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Anita MacDonald. Home Delivery of Dietary Products in PKU and other IMD in PKU and other IMD.

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Presentation on theme: "Anita MacDonald. Home Delivery of Dietary Products in PKU and other IMD in PKU and other IMD."— Presentation transcript:

1 Anita MacDonald

2 Home Delivery of Dietary Products in PKU and other IMD in PKU and other IMD

3  Have you ever been given the wrong protein substitute?

4   Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?

5   Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?

6   Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?   Do you have to collect your protein substitute from your chemist?

7   Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?   Do you have to collect your protein substitute from your chemist   Do you ever worry about obtaining your protein substitute?

8   Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?   Do you have to collect your protein substitute from your chemist   Do you ever worry about obtaining your protein substitute?

9 Home delivery service - organise prescriptions - dispense special feeds - home deliver

10 How did we do the study?   duration: 1 year   2 groups: home delivery control n=30 n=32

11 Home delivery service   essential dietary products   specialist training given to home-delivery team   monthly stock levels agreed   organised GP prescriptions   monthly phone checks with patients/parents

12 Home delivery service   products picked by trained warehouse team   dispensed by pharmacist   delivered to patients/parents home at standard times monthly

13 What did we compare?   mistakes   delays in receiving products   metabolic control   user satisfaction

14 Evaluation

15 Safety number of problems p<0.05 p<0.05

16 Delayed receipt of products home delivery control number of problems p<0.05

17   control: 31% waited 1-2 weeks for protein substitutes   problems: - low stock levels - lost prescriptions - lack of product supply - repeated errors Delayed receipt of products

18 Blood phenylalanine control

19 User satisfaction %

20 saves time and never run out of products stress free service. Don’t know what we would do without it now…… made life easier pleased with service… chemist is a nightmare -home delivery is a far better option

21 Conclusions Home delivery service of protein substitutes:   safer than conventional system   reliable   possibly associated with better metabolic control   popular


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