Presentation on theme: "Presenter – Alexandra Andrews, MA Health Care Advocacy Program Coordinator at Advocacy Denver."— Presentation transcript:
Presenter – Alexandra Andrews, MA Health Care Advocacy Program Coordinator at Advocacy Denver
Formerly the Arc of Denver; still an Arc Chapter. Non-profit, civil rights, advocacy organization serving people with I/DD of all ages. Assistance/Guidance provided in many areas: Housing, transportation, financial stability, legal services for special education, employment, and health care. Initiate public policy change in order to promote positive solutions.
Guide adults with I/DD through the health care system. Serve both English and Spanish speaking individuals. Provide health and wellness education. Track gaps in the health care system. Collaborate with other individuals and organizations to educate and assist in legislative and system changes.
Intellectual disability – is a below average cognitive ability with 3 characteristics: I.Q. is between or below Significant limitations in adaptive behaviors (the ability to adapt and carry on everyday life activities such as self-care, socializing, communicating, etc.) The onset of the disability occurs before age 18. Developmental Disability – includes people who have an ID, autism, cerebral palsy, severe seizure disorder, or a severe head injury. Under federal law, DD means a severe, chronic disability of an individual that: is attributable to a mental or physical impairment or both. is manifested before 22 yo. is likely to continue indefinitely results in substantial functional limitations in 3 or more major life areas.
I/DD comprise 2% to 3% of the general population. They represent 4% to 10% of the prison population, with an even greater number of those in juvenile facilities and in jails (Petersilia, 2000).
As suspects, individuals may: Not want their disability to be recognized and try to cover it up. Not understand their rights Not understand commands, instructions, etc. Be overwhelmed by police presence Act upset at being detained and/or try to run away Say what they think officers want to hear Have difficulty describing facts or details of offense Be the first to leave the scene of the crime, and the first to get caught Be confused about who is responsible for the crime and “confess” even though innocent (Leigh Ann Davis, 2009)
Typically, the perpetrators with I/DD are: Male Older than other offenders Exhibit long-standing and continuing serious behavioral disturbance (independent of their psychiatric diagnosis or level of involvement with the criminal justice system) Require supported or custodial accommodation, despite only mild or borderline levels of ID. Although only one-third have a diagnosable major psychiatric disorder, three-quarters have had prior or current contact with psychiatric services and two-thirds suffer chronic medical illness. (W. Glaser & D. Florio, 2004).
“Despite increased prevalence of psychiatric disorder amongst offenders with an intellectual disability (ID), there is very little known about the characteristics and needs of those with dual disability” “The multiple services provided to this group have been ad hoc, poorly coordinated and sometimes dangerously inappropriate. A service provision model is required which must be integrative and consistent.” (W. Glaser & D. Florio, 2004).
Mental health services are provided in prison and jail, but infrequently meet the needs of people with I/DD. Follow-up after incarceration is limited. Police and mental health providers have limited training dealing with people who are dually diagnosed.
Improvements have been achieved in other states for people with I/DD and MI. Better utilization of Home and Community-Based Medicaid Waivers Increased state funding for crisis services and increased access to mental health services. 1915(k) Community First Choice personal care plans Money Follows the Person Balancing Incentives Payments programs The Health Home, optional Medicaid state plan Further Recommendations in: “Including Individuals with I/DD and Co-Occuring Mental Illness”, NADD, 2011.
Alexandra Andrews, MA (office) Advocacy Referral Line – Website –