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Shared Support, Inc. Dream, Reach, Contribute Shared Support, Inc. Family Community Supporters executive operations clinical Specialists House supers.

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Presentation on theme: "Shared Support, Inc. Dream, Reach, Contribute Shared Support, Inc. Family Community Supporters executive operations clinical Specialists House supers."— Presentation transcript:


2 Shared Support, Inc. Dream, Reach, Contribute

3 Shared Support, Inc. Family Community Supporters executive operations clinical Specialists House supers Health care pros Area directors Friends a person centered organization

4 Our Ultimate Measure of Success “…our ultimate measure of success… we succeed when people reach their outcomes. This keeps us working and making continuous changes in our practices to achieve our mission.” Christine Martin, Shared Support, Inc., COO

5 Introductions Who we are … Who is here? Melina Fatsiou-Cowan

6 The Question Exercise

7 Why Did We Do This? Listening is modeled –Did you feel listened to? Facilitation is modeled Being purposeful and planful about organizing about gathering information about what is important to people – is essential Point out that “these” are outcomes – it’s not so hard

8 Committed to People in Reaching their Dreams is Our Mission All of us dream and have own personal vision for a good life. One person or system cannot adequately support a person with a disability. Self Determination - A person with his or her circle chooses, controls, creates and makes positive change. Choice, authority, control, responsibility and advocacy are the values and rights of all citizens. People may need support to exercise these rights – we can assist in that development for people.

9 The Alignment Outcome Goal servicesupportservice support The Outcome determines the goals, supports and services – not the other way around!!

10 Outcomes Do:  Provide “Tangible results of goals that reflect the desired quality of life as identified by the person.” Code of Maryland Regulations (COMAR)  Provide opportunities for people to achieve valued social roles  Describe future direction and plans  Describe dreams  Describe/define what individuals want in their lives

11 Outcomes Do Not…  Have services and/or supports in the statement  Describe behavior management plans  Reflect ONLY the family or service provider’s values  State action steps to something more  Talk about skill building,

12 What is Reflected in Your Personal Outcomes?  Your Values  Expression of Your Fundamental Rights  Your own Determination  A comparison of your present life to what you really want  Specific Information about “Who” you are and what you want that helps to clarify your necessary supports and plans

13 Values Search What is the most important thing in your life…. We get our values from our family and our experiences What we know to be true for us Planning with important people in our lives and in special places to us helps us be true to our own values Planning and assessment tools help us clarify what we know about ourselves and our values

14 Fundamental Rights What do state regs and the constitution have in common? Life, Liberty and the Pursuit of Happiness What are the fundamental rights all American’s are privileged to? Planning helps people with disability related barriers express and enjoy these rights that are often denied to them

15 Self-Determination Principles Freedom: To exercise the same rights as all citizens and to make decisions about their own lives. Authority: To have control over the funds needed for support. Support: The organization of resources for support, as determined by the person. Responsibility: The wise use of funds. The usual obligations of all American citizens. Confirmation - Of the important leadership that self advocates must hold in a newly designed system »Center for Self Determination

16 Nothing About Me Without Me!


18 Not Being Able to Speak is Not the Same as Having Nothing to Say!

19 Communication is Many Things Words, tone of voice, gesture, posture, facial expression = you don’t have to “intend” to communicate. Communication is typically judged by behavior not intent. Body language 60% Words 10% Tone of Voice 30% Donnel King, 2002

20 FIRST SEEK TO UNDERSTAND AND THEN BE UNDERSTOOD..(Covey,1990) Listen first, you will hear the concerns and values that you share with the other person SEEK WIN:WIN: –Can we invite the person who is opposing our view to join us to seek a solution where they win and we win? –What are the other options? Win:lose? I will not come if I am going to lose. Lose:win? They will not come is they are going to lose. Lose:lose? No deal is still an option after we have sought win:win. What’s a compromise? TOOLBOX

21 People With or Without Disabilities How Do We All Communicate? How do our outcomes, dreams, hopes, likes, dislikes, etc differ? How does our approach differ? Do people have a means of communication? How do we help people communicate? –Maps –Boards –Assistive Technology –Facilitated Communication…

22 Listening to Families, Their Critical Role, Family Dynamics The family is the most influential group of people in the person’s life. The family usually knows the person the best. They share history and current challenges. You may find that everyone wants to meet the needs of their family member – people may need support in doing so. They are motivated only by what is best for the person “When you drink the water, remember the spring” Chinese Proverb

23 Good Listening Guidelines Stop talking. You cannot be listening if you are talking (even to yourself!). Be open; put the talker at ease. Remove distractions. Don’t doodle or watch T.V. Concentrate on what is being said. Listen to understand Empathize with the talker. Try to put yourself in his/her place so that you see his/her point of view. Avoid the temptation to interrupt. Ask questions that stimulate the person to talk. Don’t over-react to highly charged or emotional words. Look for the meaning behind those words. Stop talking. This is the first and last because all other guidelines depend on it. TOOLBOX

24 Meeting Ground Rules Respect everyone’s ideas Everyone has a voice but the focus person’s is the loudest Brainstorming is essential Creativity is a must No 3rd party conversations If hidden agendas are discovered – you will be asked to leave TOOLBOX

25 Bad Listening Habits – Why Do Things Go Wrong?  Agendas (hidden and not so)  Judging  Avoiding the person’s concerns  Solving problems Foster, 2000

26 People First Language = Action! To ensure Inclusion, Freedom & Respect for all people, we must use People First Language People first language puts the person before the disability & it describes what a person has, not what a person is. Attitudes are the biggest barrier Kathie Snow, 2004

27 People First Language – Try This! People with disabilities (or disability labels). He has a cognitive disability (label). She has autism (or an autism label). She uses a wheelchair/mobility chair. Communicates with her eyes/device/etc. Person The handicapped or disabled. He's mentally retarded. She's autistic. She's wheelchair bound/ in a / confined to a wheelchair. Is non-verbal. Client Kathie Snow, 2004 GOOD BAD

28 Listening and Learning about the person you support The following series of slides explain how we want to listen and learn about the people we support!

29 Why is the person doing what he or she is doing, when he or she is doing it, to get the outcome he or she gets? Or, What’s working or not? And Why?? Listen Ask Questions, and listen some more! The BIG Question

30 What Do We Think S/he Means? S/he does this… We think it means… We react by…Then s/he… When Susan bangs her head She has a headache We ask her if she has a headache and if she looks at us we give her tylenol She should stop banging her head within one hour When Susan bangs her head She doesn’t want to go where we have suggested We ask her if she doesn’t want to go. If she says no, we ask her if she wants to go somewhere else and offer her choices from her list of places she likes. She should stop banging her head immediately. If she doesn’t something else is wrong. Keep asking

31 What Do We Think S/he Means? S/he does this… We think it means… We react by…Then s/he… TOOLBOX

32 We Value Everyone’s Gifts A Person Centered Plan Everyone has something great about them: A Skill A Talent A Personality Trait A Person Directed Plan should describe a capacity description of every person we support. Focus on what people CAN DO. Take the time to learn about WHO the person is and develop supports to help them contribute what’s great about them in the community where they live. Developing a capacity description is the first step in the person centered planning process- Positive Reputation-tool box

33 Who Is Sean? Sean is an artist. Sean takes enormous pride in his physical capabilities. Sean is intelligent. Sean is proud, he earns and saves money. Sean is a teacher – he teaches sign language to people he knows. People love Sean and care for him.

34 More… Sean signs his name Simmons, Sean Edward or Edward. If it’s extremely important that it be first and last name then mention it – otherwise, no need to correct it. Sean likes to teach people how to sign. Ask Sean how to sign certain things – he has more to teach about himself and his perspective than anyone and any class. He likes to have “The Word of the Day”. Learn it and teach someone you know. Sean is extremely proud of his earnings through his work at the hospital and savings. We are having difficulty getting money from his rep payee that is owed him. Sean will be his own rep payee.


36 Georgie Ed, Cindy, AllenStudents James, brother Juan Social/Community People UDS Shared Support First Baptist, Deaf community Valley Green Lakeside Summit Quest Barnstormers D Paid Support People ean David – support staff JoAnne – support staff Wilmer – roommate Angie – service coord. Frank – Director Heather – EARS John - psychologist Jason – owner oGereoma Borealis Cab driver #44 – Friendly Cab April - owner Mulberry Arts Studio Liz – sign language instructor DHHS Sean’s Relationships Sean is a Teacher Friends and Family

37 Relationship Map Beth Mount, 2003 Family Community Life Service Providers & Health Professionals Friends Social / Civic Paid Staff TOOLBOX

38 Places Sean Goes Human Services World Community EARS, 2 days a week Umbrella Works – my apartment is there Lancaster base ball stadium- Season pass holder – 22 games! ST. Peters, Catholic Church AT least 5 community teaching opps. Nursing Homes Shools Camps, Churches Café Aroma Borealis – hang out, 1 st Fridays UDS, board member

39 Places I Go Human Services World Community TOOLBOX

40 What are Sean’s Favorite Things? Baseball Meeting new people Hanging out with people that are deaf Teaching people the word of the day Oranges – allergic! Diets Not having any work at workshop What Things Doesn’t Sean Like?

41 What are Your Favorite Things? What Things Don’t You Like? TOOLBOX

42 What Makes Your Best Day? Your Best Day? Your Best Week? Your Best Month? Your Best Year? TOOLBOX

43 Sean-Social Roles &/or Paid Employment InterestCapacityWhat social role is possible? What can the person do to get paid? Being Busy Being Helpful Likes to tidy and clean up Great Hellos Always moving Good Gross Motor, Strong Volunteer to clean up at community places Help People at the grocery store Get tips at the grocery store Start a delivery service

44 InterestCapacityWhat social role is possible? What can you do to get paid? Social Roles &/or Paid Employment TOOLBOX

45 10 Things to Do to Support Someone with Challenging Behavior 1)Get to know the person – spend time with the person 2)Remember ALL behavior is meaningful 3)Help the person to develop a support plan 4)Develop a support plan for the person’s supports 5)Don’t assume anything

46 10 Things to Do to Support Someone with Challenging Behavior 6) Relationships make all the difference 7) Help the person develop a positive identity 8) Instead of ultimatums give choices 9) Help the person have more fun 10) Establish a good working relationship with the person’s health care physician

47 Choices Sean Makes for Himself Who his staff are Who his roommate is Where he lives Where he works When to do what he wants to do Work schedule When to go into work (this is in the process of changing) Social schedule - sometimes Choices People Make for Him Choice and Control Map

48 Choices I Make for Myself Choices People Make for Me Choice and Control Map TOOLBOX

49 What Make Sense to Sean When Sean is upset he uses sign language to communicate his feelings – supporters must know sign language. Being involved in things that he likes to do: artwork, researching, reading, using the computer. Sean does not like to be bored. Being involved with people. Sean enjoys people around him and doing things with others. Sean is interested in meeting people. Not knowing sign language Bothering Sean in his room when he goes there to relax when he is upset Not helping Sean keep his printed calendar in order Changing the schedule in anyway without Sean’s input, ok or knowledge Speaking other languages in front of Sean and not explaining what you are talking about What Doesn’t Make Sense to Sean

50 What Make Sense What Doesn’t Make Sense TOOLBOX

51 Help People Direct their Lives Listen to Who they are Help them lead their meetings Understand their behavior, Be Positive Don’t Ignore people. You wouldn’t be here without them!

52 Develop Your Agenda for Your Planning Meeting Choose the outcomes you want to discuss Think about what resources you may need to get there Think about who you want to come – look at your relationship map Think about where you want it and when you want to hold your meeting Do you have questions you want to ask your team? TOOLBOX

53 Is Your Plan Self-Directed? If your plan is self -directed it should include: Information about what is really important TO you and your family? The things you like to do, what you like, the people you care about? Information about what is and what is not working in your life Great Things About You, what you are good at, what you are proud of, what you like about yourself An action page that explains clearly how you are going to get the life you want, and who is going to do what to help you get there. People who are willing to work with you as partners in making your plan happen. If your plan is not self-directed - it may include: Information that Other People think is important FOR you or your family that you do not agree with It is filled with information about all the things you do wrong or cannot do

54 Which Part of Your Planning Do You Direct #1? Choose the people who comes to plan with you Where will you have your meeting What time will you have your meeting Who will facilitate your meeting What is your meeting agenda What are the things you don’t want to talk about What questions you want to ask TOOLBOX YES/NO Do you want to?

55 Which Part of Your Planning Do You Direct #2? Do people ask questions about you? Do you give people guidelines about the meeting? Do you feel like you are understood at your meeting? Do you feel respected? Are you able to discuss YOUR outcomes Are you able to discuss what is bothering you? Do you feel GOOD when you leave YOUR meeting? TOOLBOX YES/NO Do you want to?

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