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GETTING IT RIGHT GUIDE What families need to know Carole Haynes Angela Cole.

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Presentation on theme: "GETTING IT RIGHT GUIDE What families need to know Carole Haynes Angela Cole."— Presentation transcript:

1 GETTING IT RIGHT GUIDE What families need to know Carole Haynes Angela Cole

2 WHY A GUIDE? Transforming Care Families -  often not involved in decisions about where people go  difficult to visit  concerns and complaints often not acted on NHS England (London) wanted to do something to help

3 IT’S NOT EASY FOR FAMILY MEMBERS  Worried about their relative, and their future  Units can be unsettling  Professionals can seem very powerful  The law is complex  Need to know about a lot of different things  …but it may also be a relief

4 FAMILY MEMBERS HAVE A LOT TO OFFER  what they know about their relative  monitoring …questioning and calling services to account, and safeguarding their relative’s rights  making sure there’s a constant focus on returning home – helping to make 'short stay' a reality

5 TO DO THOSE THINGS… Family members need to know about  people’s rights  how the system works  what should be expected, and  what they can do to influence what happens. The booklet aims to help family members speak up well for their relative.

6 WHAT THE GUIDE DOES Gives lots of Information Says what family members should expect to happen: standards Makes suggestions: things to do Gives links to other organisations and helpful resources

7 HOW WE DID IT  An ‘advisory group’ of family members met three times  We thought about the design and the content of the booklet  The group said what should happen (the standards)  Other family members were ‘readers’  A solicitor checked the legal bits

8 WHAT’S IN IT  How and why people go into hospital units  About different units  Getting involved and being heard  Rights and responsibilities  Assessment and treatment

9 MORE  What happens day to day  Returning to community life  What to do if you have concerns  Organisations that can help, and helpful things to read

10 KEY MESSAGES  try to get good assessment and treatment for the person at home first, to avoid them having to go into hospital;  visit and have lots of contact with the person if they do go into hospital  encourage other people in their wider circle to maintain regular contact;  provide the hospital team with detailed, background information;  create a positive relationship with the team by being as calm as possible, and not confrontational;

11 MORE…  be open to advice from the professional team;  give advice and ‘explain’ things about the person to the team;  don’t make assumptions - ask questions so you understand what is happening, and why;  attend meetings, and send someone else if you can’t;  support the advocate who is linked to your person by providing information and meeting with them;  stay observant – and raise any concerns you have promptly.

12 WHAT YOU CAN DO  Get a copy  Dip in and out  Tell families about it  Tell professionals about it Help get it to people who need it!

13 YOU CAN GET IT FROM NHS England (London) – Stephan Brusch earning-disabilities

14 THE BOOKLET FOR PEOPLE IN HOSPITAL CHANGE wants to know what you think. Go to their website


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