Presentation on theme: "Hearts, bodies and identity : Towards a critical visual phenomenologically-informed exploration of heart transplantation QUIG SEMINAR, FEBRUARY 26, 2009."— Presentation transcript:
Hearts, bodies and identity : Towards a critical visual phenomenologically-informed exploration of heart transplantation QUIG SEMINAR, FEBRUARY 26, 2009 Enza De Luca Oliver Mauthner Jennifer Poole
The PITH Team (The Process of Incorporating a Transplanted Heart) Dr. Patricia McKeever, Faculty of Nursing/Bloorview Kids Rehab Dr. Susan Abbey, Toronto General Hospital Dr. Margrit Shildrick, Queen’s University, Belfast Dr. Jennifer Poole, Enza DeLuca, Oliver Mauthner and…..
Our Fearless PI, Dr. Heather Ross
“The human experience is messy not just because it is often ambiguous and contradictory but also because it is redolent and visceral; we can smell it and feel it in our guts. The western cultural tendency to separate body from mind, and to elevate the mental over the corporeal, has trivialized the extent to which the ‘body is the obvious point of departure for any processes of knowing” (Rudberg 1997 cited in Sandelowski, 2002, p. 108)
PITH Research Questions How do heart transplant recipients perceive their hearts, bodily integrity and personal identity as well as imagine and speak about their donors? How do these perceptions, thoughts and accounts change over time? Is there a relationship between these perceptions and physical/mental outcomes?
Data Collection Semi-structured interviews with 27 heart transplant recipients living in Ontario Use of digital video/audio Attention to words as well as body language, personal artifacts (i.e. jewelry, religious icons), tones, props and dress Field notes
Visual Analysis Following Heath (2002), we are looking for: “physical manifestations” “expressive artifacts” “expressive gestures” “by the way syndrome” “incongruities” between words and expressive gestures or physical attempts to upgrade or downgrade “the severity of the trouble and underscore grounds for seeking help and particular forms of treatment or management” (Heath, 2002, p.614).
And now… Enza: The interviews Oliver: Data management and Coding with NVivo8
Word Cloud Interview Prompts
Sample Interview Questions What has life actually been like for you? My body is like a ….Please elaborate… How do you think/feel about your heart? Have these thoughts changed over time since the transplant? Would you feel comfortable talking about how you picture/think about the donor? Has having a heart transplant changed how you feel about yourself as a person?
Managing the Data Choosing the right qualitative research software Training Setting up the project
Group Work Licensing Remote access Facilities Continuity
Using NVivo8 Choosing the camcorder Recording in best format Importing videos Using transcripts Troubleshooting
Coding Text Creating Free nodes (broad) Coding transcripts Collapsed into Tree nodes (focused)
Moments from our visual analysis process Physical or “visible manifestations” –Visible scar Visible “expressive artifacts” –Water bottle –Hope sign on wall –Scar was airbrushed out of family picture Expressive gesture –Gestures locating areas of difficulty - overall body gesture and tone of voice, heaviness, sadness