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Getting Connected in the HD Community in Minnesota.

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Presentation on theme: "Getting Connected in the HD Community in Minnesota."— Presentation transcript:

1 Getting Connected in the HD Community in Minnesota

2 The Minnesota Chapter Who we are? Where? What?

3 How to get connected? Website –www.Hdsa.orgwww.Hdsa.org –http://www.hdsa.org/mnhttp://www.hdsa.org/mn Facebook –https://www.facebook.com/pages/HDSA-Minnesota- Chapter/ https://www.facebook.com/pages/HDSA-Minnesota- Chapter/ Chapter Social Worker –Jessica Marsolek phone: Chapter Board –President: David Stage –PO Box Minneapolis, MN –Tel:

4 Get Supported- Chapter Support Groups Richfield (Meets: 3 rd Saturday of every month) When: 10:30AM-12:00 PM Oak Grove Lutheran Church 7045 Lyndale Ave. S Richfield, MN Rochester (Meets: 3 rd Saturday of every month) When: 3:00PM-4:30PM Bethany United Methodist Church th Avenue NW Rochester, MN

5 Get Involved- Advocacy, Awareness and Fundraising Advocacy –speaking up politically, educating, and raising awareness –engaging others affected by HD, building a nationwide movement and getting results –(Advocacy Session 2:10pm- Harriet) Awareness –May is HD Awareness Month –Attending Events –Getting new volunteers involved –Speaking engagements Rotary Clubs, Kiwanis, Jaycees, NHS, Greek Organizations, Church Groups

6 Fundraising Not all about the money –Invitations –Graphics –Soliciting Donations –PR –Logistics- working with vendors –Coordinating Volunteers

7 Events in 2014 Team Hope Walk –Minneapolis –Duluth HD Social ADE Dinner ICE HD BLAST Bowlathon Hits for Huntington’s

8 Other Event Ideas Hoopathon Purse Party Holiday Soiree Tractor Racing Paintball Dog Show Re-Prom

9 Chapter Board Opportunities Meet every other month. –Next meeting 11/18/14 –American Academy of Neurology - Minneapolis Oversight and new initiatives Communication –National Information –Newsletter –Facebook Treasurer, Secretary, Standing Members Website Maintenance

10 Volunteer Opportunity: Family Services Committee To provide oversight and guidance for the family and support services provided by the Chapter within the state of Minnesota. The Family Services Committee is to meet a minimum of 1 time per quarter. Alternating months that the Chapter Board meets so the committee can report progress and updates to the board. At the beginning of the year, the committee should set goals for services provided and/or events/initiatives aimed towards building awareness or providing optimal community support throughout the year.


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