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Impact on Breastfeeding of Restrictive Lingual Frenulum Dr David Edwards StR Public Health Public Health Suffolk.

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Presentation on theme: "Impact on Breastfeeding of Restrictive Lingual Frenulum Dr David Edwards StR Public Health Public Health Suffolk."— Presentation transcript:

1 Impact on Breastfeeding of Restrictive Lingual Frenulum Dr David Edwards StR Public Health Public Health Suffolk

2 March 2012 Concern raised over access to infant ‘tongue-tie’ lingual frenulum (LF) division to support breastfeeding in Suffolk Investigation by Public Health: – Ipswich Hospital - LF division policy and pathway in place – West Suffolk Hospital - did not provide LF division to support breastfeeding

3 NICE Guidance (2005) Division of ankyloglossia (tongue tie) for breastfeeding (IPG149) Many ‘tongue-ties’ do not require treatment Conservative treatment includes breastfeeding advice and counselling, exercising the tongue Surgical division of the lingual frenulum may enable the mother to continue breastfeeding Safe – if by competent health professional

4 East of England Picture Over half of providers (n=8, 53%) with no policy/guideline for LF division Seven providers with policies roughly in line with NICE IPG149 Wide policy variation on assessment of LF and pathway followed

5 Its About Tongue Mobility! Restricted tongue mobility can impair breastfeeding – Mother/infant interaction Require clear identification, assessment of tongue mobility impact on breastfeeding Intervention (LF division) when indicated Risk of policy stimulating unnecessary LF division activity?

6 Regional policy Policy for Division of the Lingual Frenulum (tongue-tie division) of Infants (<3 months of age) to Support Breastfeeding “..ensure consistency of approach in the East of England in the provision lingual frenulum division (tongue-tie division) where restricted tongue mobility due to a tight lingual frenulum is impairing the ability of the infant to breastfeed effectively”

7 Policy part 1: Assessment BEFORE referral for division – competent health professional to assess tongue mobility Is infant positioning and attachment correct? Is tongue mobility impairing breastfeeding? If it does not impair breastfeeding then division is not necessary

8 Policy part 2: Division Who and where to divide LF that is impairing ability to breastfeed Lingual frenulum is divided using sterile scissors Safety – Suitable clinical room which meets infection control requirements – Two staff, clinician conducting division and assistant – Protocol in place for rapid response to uncontrolled bleeding

9 Policy Implementation Training need for assessment of whether tongue mobility is affecting breastfeeding Clear referral pathways across region for referral of infants identified with clinical need for LF division Support for breastfeeding mothers who do not opt for division

10 Implementation of Policy: What needs to be done in Suffolk? Training need for identification and assessment? Where should mother and baby be referred to?

11 Emotive Issue - Stigma Concern by some professionals – ‘tongue-tie’ division an unnecessary mutilation Lactation specialists, Health Visitors & Midwives – LF division is an important issue Parents – Frustration with [SOME] NHS staff not recognising impact on breastfeeding, inequity in provision, high cost of private treatment Misinformation, fear & false expectations?

12 Evidence? NICE IPG149 –expert and case report evidence Ultrasound study *identified that restricted tongue mobility (tight LF) can affect the suckling mechanism and milk removal of affected infants Two blinded RCTs^ provided evidence that LF division was effective – but small numbers Dependent on mother/infant dyad –tongue mobility may or may not impact breastfeeding *Geddes et al 2008 ^Berry et al 2012; ^Buryk et al 2011

13 “Division of Restrictive Lingual Frenulum – why, when and where?” Mr Ashish Minocha Consultant Paediatric & Neonatal Surgeon, Jenny Lind Children's Hospital, Norfolk and Norwich University Hospital NHS Foundation Trust Dr David Edwards Specialist Registrar Public Health Suffolk County Council

14 Lingual Frenulum ‘Lingual frenulum' stretches from under the tongue to the floor of the mouth Elastic and does not interfere with the movements of the tongue

15 Embryological origin Vestigeal Structure – frenulum is what is left of the tissues that should have disappeared as the oral areas are formed – not uncommon – ‘webbing‘ can occur between upper or lower lips and gums, cheeks and gums as well as in at the base of the tongue

16 ‘Tongue tie', ‘Ankyloglossia' or ‘short frenum' Short Lingual Frenulum may lead to restriction of tongue movement

17 The Academy of Breastfeeding Medicine defines partial ankyloglossia or “tongue-tie” as "the presence of a sublingual frenulum which changes the appearance and/or function of the infant's tongue because of its decreased length, lack of elasticity or attachment too distal beneath the tongue or too close to or onto the gingival ridge"

18 “Short, thick, tight or broad” Lingual Frenulum Adverse effect on oromuscular function - feeding and ? speech It may cause problems when it extends from the margin of the tongue and across the floor of the mouth to finish at the base of the teeth

19 Incidence Variable ?? Criteria 1941 Study - 4 per 1000 of the population. 16 percent of babies experiencing difficulty with breastfeeding had a tongue tie - University of Cincinnati, USA, % of the babies - SGH, UK.

20 Variable appearance

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24 Posterior Tongue tie – Does it exists ?

25 Kotlow’s Criteria With a finger, run it underneath the tongue from side to side. The feeling of a tie can be describe as a fence, speed bump or ridge in the bottom of the mouth. A normally developed mouth floor will feel smooth. Any kind of a bump has the potential to cause problems.

26 Genetic factors Strong familial tendency or just an awareness ?? Tongue tie sometimes occurs together with other congenital conditions which affect the structure of the mouth, such as cleft lip or palate. It can also occur together with conditions such as severe hearing loss or cerebral palsy. Boys are more often “tongue-tied” than girls !!

27 Diagnosis Traditional criteria – Acute malnourishment – Mis-articulation of tongue tip sounds such as ‘t', ‘d', and ‘n'

28 Signs & Symptoms in Babies – Failure to latch on - slipping off the breast while feedinglatch on – continuous feeding - frequent & inadequate – Clicking sounds while feeding – Continuous Dribbling & gagging – Colic – “Windy baby” – Poor weight gain & physical growth

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30 Maternal Signs & Symptoms – Sore nipples Sore nipples – Mis-shaped nipples – Mastitis and/or blocked ductsastitisblocked ducts

31 Children, Adolescents & Adults – Appearance of the tongue – Lack of lingual mobility speed and accuracy of tongue movements – Eating difficulties - poor coordination of oral musculature – Severe Dental problems – Unclear Speech ? – Inability to enjoy simple pleasures !!

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34 Assessment – Breastfeeding, and any problems experienced – Measurements of ‘free tongue', and height to which the tongue can be lifted – Appearance of the margin of the tongue, and whether indentation is present – Function and ability to protrude or to elevate the tongue – Dental & Speech problems

35 Assessment & Classification Kotlow assessment (American Paediatric Dentist) –length of free tongue >16 mm acceptable – Class I (12-16 mm) – mild – Class II (8-11 mm) – moderate – Class III (3-7 mm) - severe – Class 4 (<3 mm) - complete

36 Assessment & Classification Hazelbaker Assessment tool – Lactational Consultant – Lingual Frenulum Anatomy & Function based assessment rely on assessors judgement of appearance and any sucking problems

37 Reliability of the Hazelbaker Assessment Tool for Lingual Frenulum Function Lisa H Amir, Jennifer P James and Susan M Donath, Melbourne, Australia International Breastfeeding Journal 2006, 1:3 doi: / Reliability of each item ItemKappaP value Appearance items Appearance of tongue when lifted 0.54<0.01 Elasticity of frenulum 0.53<0.01 Length of lingual frenulum when tongue lifted 0.51<0.01 Attachment of lingual frenulum to tongue 0.39<0.01 Attachment of lingual frenulum to inferior alveolar ridge 0.62<0.01 Function items Lateralization 0.71<0.01 Lift of tongue 0.67<0.01 Extension of tongue 0.65<0.01 Spread of anterior tongue Cupping Peristalsis Snapback

38 Assessment & Classification Appearance factors (Griffiths et al, Southampton) – diaphanous (transparent), – medium (non-transparent) – thick (chunky) – Visual assessment of the length Digital Calliper Quantitative evaluation (Marchesan et al, Brazil) Tongue tie Assessment Protocol (TAP) - scoring based on appearance and function

39 Consequences of Tongue Tie Varied Depends on age of presentation

40 Maternal challenges The maternal experience of breastfeeding a tongue- tied baby may include: – Pain – Nipple damage, bleeding, blanching or distortion of the nipples – Mastitis, nipple thrush or blocked ducts – Severe pain with latch or losing latch – Sleep deprivation caused by the baby being unsettled – Depression or a sense of failure

41 Consequences in infants Early problems with breast feeding may lead to – Termination of breastfeeding – Failure to thrive – Poor bonding between baby and mother – Problems with introducing solids

42 Consequences in Children – Inability to chew age appropriate solid foods – Inability to enjoy lollies / licking ice-creams – Dribbling, Gagging, choking or vomiting foods – Persisting food fads – Difficulties with dental hygiene/ Dental problems – ? speech problems – Behaviour problems – Lack of self confidence

43 Consequences in Adults Consequences of un-repaired tongue tie may not reduce with time Social, domestic and work environment difficulties Lack of self-esteem Dental health

44 Intervention Before 1940, tongue ties were routinely cut to help feeding So what changed this practice ? – reduction in the practice of breastfeeding – “Not real medical problem” & “in the mind off over-zealous parents” – fear of excessive/unnecessary surgery

45 Intervention ? – Lactational Consultants & Breast Feeding Advisor – Struggling and suffering mums – And some of us starting to listen !

46 Tongue tie Division Neonates & Infants (prior to eruption of teeth) Fax / referrals accepted and encouraged to avoid delay. Babies seen in next clinic – sometime on the same day of referral (majority within a few days to a week). Office Procedure

47 Tongue tie Division Neonates & Infants Procedure – One of the parent hold the baby – Usually cry when examining which helps in examination and division – Complete division of tongue tie – Some babies sleep through the procedure – Most stops crying as soon as handed over to mum and start feeding

48 Tongue tie Division Neonates & Infants Tinge of blood – bleeding checked after 2 minutes and parents asked to wait another 20 minutes for a further review Encouraged to report progress in 2 weeks via / post or telephone No follow up appointment

49 Audit of service YearReferralReleased%Boys Girls% Boys % Girls till Sept (760)92 Total *288 *6238

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51 Response and Improvement YearResponsesImprovement% Improvement March Total Total All % rounded to the nearest whole number

52 Parental Satisfaction compared to Responses YearResponsesParental satisfaction% Satisfaction March Total % All % rounded to the nearest whole number

53 Releases and Complications YearReleasesComplications% ComplicationsDescription Minor Bleeding, 1 Recurrence Ulcer Minor Bleeding, 2 Ulcer March Total Ulcer, 2 Minor Bleeding, 1 ? Recurrence All % rounded to the nearest whole number

54 Audit Conclusions Referral rate have increased due to increasing awareness Total audit response rate 36% Frenulotomy rate 96% Improvement in feeding 96% Parental satisfaction 97% Complications (minor) 01%

55 Conclusion Early recognition & referral Breast feeding advisor / Lactational consultant involvement helps in long term support Safe & quick procedure Almost nil complication in “expert hands” No need to “wait & see” in presence of feeding problems

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57 Workshop What can you do to improve Breastfeeding in your Clinical Commissioning Group Area?


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