provides the community an opportunity to: understand the clinical research process; provide input regarding the development, implementation & outcomes of clinical studies; offer advice related to the accrual & retention of trial participants; give clinical trial participants necessary advocacy & a way to address grievance issues; build a meaningful partnership that will lead to improved knowledge of HIV/AIDS disease; & promote ethical research purposes & practices.

62 Diane Vincent, Rickey Dorsey, Rick Walton – all PAB & CAB Members UAB 1917 Clinic Research CAB Meetings Steve Dellinger (PAB & CAB Member) & Rick Walton (PAB Member & CAB Chair) The 1917 Clinic CAB meets bi-monthly on the first Mon. of each month. Lunch & networking begin at 11:30am. The meeting takes place from 12-1. 2013 Meeting Schedule: Feb. 4, April 1, June 3, Aug. 1, Oct. 7, & Dec.2. At least one meeting will include the Vaccine, MTN, & Pediatric UAB CABs.

63 UAB 1917 Clinic Patient Advisory Board In addition to the CAB, 1917/CFAR has a PAB that began in 1995. The mission of the PAB is: Empower, educate & advocate on behalf of those impacted by HIV, serve as a credible resource for & a liaison between patients & clinical care, support research & programmatic efforts & implement sustainability initiatives. The PAB and Research Clinic CAB have distinct roles, but share resources & knowledge. Rickey Dorsey, PAB Chair & Karen Savage, Research Nurse Manager

64 UAB 1917 Clinic For more info, contact: Karen Savage, 1917 Research Nurse Manager, Rick Walton, 1917 Research CAB Co-Chair, Kelly Ross-Davis, 1917 Clinic, CAB Liaison, Diane Vincent, 1917 Clinic CAB Member,

65 University of Washington CFAR Community Action Board

66 University of Washington CFAR CAB Structure Mission Encourage communication & build trustworthy collaborations between UW Center for AIDS & STD (CFAS) researchers & community members & community-based organizations to enhance local, national, & international prevention, treatment, & education activities. Steering Committee (two co-chairs): Marcos Martinez – Entre Hermanos & Erick Seelbach –HHS Region X Membership Researchers, CBOs, Government (HHS Region X, Public Health) & CFAR staff Compensation for community members Flexible Working Groups Disparities Project & Stigma Project Others as needed

67 University of Washington CFAR CAB Activities Research Review HIV & TB Transmission & Future Trends in the African Population in the U.S iTest: Home HIV testing Study (Seattle) Sexual risk & mobility patterns Using HIV surveillance data to relink of out-of-care HIV+ substance users Digital Storytelling for HIV Prevention in African American Communities Sexual Concurrency Project (Seattle and Washington DC) CFAR Principals Course (in progress) Encouraging future researchers to utilize the CAB for feedback on their proposals CBO Needs Assessment Survey (in progress) Survey for CBOs to provide feedback to researchers on their needs in order to provide adequate input on research

68 University of Washington CFAR CAB Events HIV & MSM Symposium Regional (Portland, OR to Bellingham, WA) Generated ideas for HIV related projects Meet the Researcher (s) Opportunities for the community to interact with researchers Where Do We Go from Here? Patrick Sullivan-CFAR Emory, Gregorio Millett- CDC/HHS and George Ayala, MSM GF Wafaa El-Sadr, Columbia Professor meet and greet Support for community projects Black Community & Medical Research event (HIV Vaccine Trials Unit) Women & HIV Regional Conference (African American Reach and Teach Health Ministries)


70 University of North Carolina

71 Baylor College of Medicine Leslie Raneri, CAB Chair

72 Includes IMPAACT, PHACS, Adolescent Trials Network, RW Part D Monthly meetings of “small CAB”: academic/ medical staff, community members (parents/ guardians, study participants) Monthly meetings of adolescent CAB Quarterly meetings of “large CAB”: academic/ medical staff, community members (parents/ guardians, study participants), community agencies and organizations, health department, school department, child welfare organizations, AIDS service organizations Meetings held at the medical center Baylor CAB

73 Discussions of research protocols, study findings, community activities Represent CAB at regional and national IMPAACT and PHACS meetings Community education at World AIDS Day and community health events Planned involvement with RW Part D CAB and Houston HIV Cross-Network CAB Recruitment of new CAB members

74 Onward!

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