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Family carer of dependent person Challenges and best practices in Spain Jesús Mª Rodrigo Executive Director CEAFA COFACE Seminar Dependet persons in the.

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Presentation on theme: "Family carer of dependent person Challenges and best practices in Spain Jesús Mª Rodrigo Executive Director CEAFA COFACE Seminar Dependet persons in the."— Presentation transcript:

1 Family carer of dependent person Challenges and best practices in Spain Jesús Mª Rodrigo Executive Director CEAFA COFACE Seminar Dependet persons in the European Union: Who cares their family carers? Sofía, 20 October 2009

2 Alzheimer Disease 8% of people more than 65 years old is afected by dementia, but the disease is not exclusive of ageing In 2020, 7 million people afected in Spain. In 2050, 100 millIon in the World Alzheimer Disease is the most frequently cause of dependence

3 Alzheimer disease afects both who suffers it, and their family carers

4 The care in the family The attention is offered mainly in the familiar framewok and seccondary by programmes and public services The responsability of care fall on women, and particulary on single daughters The care generates a high economical, social, psychologycal… impact for the carer and the hole family

5 Positive effects of family care Dependent person may live in his usual frame, in known atmosphere and with closer people Prevent to put the dependent person in a residence, reducing public ressources Improve the quality of life of dependent person and of the rest of family, because familiar relationship is a warranty of an adeccuate attention

6 PHASEYEAR SYMPTOMS PERSON SUFFERING FROM ADFAMILY FIRST 1  Self-esteem reduction  Fear deterioration  Some confusion  Feels clumsy  Self defence mechanisms  Observe estrange reactions  Take the person to neurologist DIAGNOSTIC 2323  Forgetfulness  Lost of vocabulary  Space and temporal confusions  Difficulties for mechanical activities  Agitation, nervousness  Diagnosis impact  Information phase  Planning phase  Main carer  Alter of family live SECOND 4  Forgets recent events  Hardly does activities  Doesn’t know big part of lexicon  Doesn’t understand new situations  Doesn’t recognize places and times  Main carer: Anguish for deterioration of loved one. Fear for future. Physical and psychical tiredness  Rest of family: Establish a time routine to take over the main carer. Anxiety and contradictory feelings 5656  Walks clumsily  Can’t dress, eat, walk by self  Needs constant attention  Affectivity is the link with life THIRD 7  Doesn’t eat and recognize  Doesn’t speak  Unconscious almost day  To stand still  Main carer: Feelings of loneliness, impotent. Difficulty to face up to biologycal death of loved one  Rest of family: Planning to take over the main carer and help in mobility, hygiene, etc  Alternates bed with sofa  Sleeping almost time  Some shot moments of conscience  Breathing, feeding, dermatology problems appear

7 Consequences for family carer Personal Social Profesional Economics “Colateral effects” for family carer Physical alterations Psychological disorders Social disorders

8 Gender of main carer PROFIL OF MAIN CARER FEMALE DISEASE PHASES FIRSTSECONDTHIRTH Age 56 years55 years57 years Family relationship 56% spouse 44% doughter 47% spouse 47% sons 6% others 41% spouse 59% doughter Withdraw of profesional activity 35%13,9%31,7% Familiar unity members 3,193,283,19 Helping members 11,061 Time from diagnoses 3,24 years6,19 years8,21 years Time attending the dependent person 5 years7,3 years

9 Economic impact in the family

10 Best practice in Spain

11 The Asociations. A resource of comprehensive care The AFAS are private non-profit, legally constituted, who work in the field of action for the collective interests of those affected by Alzheimer's disease and their families. They conduct their activities primarily with volunteers, even though they have paid professionals, complementing efforts and functions

12 More than 280 associations spread across the Spanish geography, CEAFA integrated, providing, inter alia, the following specific services for all people affected by Alzheimer's disease

13 Reception and Information Social Care Psychological Care Training Advice

14 Day Centers Cognitive stimulation for people suffering from Alzheimer managed by AFAS

15 Health Area Psycho-social Area Neuropsychologic and Behavourial Area Family intervention Functional Area

16 Another Good Practice

17 Spanish Act of Dependency The Act aims to regulate the basic conditions guaranteeing equality in the exercise of subjective rights of citizenship in the promotion of personal autonomy and care for people in a dependent position (...) by creating a System for Autonomy and Care Unit, with the cooperation and participation of all government and ensuring the General State Administration a minimum of common rights for all citizens in any part of the Spanish State

18 Thank you very much for your attention


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