Presentation on theme: "City of Brotherly Love and Sisterly Affection"— Presentation transcript:
1City of Brotherly Love and Sisterly Affection The Penn CFAR CAB Welcomes You to theCity of Brotherly Love and Sisterly Affection
2Philadelphia, Pennsylvania The Penn CFAR CAB Welcomes YouTo The 2ndCross CFAR CAB MeetingJune , 2013Philadelphia, Pennsylvania
3Case/UHC/MetroHealth ACTU CAB Case Center for AIDS ResearchUniversity Health CenterMetroHealthAIDS Clinical Trials UnitCommunity Advisory Board
4CWR U CFAR Mission Statement To integrate community involvement in HIV/AIDS-related research & clinical trials in order to promote developments in the medical treatment of people living with HIV/AIDS & in preventing further HIV transmission.
5Describe the makeup of your CAB: CWRUCommunity MembersClinical research participants (past & present), cross representation of targeted communityCommunity Medical PersonnelClinical Physicians, Research Principal & Junior Investigator, NursesCommunity/Agency ConnectionsACTU, CWRU, Recovery Resources, Domestic Violence Shelter, ATFGC, AFC, Ryan White Planning Council, Regional Advisory Group
10Chicago D-CFAR CAB Membership NameRoleAffiliationJuana BallesterosMemberIndependent Consumer AdvocateLesley CraigChairHHS, Region VMoctezuma GarciaSanford GaylordDale GreenCo-ChairAIDS Legal CouncilKeith GreenStroger Hospital of Cook CountyLisa LeeChristian Community Health CenterPeter McLoydRuth Rothstein CORE CenterYaa SimpsonChicago Department of Public HealthEnid VasquezT-PANAlan LandayEx-officio MemberRush University Medical CenterLinda BaumAudrey FrenchCook County Health & Hospitals SystemKevin Tomlinson
11Chicago D-CFAR CABCAB Mission: To foster & maintain partnerships & open communication between community members and CFAR researchers to enhance HIV education, prevention, treatment & research activities reflecting the interest of the community & the investigators.Consumers: Chicago has the 4th highest HIV prevalence of large cities in the US with ~21,000 known infections and another 5,000 presumed infected who are undiagnosed. Those affected are predominantly impoverished minority men, women & adolescents residing in Chicago's inner city neighborhoods where HIV prevalence reaches 400-1,200/100, % of those infected in Chicago are men, 52% are non Hispanic Black, & 57% are MSM.
12The Chicagoland National HIV Testing Collaborative (CNHTC) Chicago D-CFAR National Testing DayThe Chicagoland National HIV Testing Collaborative (CNHTC)The CNHTC)is a social marketing & HIV testing campaign established by staff of the Ruth M. Rothstein CORE Center &> 30 community-based agencies & organizations throughout Cook County in recognition of National HIV Testing Day.Our goal is to test 5,000 citizens, educate on the importance of routine screenings & to link those who are directly impacted into HIV medical care.To achieve this goal, the collaborative annually hosts 2 large community HIV testing events & coordinates with over 30 CBOs to host small neighborhood HIV testing events.In 2012, the 23 agencies administered 5,693 tests identifying 28 newly-diagnosed HIV-positive individuals.
13George Washington U Mission Statement DC D-CFAR CABGeorge Washington UMission StatementMission StatementThe DC D-CFAR CAB seeks to provide community perspectives & guidance to the DC D-CFAR & to inform the HIV/AIDS research agenda in Washington, DC.
14Mission Statement (continued) DC D-CFAR CABGeorge Washington UMission Statement (continued)More specifically, the CAB seeks to:Engage the community in collaboration on new HIV/AIDS research efforts;Ensure community representation on the selection of DC D-CFAR research awards;Ensure that the community is educated about HIV research activities in DC;Carry out roles set out by NIH & priorities as established by the CAB; &Foster partnerships for community research studies.
16Activities since Cross CAB Meeting DC D-CFAR CABGeorge Washington UActivities since Cross CAB MeetingCommunity representationDevelopment of By-lawsReview of award applicationsParticipation in Scientific Working GroupsFacilitation of Scientific Interest Groups (e.g., women)Community EducationIAS poster and “Turning the Tide” presentationCollaboration with DC Community Coalition (DCCC) and DC GovernmentParticipation at scientific conferences – IAS, ECHPP
17Community Education Activities DC D-CFAR CABGeorge Washington UCommunity Education ActivitiesDevelopment of Town Hall community seminar series with the following objectives:Increase community knowledge & understanding HIV researchBuild community capacity to participate in & advocate for HIV research advocacyDevelop community informed HIV research priorities & agenda.Planned seminars for upcoming year:PreventionPost-CROIPost-IAS
18Inter-CAB & Community Relations DC D-CFAR CABGeorge Washington UInter-CAB & Community RelationsCollaboration with DC Community CoalitionPost-conference community updates as a co-sponsorAdvising/orienting other prospective CABs
19George Washington U Future CAB Activities DC D-CFAR CAB CAB member expansionPlanning for reapplicationParticipation in upcoming meetings – SWG/SIG,SBSRN, ECHPPContinued & expanded collaboration – DCCC, otherCABs and community groupsEducation on trial participant protections & rightsMapping of & connectivity with other CABsSupport development of Women & HIV SIG
20Center for AIDS Research Harvard UniversityCenter for AIDS ResearchProvision of community education & engagement programming to bring clinical HIV research awareness via education & outreach activities.Timely dissemination of information to ensure that new & recent research findings related to HIV prevention, care, and treatment are shared with patients, clinicians, caregivers, HIV/AIDS service providers & interested persons in the community.Mission: Community input is essential to ensure that HU CFAR – CAB goals are being achieved with respect to community outreach & education. The HU CFAR supports a CAB that will provide the CFAR leadership with input on the most effective use of CFAR resources to address these areas:
21Harvard University CFAR Description of membership*Former Public Health Official/Community AdvocatePLWHAFaith-Based LeadershipHealth Care ProvidersKey Community StakeholdersResearch/ Hospital Representatives* Active recruitment to expand & enhance the diversify of the CAB to a member body (e.g. community youth advocate).
22Center for AIDS Research Pending Membership Applications Harvard UniversityCenter for AIDS ResearchPending Membership ApplicationsCommunity Advocate:A community advocate living with HIV who runs a self-empowerment program for women, & volunteers for a local HIV/AIDS service agency.Program Director:The New England AIDS Education and Training Center (NEAETC), established in 1988, is one of eleven Regional Education Centers & 5 National Centers, funded by Health Resources Service Administration (HRSA) with Ryan White Part F dollars & sponsored regionally by Commonwealth Medicine at the University of Massachusetts Medical School.The New England HIV Education Consortium (NEHEC) is a HRSA Minority AIDS Initiative (MAI) Special Capacity Building funded program serving all 6 states in New England. The primary goal of NEHEC is to address the HIV-related training, educational, & support needs of the full, spectrum of providers as they provide state-of-the-art, quality and compassionate care to individuals living with HIV/AIDS. Innovative training formats address the needs of minority providers, providers serving racial/ethnic/linguistic minorities & communities of color, & those working in settings funded by the Ryan White CARE Act.
23Harvard University CFAR Active Recruitment EffortsManager of Community Relations/Health Promotion, AIDS Action Committee, Inc. AAC’s Mission: To stop the epidemic and related health inequities by eliminating new infections, maximizing healthier outcomes for those infected and at risk, and tackling the root causes of HIV/AIDS.Youth Linkage to Care Coordinator, Strategic Multisite Initiative for the Identification, Linkage and Engagement in Care of Youth with Undiagnosed HIV Infection (SMILE in Caring for Youth)Fenway Health/Fenway Institute The SMILE Linkage to Care (LTC) Program is designed to provide linkage to medical care and psychosocial support for youth who are newly diagnosed, having difficulties staying engaged in care, or new to the Boston area. This project is for Boston youth ages The SMILE program establishes referral relationships with collaborating agencies to identify HIV infected youth and connect these individuals with a Youth Linkage to Care (YLTC) Coordinator.Mission: The Fenway Institute is an interdisciplinary center for research, training, education, and policy development, focusing on national and international health issues. Our mission is to ensure access to quality, culturally competent medical and mental health care for traditionally underserved communities, including lesbian, gay, bisexual and transgender (LGBT) people and those affected by HIV/AIDS.
24Harvard University CFAR Active Recruitment Efforts #2 Executive Director, Hispanic Black Gay Coalition (HBGC)HBGC’s Mission: Hispanic Black Gay Coalition (HBGC) is one of few non-profit organizations in Boston dedicated to the unique and complex needs of the Black, Hispanic & LGBTQ community. Founded in 2009, we work to inspire & empower Hispanic and Black LGBTQ identified individuals to improve their livelihood through activism, education, community outreach, & counseling.Medical Case Manager, Whittier St. Health CenterWSHC’s Mission: Our mission is to provide high quality, reliable & accessible primary health care & support services for diverse population to provide wellness & eliminate health and social disparities.In addition: Membership recruitment efforts include seeking local governmental representatives.
25Harvard University CFAR CAB InfrastructureCAB meets bimonthly, or more when additional meetings are required.Meetings are held in the Boston Metropolitan area.Does your CAB have a committee structure?The HU CFAR – CAB is a working board that is broad-based & created from a commitment to involving any & all segments of the community that have an interest in HIV-related research members (core group of 6-10 people)Two chairs: Chair and Vice- chairwork with HU CFAR staff to set the agendaseek advice & recommendations from other HU CFAR – CABmembersExecutive Committeecore group of 5 – 6 membersCAB makes decisions by using Robert’s Rules of OrderCAB members will receive a $30.00 stipend to attend meetingsCAB is funded by HU CFAR Executive Committee—Administrative Core
26Harvard University CFAR CAB Infrastructure #2CAB sponsored community education events:Forgotten Epidemic: Our Collective Responsibility, Response and Solutions to the AIDS Crisis in Black America ProjectForgotten Epidemic Campaign Study GroupNational SurveyNational WebinarsNational HIV/AIDS Awareness DaysOther Local and national educational HIV programmingIn the process of developing a strategic dissemination plan: Community education, outreach and engagementHU CFAR CAB has been in existence since 2009, whereas CAB members actively participated locally and nationally on HU CFAR – Community Education & Engagement Program’s HIV/AIDS programming (e.g. The Forgotten Epidemic Project, National HIV/AIDS Awareness days, etc). However, our CAB’s Bylaws were only recently ratified. Now that there is a procedural infrastructure in place, HU CFAR CAB will began to grow its membership from 7 current members to 12 (or possibly 15), as well as advance & execute its mission.
27Community Participatory Advisory Board Baltimore HIV Collaboratory Susan Sherman & David Holtgrave, Co – DirectorsJordan White,Program ManagerRichard E. Chaisson, MD, PI &Chris Beyrer, MD, MPH, Co-PI
28JHU CFAR Specific AimsTo develop a new generation of HIV/AIDS researchers and recruit under-represented minorities into the HIV/AIDS fieldTo recruit new investigators from relevant disciplines into HIV/AIDS research to address the growing need for knowledge in emerging areas that affect the HIV epidemicTo enhance the productivity by promoting transdisciplinary innovation, integration and collaborationTo mobilize the capabilities and capacity of Johns Hopkins University to combat the HIV epidemic in Baltimore through training, outreach and community-based intervention studies.
29Baltimore HIV Collaboratory CFAR AIM #4To mobilize capacity from across Johns Hopkins University to combat the HIV epidemic in Baltimore through engagement, training, outreach and community-based intervention studies.
30Objectives Baltimore HIV Collabatory 1. To promote community linkages between JHU researchers with HIV focused NGOs, the BCHD, & people affected with HIV/AIDS through the creation of forums to exchange data, information, & resources.2. To identify, recruit, & train under-represented minority undergraduates, graduate students, fellows, & junior faculty in community-based HIV/AIDS research in Baltimore.3. To facilitate the development of research skills among Baltimore-based, HIV focused nonprofit organizations as well as develop and expand research collaborations between JHU, nonprofits, and BCHD.
31Activities Baltimore HIV Collabatory Bridge the Gap Conference – Annual Conference on HIV/AIDS Issues in Baltimore CityPotential Topic – Affordable Care Act Implementation for at People risk or living with HIVTrainings and Workshops for NGOs and Community MembersBaltimore HIV/AIDS Scholars15 underrepresented undergraduate students mentored in a variety of disciplines (epidemiology, chemistry, nursing, bioethics, neurology)Gilead ProjectCommunity based HCV testing and education program for students and peers
32Rochester HIV/AIDS CAB Missionto provide a formal channel for ongoing education, communication, advocacy, and problem solving among representatives of the community and those involved in adult and pediatric HIV/AIDS treatment and preventive vaccine researchOur purpose is to facilitate appropriate, timely, and ethical research efforts which may ultimately bring about an end to HIV Disease and AIDS.
33Community Advisory Board Rochester HIV/AIDSCommunity Advisory BoardThe Rochester HIV/AIDS CAB has been in continuous operation since 1991, in support of UR’s ACTG (Adult & Pediatric) and AVEG/HVTN clinical research programs.In April of 2012 the CAB voted to include UR CFAR issues into the agenda of its monthly meetings.
34Describe the makeup of your CAB: RochesterCAB membershipacademic faculty, representatives of agencies, organizations & community members & represents the community’s voice in the ACTG, CFAR, HVTN, IMPAACT, & Individual Investigator Research.CAB leadershipExecutive Committee(CAB , Vice-chair & Secretary),Active Community Education CommitteeProtocol Review Committee
35Rochester Decisions are made by polling the voting CAB members. Meetings are run by Robert’s Rules of Order.New items for discussion can be brought forth by researchers, research staff & CAB members
36RochesterCAB membership: academic faculty, representatives of agencies, organizations and community members & represents the community’s voice in the ACTG, CFAR, HVTN, IMPAACT, & Individual Investigator Research.CAB leadership consists of an Executive Committee (CAB Chair, Vice-chair and Secretary), an active Community Education Committee & Protocol Review Committee.Decisions are made by polling the voting CAB members. Meetings are run by Robert’s Rules of Order & new items for discussion can be brought forth by researchers, research staff & CAB members.
37Describe the makeup of your CAB: RochesterThe CAB meets monthly, except during Summer recess (July & August). Once a year, the usual CAB meeting is replaced by a retreat (February), a half-day session where topics of the CAB’s choosing are discussed.
38Describe the makeup of your CAB: RochesterThe Rochester CAB…Reviews protocols from ACTG & occasionally discusses HVTN protocols.Co-sponsors 1 large community education event each year – usually associated with World AIDS Day or other days recognizing HIV/AIDS.Advocates for HIV/AIDS interests on a local basis which may include working with local legislatures, but more often directed at communities that bear the greater brunt of HIV infections.Participates in a joint network CAB through monthly meetings to discuss issues & items of common concern.
39University of California, Los Angeles UCLA CFAR Community Advisory BoardSung-Jae Lee, Ph.D.University of California, Los AngelesCenter for HIV Identification Prevention and Treatment Services (CHIPTS)
40Members UCLA CFAR CAB Established in 1997 as part of CHIPTS at UCLA Representatives from theprivate sectorPLWHALocal & State Health DepartmentsCBOSAIDS Service OrganizationsEducational InstitutionsEstablished in 1997 as part ofCHIPTS at UCLA
41Responsibilities UCLA CFAR CAB Activities of CFAR/CHIPTS Cores- to ensure that theyremain attentive to community concerns, needs, &prioritiesRelevance to community of the social/behavioral prevention & intervention researchEfforts to identify opportunities for researchers & staff from racial/ethnic minority groupsImpact on the “practice” of activities of CBOs andits overall relationship with the local community
42UCLA CFAR CAB Membership Consists of 10-15 members At least 25% of the members are peopleliving with HIV/AIDS.Knowledge and insight into communitiesaffected by HIV/AIDSThe term of appointment is 2 years.Members may serve no more than twoconsecutive terms.
43UCLA CFAR CAB Meetings CAB meets quarterly. A yearly meeting schedule distributed at the start of the yearAgenda prepared by the Executive Director &transmitted to members in advance of each meeting.CAB members can propose agenda items a week inadvance of the meetingMeeting summary is generated after each meetingA yearly orientation for new CAB members
44UCLA CFAR CAB Compensation CAB members are expected to participatein all 4 meetings per yearCompensation based on attendance ($400annually)CAB members can submit mileage &parking reimbursements formsCAB members provided with a 1099statement each year for tax purposes.
45Presenter: Byron Mason UCSF Center for AIDS Prevention Studies (CAPS) Community Advisory BoardPresenter:Byron Mason
46UCSF CAPS Specific Aims Science to Community: Facilitate access to & use of HIV prevention science by stakeholders(i.e., community-based organizations, funders & policy makers);Community to Science: Support CAPS scientists’ use of community expertise;Foster Collaborative Research: Support community-involved research & ongoing collaborative research partnerships between CAPS scientists & communities.
47UCSF CAPS MissionProvide input & feedback to CAPS projects, to bring community concerns to CAPS, & to assist CAPS in disseminating research.Provides input to all CAPS investigators, with particular input to the Executive Leadership.
48UCSF CAPS Community Advisory Board Supported through CAPS’ P30 Grant (NIH)17 members (13 active, 4 emeritus)4 meetings per yearPeer /Grant ReviewsMembers are paid for each meetingFormal by-laws govern CAB structure &activities
49UCSF CAPS Activities & Products Represent CAPS at scientific &community meetings (InternationalAIDS Conference)CAPS Innovative Dissemination AwardRecommendations for ResearchDissemination (2006, 2013)
50UCSF CAPS Successes & Challenges Highly “functional” and motivated membersDiversity of disciplines & backgroundsClose ties to a range of communitiesProvider (CBO), consumer, government (local,state & federal) and corporate inroadsEngagement challengesGeneral relationship between community &scienceMotivating academics to engage with community
51Miami CFAR CAB Background Mission: To ensure that all research supported by the Miami CFAR is developed, conducted & reported in a manner that recognizes the needs of those affected by HIV living in the South Florida community.In 2012, the Miami CFARtransitioned from aD-CFAR to a full CFAR.
52Miami CFAR CAB Structure MembershipCommunity Advisory BoardHIV Providers & clinic staffHealth Dept. StaffCBOsPublic School SystemUM researchers & facultyJustice SystemChair: Guillermo Prado, PhD(Director of Core E)Co-Chairs:Admin CoreEvelyn Ullah & Kira Villamizar(Broward Health Dept. & Miami Health Dept.)30 membersBCDE
53Miami CFAR CAB Structures & Goals To convene a group of local researchers & community agency representatives to align CFAR activities & HIV/AIDS research with community needs.To keep communities informed on Miami CFAR research & special initiatives.To foster idea sharing & collaboration among researchers, community agency representatives, &community members around efforts to reduce the local burden of HIV/AIDS.Provide opportunities for UM researchers to present their research to community agency representatives for feedback and for community agency representatives to provide UM researchers input on community needsProvide updates on Miami CFAR research to representatives from community agenciesEnsure that all research supported by the Miami CFAR is developed, conducted and reported in a manner that recognizes the needs of those affected by HIV living in the South Florida communityCo-Chairs: Kira Villamizar and Evelyn UllahAdmin Core
54Miami CFAR CAB Activities Community Clinical CollaborationsReduce care redundancy & enhance the medical home by providing HIV expertise into CBOs with needBroaden our reach for HIV community participatory research by leveraging these resourcesExamples of partnerships: OB/GYN, TeleDerm, Psychiatry at Care Resource*, Borinquin Health Care Center* (*federally funded health clinic)Provide opportunities for UM researchers to present their research to community agency representatives for feedback and for community agency representatives to provide UM researchers input on community needsProvide updates on Miami CFAR research to representatives from community agenciesEnsure that all research supported by the Miami CFAR is developed, conducted and reported in a manner that recognizes the needs of those affected by HIV living in the South Florida communityCo-Chairs: Kira Villamizar and Evelyn UllahAdmin CoreProject SHARE (Sharing HIV/AIDS Research Efforts)Collaboration between Miami CFAR, Miami-Dade County Health Department & the Broward County Health Department.“The AMIGAS Study: A CDC‐Defined Evidence Based HIV Intervention for Latina Women” by Drs Wingwood & DiClemente“Evaluating Implementation of the National HIV/AIDS Strategy: Using Community Viral Load 7& Other Surveillance Indicators” by Dr. Moupali Das
55Penn CFAR Community Advisory Board Structure & Leadership- Membership 2013Andre H Ford, PhD(Chair)Emanuel HamiltonCommunity Rep.Rev. Wesley Proctor, PhDVictory Christian ChurchGladys ThomasPhilly Faith in ActionAmeena Al AminCardiac Center, UPennRoy HayesPhiladelphia FIGHTCarol RogersHealthy PhiladelphiaCynthia GreenWesley AndersonJeffrey JennePhiladelphia Dept. Public Health (AACO)Bob SchoenbergLGBT Center, UPennJudith PetersSchool District of Phila.Robert CarterAfrican American Resource Center, UPennAndrea Lamour-HarringtonWaheedah Shabazz-El Philadelphia FIGHTTyrone Smith
56Penn CFAR Community Advisory Board Mission & StructureCFAR CAB ChairCFAR CAB Vice ChairCFAR CAB Executive CommitteeRed Ribbon AwardsCommitteeFinance CommitteeEducation & Training CommitteeMedical Monitoring Project CommitteeResearch Protocol Committee (new)AD HOCBylaws CommitteePolicy Committee (new)Mission: To foster & maintain partnerships & open communication between Penn CFAR researchers & community members. The CAB also works to enhance HIV education, prevention, treatment & research activities reflecting both investigators' interests & community needs.
57Penn CFAR Community Advisory Board Accomplishments (selected) Annual Red Ribbon Awards (2004 – 2012)Just the Facts: Briefing for Elected Officials (2004)Zip Codes / Focus Group Project (2004)Meeting of the Minds Symposium (2006)YOACAP's RARE Neighborhood Project (2006)CDC Medical Monitoring Project (2007)CFAR CAB Retreat (2008)CAB Faith-Based Summit (2008)First Cross-CFAR CAB National Meeting (2011)FC2: Bottoms Up (2012)BTAN Philadelphia Post AIDS 2012 HUB Community Update (2012)Individual Achievements
58Penn CFAR Community Advisory Board Looking Ahead & Challenges Increase engagement activitiesMentoring of other CFAR CABs (via Cross CFAR CAB network), junior investigators, high school studentsEducational opportunitiesFaith based communitiesIncrease engagement & provide more feedback to investigators from planning to dissemination of research findingsCFAR developmental awardsNIH funded projectsChallenges:Concerns about funding opportunities for continuedgrowthDiversity
60to the community at large Dr. Michael Saag, CFAR Director UAB 1917 Clinic Research CABMissionThe 1917 Clinic Research Community Advisory Board (CAB) exists to provide input to the HIV/AIDS research clinic staff, & to help share information about HIV/AIDS research activities at the University of Alabama at Birminghamto the community at largeThe goal of this dialogue between the community &d the clinic’s research team is to facilitate AIDS research that meets the needs of medical science & the needs of the community served by our clinic, especially clinical trials participants.Dr. Michael Saag, CFAR Director
61UAB 1917 Clinic Research CAB Mission The CAB provides the community an opportunity to: understand the clinical research process;provide input regarding the development,implementation & outcomes of clinicalstudies;offer advice related to the accrual & retentionof trial participants;give clinical trial participants necessaryadvocacy & a way to address grievance issues;build a meaningful partnership that will lead toimproved knowledge of HIV/AIDS disease; &promote ethical research purposes & practices.
62UAB 1917 Clinic Research CAB Meetings The 1917 Clinic CAB meets bi-monthly on the first Mon. of each month.Lunch & networking begin at 11:30am. The meeting takes place from 12-1.2013 Meeting Schedule: Feb. 4, April 1, June 3, Aug. 1, Oct. 7, & Dec.2.At least one meeting will include the Vaccine, MTN, & Pediatric UAB CABs.Steve Dellinger (PAB & CAB Member) & Rick Walton (PAB Member & CAB Chair)Diane Vincent, Rickey Dorsey, Rick Walton – all PAB & CAB Members
63Patient Advisory Board UAB 1917 ClinicPatient Advisory BoardIn addition to the CAB, 1917/CFAR has a PAB thatbegan in 1995.The mission of the PAB is: Empower, educate &advocate on behalf of those impacted by HIV,serve as a credible resource for & a liaisonbetween patients & clinical care, supportresearch & programmatic efforts & implementsustainability initiatives.The PAB and Research Clinic CAB have distinctroles, but share resources & knowledge.Rickey Dorsey, PAB Chair & Karen Savage, Research Nurse Manager
64UAB 1917 Clinic For more info, contact: Karen Savage, 1917 Research Nurse Manager,Rick Walton, 1917 Research CAB Co-Chair,Kelly Ross-Davis, 1917 Clinic, CAB Liaison,Diane Vincent, 1917 Clinic CAB Member,
65University of Washington CFAR Community Action Board
66University of Washington CFAR CAB StructureMissionEncourage communication & build trustworthy collaborations between UW Center for AIDS & STD (CFAS) researchers & community members & community-based organizations to enhance local, national, & international prevention, treatment, & education activities.Steering Committee (two co-chairs):Marcos Martinez – Entre Hermanos &Erick Seelbach –HHS Region XMembershipResearchers, CBOs, Government (HHS Region X, Public Health) & CFAR staffCompensation for community membersFlexible Working GroupsDisparities Project & Stigma ProjectOthers as needed
67University of Washington CFAR CAB ActivitiesResearch ReviewHIV & TB Transmission & Future Trends in the African Population in the U.SiTest: Home HIV testing Study (Seattle)Sexual risk & mobility patternsUsing HIV surveillance data to relink of out-of-care HIV+ substance usersDigital Storytelling for HIV Prevention in African American CommunitiesSexual Concurrency Project (Seattle and Washington DC)CFAR Principals Course (in progress)Encouraging future researchers to utilize the CAB for feedback on their proposalsCBO Needs Assessment Survey (in progress)Survey for CBOs to provide feedback to researchers on their needs in order to provide adequate input on research
68University of Washington CFAR CAB EventsHIV & MSM SymposiumRegional (Portland, OR to Bellingham, WA)Generated ideas for HIV related projectsMeet the Researcher (s)Opportunities for the community to interact with researchersWhere Do We Go from Here? Patrick Sullivan-CFAR Emory, Gregorio Millett-CDC/HHS and George Ayala, MSM GFWafaa El-Sadr, Columbia Professor meet and greetSupport for community projectsBlack Community & Medical Research event (HIV Vaccine Trials Unit)Women & HIV Regional Conference (African American Reach and Teach Health Ministries)
71Baylor College of Medicine Leslie Raneri, CAB Chair
72Baylor CABIncludes IMPAACT, PHACS, Adolescent Trials Network, RW Part DMonthly meetings of “small CAB”: academic/ medical staff, community members (parents/ guardians, study participants)Monthly meetings of adolescent CABQuarterly meetings of “large CAB”: academic/ medical staff, community members (parents/ guardians, study participants), community agencies and organizations, health department, school department, child welfare organizations, AIDS service organizationsMeetings held at the medical center
73Baylor CABDiscussions of research protocols, study findings, community activitiesRepresent CAB at regional and national IMPAACT and PHACS meetingsCommunity education at World AIDS Day and community health eventsPlanned involvement with RW Part D CAB and Houston HIV Cross-Network CABRecruitment of new CAB members