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THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011 aisbl

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Presentation on theme: "THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011 aisbl"— Presentation transcript:

1 THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second aisbl

2 THE VOICE OF PEOPLE WITH CHRONIC PAIN Mission To improve the quality of live of people living with chronic pain in Europe aisbl

3 THE VOICE OF PEOPLE WITH CHRONIC PAIN Aims of PAE 1.To have chronic pain recognised as a disease in its own rights. aisbl

4 THE VOICE OF PEOPLE WITH CHRONIC PAIN Aims of PAE 1.To have chronic pain recognised as a disease in its own rights. 2.To create a greater awareness of chronic pain. aisbl

5 THE VOICE OF PEOPLE WITH CHRONIC PAIN Aims of PAE 1.To have chronic pain recognised as a disease in its own rights. 2.To create a greater awareness of chronic pain. 3.To promote a European policy on chronic pain. aisbl

6 THE VOICE OF PEOPLE WITH CHRONIC PAIN Aims of PAE 1.To have chronic pain recognised as a disease in its own rights. 2.To create a greater awareness of chronic pain. 3.To promote a European policy on chronic pain. 4.Reduce the impact of chronic pain on all areas of European society. aisbl

7 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achieved by; 1.Working closely with other stakeholders. aisbl

8 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achieved by; 1.Working closely with other stakeholders. 2.Gather and distribute relevant information on chronic pain from the patients point of view. aisbl

9 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achieved by; 1.Working closely with other stakeholders. 2.Gather and distribute relevant information on chronic pain from the patients point of view. 3.Promote and/or initiate research into chronic pain. aisbl

10 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achievements so far 1.Launch PAE November 29 th The launch of PAE in the European Parliament. Hosted by MEP Marian Harkin supported by EFIC by its President Hans Kress and DG SANCO by Albrecht Werner aisbl

11 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achievements so far 1.Launch PAE November 29 th Official registration as AISBL January 25 th 2012 registration number is Details; rnemingps.html?ondernemingsnummer= rnemingps.html?ondernemingsnummer= aisbl

12 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achievements so far 1.Launch PAE November 29 th Official registration as AISBL January 25 th Launch website March 28 th The launch took place at the European parliament and was hosted by MEP Mr. Jim Higgins aisbl

13 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achievements so far 1.Launch PAE November 29 th Official registration as AISBL January 25 th Launch website March 28 th PAE accepted by EMA April 10 th From that date PAE is eligible to be involved in the Agency’s activities. aisbl

14 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achievements so far 1.Launch PAE November 29 th Official registration as AISBL January 25 th Launch website March 28 th PAE accepted by EMA April 10 th Registration transparency register April 25 th PAE received registration number aisbl

15 THE VOICE OF PEOPLE WITH CHRONIC PAIN Presentations 1.Presentation EFIC board. February 24 th 2012 PAE presented it selve to the EFIC board at the EFIC office. aisbl

16 THE VOICE OF PEOPLE WITH CHRONIC PAIN Presentations 1.Presentation EFIC board. 2.Presentation Public Hearing April 16 th The coordination group “European Year for Active Ageing and Solidarity between Generations 2012” organised a hearing on "Growing old in good health" aisbl

17 THE VOICE OF PEOPLE WITH CHRONIC PAIN Presentations 1.Presentation EFIC board. 2.Presentation Public Hearing April 16 th Presentation 6 th patients’ rights day May 15 th Presentation on “Active Healthy Ageing” in Europe. Organised by Active citizen network whit support of European Public health programme, EESC and ALDE aisbl

18 THE VOICE OF PEOPLE WITH CHRONIC PAIN Presentations 1.Presentation EFIC board. 2.Presentation Public Hearing April 16 th Presentation 6 th patients’ rights day May 15 th Presentation EFIC council meeting May 29 th aisbl

19 THE VOICE OF PEOPLE WITH CHRONIC PAIN Collaborations with EFIC 1.During hearing April 16 th aisbl

20 THE VOICE OF PEOPLE WITH CHRONIC PAIN Collaborations with EFIC 1.During hearing April 16 th Commission public consultation on the EU Reflection Process on Chronic Disease. 3.Commitment on the European Innovation Partnership on Active and Healthy Ageing aisbl

21 THE VOICE OF PEOPLE WITH CHRONIC PAIN Collaborations with EFIC Future collaborations on any area we find suitable in the way to accomplish our mission aisbl

22 THE VOICE OF PEOPLE WITH CHRONIC PAIN Pain Alliance Europe aisbl Joop van Griensven, president PAE aisbl


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