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A presentation at Autscape 2014 by Yo 1 of 19 © Yo 2014 Accessing formal support through the lifespan.

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Presentation on theme: "A presentation at Autscape 2014 by Yo 1 of 19 © Yo 2014 Accessing formal support through the lifespan."— Presentation transcript:

1 A presentation at Autscape 2014 by Yo 1 of 19 © Yo 2014 Accessing formal support through the lifespan

2 Structure 2 of What is formal support? 2. Do I want/need it? 3. How do I get it? 4. What will it cost me? 5. Summary

3 1. What is formal support? Benefits Housing Healthcare Education Disability rights 3 of 19 Work Social care Advocacy Voluntary groups

4 4 of What is formal support?

5 5 of 19

6 2. Do I want/need it? The BAD stuff Dependency is not fun Lots of initiative required! Is the paperwork worth it? It’s NOT free 6 of 19

7 2. Do I want/need it? The GOOD stuff Direct payments don’t count for benefits Autonomy and control are important and the changes are very positive for those When it works, it can work really well and let you do things you couldn’t otherwise do If you know your legal rights, or can get a good advocate, it is possible to get good support. The charges can be manageable if you are able to get a fair financial assessment (and know the rules) 7 of 19

8 3. How do I get it? 8 of 19

9 3. How do I get it? 9 of 19 Assessment Eligible or Not Financial assessment

10 3. How do I get it? 10 of 19

11 3. How do I get it? 11 of Education Health and Care plans (EHC) Education based Health and Care parts not enforceable via tribunal 18 + Care and support plans Social services based Same legal framework for all adults, but your needs may change a lot as your life does 65 + Same legal framework But often ‘older adult’ teams who are not very appropriate

12 3. How do I get it? - children 12 of 19 The current ELIGIBILITY criteria – social care services for ‘children in need’ LA have general duty to provide services to children ‘in need’ who include those who are disabled

13 3. How do I get it? - children 13 of 19 The new ELIGIBILITY criteria – EHC plans Must have Special Educational Needs (SEN) i.e. Have a learning difficulty or disability AND Need education which is “additional to” or “different from” what is provided by mainstream education for all children To get social care provision in the plan, must be a “child in need” i.e. have a disability (not just a learning difficulty).

14 3. How do I get it? - adults 14 of 19 The current ELIGIBILITY criteria – substantial there is, or will be, only partial choice and control over the immediate environment; and/or abuse or neglect has occurred or will occur; and/or there is, or will be, an inability to carry out the majority of personal care or domestic routines; and/or involvement in many aspects of work, education or learning cannot or will not be sustained; and/or the majority of social support systems and relationships cannot or will not be sustained; and/or the majority of family and other social roles and responsibilities cannot or will not be undertaken

15 3. How do I get it? - adults 15 of 19 The new ELIGIBILITY criteria (probably from April 2015) because of a disability You have a LOT of difficulty with at least one of: looking after yourself (or a child if you are a parent) maintaining basic, essential social relationships (eg with your family) accessing any meaningful activity (eg voluntary work, studying) accessing services in the community (eg GP, leisure activities) AND that this is having a negative impact on your wellbeing

16 3. How do I get it? 16 of 19 Other key changes: Carers right to services Advocacy

17 4. What will it cost me? 17 of 19

18 4. What will it cost me? 18 of 19 CURRENT Charges must be “reasonable” Guidance places some limits on us of ‘standard lists’ for disability-related expenditure NEW “people should only be required to pay what they can afford” Guidance doesn’t cover issue of ‘standard lists’ at all BUT public law still requires that councils behave rationally! STAYING THE SAME Charges must not reduce income below Income Support/Pension Guarantee Credit + 25% “necessary disability-related expenditure” should be excluded from income when calculating charges

19 5. Summary 19 of 19


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