1. Caring for Your Loved One with a Disability 8417 Santa Fe Drive, Suite 107, Overland Park, KS 66212 Phone: 913.648.0233 | Fax: 913.648.0057 info@arcare.org www.arcare.org

2. Care and Support for Life You can help today, but what about tomorrow? Who will guide your family member when you are deceased or simply unable to assist any longer? When a member of the family has a disability, there are so many needs to be addressed.

3. About Arcare Certified 501c(3) organization Established in 1982 by a group of parents who didn’t want to leave these challenges to chance, or to family members who may or may not be available to help Variety of services tailored to each client’s unique needs Mission: To provide exceptional service to its clients and their families — not to generate a profit

4. Future Care Planning Services Arcare works to help families develop a plan of action that responds to real-life situations today and anticipates needs for the future. Annual Review – The plan is reviewed and updated annually. Ongoing Services – These services are put in place to ensure a loved one with disability is cared for after the parents are deceased, disabled or move out of area.

5. Types of Ongoing Services Offered Guardianship/Conservatorship Advocacy Money Management Independent Living Trust Services –Arcare Trust I –Arcare Trust II Representative Payee Program

6. The Arcare Plan The Arcare Plan protects your loved one with a disability. We provide the outline. Together, we design the Plan to your specifications. As a team, we ensure the Plan is tailored to the needs of your son or daughter. With a personalized Plan in place, you can be confident that we’ll assume the responsibility of caring for your loved one when you’re deceased or no longer able.

7. Information Included in the Plan Lifestyle preferences Medical needs Family values Financial plans Personal considerations Living arrangements Any additional information you think is important to help provide ideal care for your loved one

8. When Does Care Begin? We start service right away if there are current needs. Or, use the plan as peace of mind for the future when you can’t be there for your child.

9. In Relation to Other Services Arcare doesn’t replace Medicaid- funded services. We add to them, as you have.

10. Arcare Trust Services A trust is a legal document established by one or more persons who are called settlers or grantors. The trust is used as a vehicle for managing assets, protecting the funds of the beneficiary and ultimately for directing distributions. Arcare offers two types of Special Needs Trusts (SNT): –Trust I, a third-party pooled trust –Trust II, a self-settled pooled trust

11. Arcare Trust I Child who meets Medicaid Eligibility Guidelines. Parent who wants to ensure Child is able to receive inheritance. Additional benefactors (e.g., grandparents, friends of the family, extended family members or any other interested parties)

12. How Arcare Trust I Works Settlor = Arcare Trustee Arcare Sub-Accounts Bob SmithCarol JonesFrank Garcia Mr./Ms. Smith Ms. Jones Mr./Ms. Garcia Arcare Trust I “Master Trust Document” Third Party Assets are pooled for investment and management purposes. Each Beneficiary has a Joinder Agreement.

13. Arcare Trust II Assets belonging to individual with disability Payback/Estate Recovery (Medicaid) Special Needs Trust (same as Trust I) Discretionary (same as Trust I)

14. Arcare Trust II If an individual is a recipient of SSI/Medicaid –and the individual receives lump sum >$2,000 Social Security Check –or the parents die without a will or trust the assets are passed down to the child in equal portions per Kansas Law >$2,000 –or the individual receives a legal settlement (lump sum >$2000) –or the individual with earned income has problems keeping resources <$2,000 …

15. The Arcare Trust II is the solution! How can the individual maintain eligibility?

16. How Arcare Trust II Works Settlor = Arcare Trustee Arcare Sub-Accounts BobCarolFrank Bob Carol/ Court Order Frank/ Guardian ARCare Trust II “Master Trust Document” Self-Settled Trust Assets subject to Estate Recovery Assets are pooled for investment and management purposes. Each Beneficiary has a Joinder Agreement.

17. Requesting Distributions from a Trust Policies and Procedures sent out after trust is funded Request forms for distributions include ongoing distributions, mileage, caregivers, auto purchase, home purchase, etc. Distributions reviewed daily, processed weekly Requests must be in writing but can be submitted via mail, email or fax Proper documentation required

18. Distributions from an SNT Advocacy services Pre-Paid Burial Expenses of beneficiary Cable television Camp tuition Clothing for the Beneficiary Computer hardware and software Curtains, towels, linens, decorative items Education, tuition, books or transportation to same Entertainment and recreation tickets Equipment (electronic, entertainment, adaptive) Expenses related to owning and operating one car Eyeglasses Furniture and household items Gardening and lawn care Guardianship and advocacy services Home appliances Home renovations to improve accessibility Homeowner insurance premiums Independent evaluations Insurance premiums (health, dental, life, care and renter) Internet access The Dos (payments must be made to a vendor) Job coaching Legal fees Magazine subscriptions Medical equipment Medical, nursing and dental care, not covered by another source Medications Massage therapy Office supplies Personal assistance Pet care and supplies Private counseling and case management Private lessons and materials Stamps and writing supplies Supplemental dietary needs Telephone service Testing (vocational, medical, psychological, etc.) Vacation expenses including transportation and hotel

19. Distributions from an SNT The Don’ts (or at least try not to) Don’t distribute cash directly to the beneficiary. Don’t make payments for food or shelter. (This includes rent, gas, electric, water and waste disposal.)

20. Arcare Representative Payee Services Charges the SSA-regulated fee of $40/month for service. Develops a budget for meeting an individual’s needs. Per Social Security requirements, basic needs (food and shelter) are priority. Puts money on a UMB debit card for spending and groceries weekly or monthly. Works closely with the individual and/or case manager. Sees clients by appointment only. As an organizational payee, Arcare:

21. Who Needs a Representative Payee? Having a representative payee is not an option or a choice. A form from SSA (SSA 787) must be signed by a doctor or medical officer. SSA appoints a representative payee when a beneficiary is determined incapable of managing or directing someone else to manage his/her Social Security and/or SSI payments.

22. How to Initiate Our Representative Payee Service 1.Contact the local SSA branch at 1.877.455.9978 and tell them you would like to make an appointment to appoint/change payees to Arcare. 2.After the meeting, call Arcare at 913.648.0233 to share your needs with John Briggs. 3.Once you receive paperwork from Arcare, fax or mail back the completed documents. 4.After we receive notice that we have been assigned as payee, we will contact the beneficiary and set up an appointment to establish budget. 5.NOTE: The process often takes 4-6 weeks.

23. Leverage Arcare’s Experience Social Security Administration (SSA) Kansas Department for Aging and Disability Services (KDADS) Community Developmental Disabilities Organization (CDDO) Day service providers Residential service providers Arcare has experience working with:

24. Additional Arcare Services Medicare Medicaid Medicare Part D plans Case management Other areas of expertise include:

25. The Roles of Arcare Guardian Durable Power of Attorney Representative Payee Advocate Friend All-Around Problem Solver According to your preferences and your loved one’s needs, Arcare can serve as:

26. Why Arcare is a Smart Choice Professionalism Ease of administration Expertise with disabilities Pooled assets Continuity Cost

27. At Arcare, QUALITY (of life) is job #1.

28. Questions? Contact the Arcare team to set up an appointment today. 8417 Santa Fe Drive, Suite 107, Overland Park, KS 66212 Phone: 913.648.0233 | Fax: 913.648.0057 info@arcare.org www.arcare.org