Presentation on theme: "Dr Lynn Alison Lambert B.Sc. PhD, MB ChB, FRCP (Lond) DTM&H Internal Medicine, University of Calgary."— Presentation transcript:
Dr Lynn Alison Lambert B.Sc. PhD, MB ChB, FRCP (Lond) DTM&H Internal Medicine, University of Calgary
I have a vested interest in good end of life care – one day I will die too. No sponsorship or financial links with any drug company Most of the information in this workshop is from: The Oxford Textbook of Palliative Medicine, 4 th Edition 2010 ▪ Hanks, G., Cherry, N., Christakis, N.,,Fallon, M., Kaasa, S., Portenoy, R. (Eds) Palliative Medicine, A Case Based Manual, 3 rd edition 2012 ▪ Doreen Oneschuk, Neil Hagen and Neil MacDonald (Eds) Discussions with my colleagues in Palliative care in Foothills Medical Centre, Calgary - with special thanks to Dr Jessica Simon. Personal experience with many patients at the end of their lives
“Palliative Medicine is no more, no less than the quality of care we should be offering all our patients every day - care tailored to their needs, skilled, compassionate” quote from the late Sir Raymond (Bill) Hoffenberg, President of the Royal College of Physicians of London Former Professor of Internal Medicine, University of Birmingham Medical School, Birmingham, England From Palliative Medicine, A Case Based Manual, by Doreen Oneschuk (U of Alberta) Neil Hagen (U of C) and Neil MacDonald (McGill) So - Palliative Medicine is for everyone.
Is holistic care, taking into account a patients cultural, spiritual and individual needs Respects a patients wishes Even if they are not what we would choose Informs a patient of what can be done Treatment options – pros and cons Communicates prognosis accurately Communicates with the family/friends (provided the patient gives permission)
Dame Ciceley Saunders Nurse, social worker, doctor Founded St Christopher’s Hospice in London, 1967 Wrote reports of a series of cases of terminally ill patients , 1100 by 1967 Realised that in terminal care there may be ▪ Physical needs, emotional distress, social issues (housing, finance, family) ▪ Championed pain management – regular not prn ▪ Battled current ideas/fears re opiate addiction
st International Symposium on Pain control st International Congress on the Care of the Terminally Ill – Montreal 1987 Palliative Medicine recognised as a specialty in UK 2006 ACGME and ABMS in US approved a new specialty in hospice and palliative medicine.
Top 5 predicted causes of death in 2020 IHD, Cerebrovascular disease COPD Respiratory infection Lung Cancer So palliative medicine in non- malignant disease is important
Whole patient management/ whole person medicine Care of Elderly with multiple problems Not enough hospice places Palliative medicine in non-malignant disease Especially COPD and heart failure Drug interactions Care of younger patients with complex diseases
Good Palliative care practice is the ability to recognise when the aim of a patient’s treatment is mainly that of symptom control rather than life prolongation. This can be months or even years before the patients terminal phase. Allows a patient to live with their disease and not just be dying from it.
Generally discussion is left too late Often goals of care are discussed when the patient arrives in the Emergency Department with an acute complication of a terminal illness. This is stressful for doctors, patients and relatives To avoid this we need to engage with our patients in advance care planning
How to recognise that the time has come for some end-of-life / goals of care discussion The Surprise Question: “Would I be surprised if this patient were to die in the next 6 months?” If the answer is “No” then you should look for cues from the patient that they wish to discuss this. Try some exploratory questions.
What are the barriers?
What can we do as clinicians?
What are the barriers? What can we do as clinicians? How can we do better?
Communication resource with clinical scenarios Allow us to observe examples of good communication skills Access via You Tube
Should be what we do every day as part of usual care in Internal Medicine Is it?
Initiate the discussion of advance care planning “are there any limitations on your treatment I should know about” “do you have any specific wishes about your treatment?” “Do you have a personal directive?” Alberta “Conversations Matter” initiative Booklet, videos Family Meeting Useful to get everyone “on the same page”
RResuscitative Care MMedical Care (excluding resuscitative care) CComfort Care More flexible than DNR versus no DNR
Ask yourself “what am I trying to achieve here?” Don’t be caught up in a curative mode and fail to pick up on the patient’s anxieties Be realistic (but not dogmatic) about the prognosis With yourself With the patient Find Out What the patient wants Accept that: referral to a palliative care specialist does not mean that you have given up on the patient
Sooner rather than later For symptom control when you are unsure what to do To aid access to community services and hospice When you recognise that you don’t have time to do it properly yourself As a learning resource (a phone call may be enough)
The last days How to die with dignity in hospital Is this difficult? How can we make it better? Liverpool Care pathway (or similar)
Useful in hospital or at home Documents discussions with relatives Notes an advance directive (if done) Assesses Pain, nausea, vomiting, agitation, breathlessness, skin condition, constipation Anticipates need for drugs for: Pain, agitation, respiratory secretions, nausea vomiting, dyspnoea,
Has a section for discontinuation of routine: blood tests, glucose monitoring, vital signs, oxygen, iv antibiotics Documents patients wishes re care after death ▪ E.g. who washes body, need for burial within 24hours Discussions with relatives and information given ▪ Information leaflets, death certificate, post mortem request
Elderly person Cancer patient Heart Failure Renal Failure Liver disease Complex case
Holistic care Looks at social, Personal and spiritual issues Removal of unnecessary treatments Discussion of Goals of Care for the future Sometimes operative treatment is the best palliation – e.g. repair of fractured NOF
Mr Murray is a 74 year old retired oil worker, ex smoker, is on his fourth admission to hospital this year with COPD Last time he went to ICU and was ventilated for 2 weeks He hasn’t left the house since He has home oxygen and a nebuliser He is readmitted with breathlessness, wheeze and cachexia
What is his prognosis? What will you do for him? What are you going to discuss? How will you do it?
Gold classification of COPD O normal spirometry, I Mild COPD IIModerate IIISevere IVVery Severe ADO Index BODE index
BMI, Airflow Obstruction, Dyspnoea, Exercise Capacity BMI 19 FEV138% predicted MMRC dyspnea scale Too breathless to leave house 6 min walk< 149 m Score 9 25% 4 year survival
GOLD III –Severe ADO (age, dyspnea, FEV1) 3 year mortality 47.2% BODE 4 year mortality 75%
Discuss goals when patient is well if possible Pre-discharge In clinic And document it Discuss interventions which will be accepted and those which he does not want Involve family Advance directive
“Please see this 76 year old Eastern European in ED lady whose potassium is high (5.9)” Gynae oncology consult 3 months ago- rectal cancer Biopsied - adenocarcinoma Declined operation 1 month ago vaginal bleeding New gynae cancer (ovarian) 2 weeks ago DVT – is on warfarin
Having radiotherapy to perineum to control bleeding Felt “unwell” sent to ED Had a brief cyanotic /apnoeic attack (bagged and recovered) Is tachycardic, breathless and in pain She has vomited and it is blood streaked Hb is72 g/L ECG new –RBBB Abdo looks distended
She is “R1 goals of care” (for everything) How far do you go? Discuss
Potassium Pain Abdomen Vomiting (hematemesis?) Anemia Breathlessness Goals of care Patients values Family
53 year old night club manager Admitted to medical team yesterday Jaundice, ascites and dehydration Seen in liver clinic 6 months ago told to stop drinking Wife left 3 months ago Hit the bottle even harder Sister brought him to ED when he went yellow
His bilirubin is 220, INR 1.8, WCC 12 albumin 28 His urine output is poor (Urea 10, Creat 140) He has tense ascites and is uncomfortable His creatinine is rising and he keeps trying to pull out his iv He is mildly encephalopathic The nurses have tied his hands to the bed His mother is on her way to the hospital His daughter, inVancouver, is 8 months pregnant Hepatology say he is not a candidate for transplantation
What is his prognosis? What do you need to do now? Discuss
Severe alcoholic hepatitis can have a mortality of 50% at 30 days 1 year after an admission for alc. Hep 40% of patients are dead Patients over 50 do worse than younger ones Glasgow Alcoholic hepatitis score
Age over or under 50 White count =15 Urea INR 2 Bilirubin 250umol/L Day 1 Score is 9 predicts Day 28 outcome as 46% survival and Day 84 as 40% survival Day 7 score was 12 37% chance of survival at Day 84
Bilirubin continues to rise (480 umol/L) Creatinine is 420 umol/L INR is 2.1 He is only intermittently lucid and often in pain What can you do for him?
Prognosis MELD Score is 41; 3 month mortality is 90% (MELD – Model for End Stage Liver disease) If already dialysed (& even if creatinine lower) mortality is 100% Glasgow score also poor Now what do you do?
Can be involved even if you are still hoping for recovery Can help with symptoms, support family Can educate us May have more time to talk
Think about goals of care in both acute and chronic diseases Try to get a prognostic indicator Give the patient a chance to have a conversation about the future Involve the palliative care team sooner rather than later