Presentation on theme: "Margareta Popoola. [ [R]omanies are, perhaps, the minority group most discriminated against in Sweden. There is a lack of trust between Romanies and."— Presentation transcript:
[ [R]omanies are, perhaps, the minority group most discriminated against in Sweden. There is a lack of trust between Romanies and the majority of the population, and it is time to do something about it… (Maria Leissner, Delegation for Romany Issues).
Time for the project: Point of departure Give voice to the Roma ´s : how does individuals expierences the interaction with healthcare in Sweden? Themes Experiences Accessibility Personal treatment Knowledge Special needs Thematic interviews: 28 persons (13 men, 15 women) Demarcated interview questions 20 persons (12 men, 8 women) 74 questionnaires In total: 94 persons (43 men, 51 women) with origin from 12 countries
Madeleine Leininger and Marilyn Mc Farland: ”Culture Care Theory” Religion and philosophical issues; kinship; political and legal factors; cultural presuppositions and values linked to class and gender.
The first gate; queue and communication What bothers me the most is that /…/ I’m in the phone queue and I’m disconnected. I phone back again and I’m told that “we cannot answer the phone right now”, because it’s full or something. So, I call and I call. That’s probably what bothers me the most. Otherwise, it is pretty okay at the reception that I usually go to; the receptionists and the doctors are really nice and helpful. It’s just the phone operators. I experienced a situation when I was at the health care center. I was in the waiting room when a 52, 53 year old man entered, and he started screaming at them because he had phoned several times. He couldn’t speak Swedish so he went to the reception and started speaking Hungarian. Since I speak Hungarian myself, I went over to try and help. He had to come down there because he had phoned but couldn’t speak enough Swedish, and they had hung up on him three to four times.
The food doesn’t taste of food, so to speak. There you have to trust a bit who has made it, and how it is cooked. /…/ Then you arrive at the hospital and the staff get a have their policy. No one should bring foo d i nto the hospital, and there I am with a bag. Then, they can get a bit annoyed. My mother brought food, and my cousins brought food. There was loads of food in my room! Then an older man came and asked about it. “Is it that many people who care”?…
No, it’s embarrassing… Competence is the most important… Sometimes I go to the hospital and I’m ashamed to tell a man that I’m in pain. I don’t want to talk to a man, but I don’t ask for a woman since I know they won’t give me one. On several occasions they have told me to undress, and I try to hide as much as possible. It’s embarrassing for a woman if I have to undress or something. - The most important thing is what education they have. That’s what’s most important to me. - The gynaecologist too? - Even the gynecologist. It doesn’t matter. My gynecologist is a man. The most important thing to me is my life, right? The most important thing is how I will feel after the examination.
Yes, you can talk to me first. The family as well, of course, if I allow it. Talk to the family first, because the doctor sometimes doesn’t think about that. He just comes in and says it [gives negative information] without feeling, or heart, and just tells it like it is and asks the secretary to dismiss you. He doesn’t relate to you with love or support, like a family does. If it happened to me, they should firstly talk to me, definitely. Then there could perhaps be a gathering of the family, but they should not talk to them first without my permission. You can’t talk to them first. That’s an intrusion of my privacy, and you can’t do that!
Before, they (the staff) got sort of scared, which I can understand. They have learned though that whenever a Romany person is in hospital there will be a lot of visitors. Then a guard normally comes by to check that everything is ok and calm. This is how we show our gratitude (to our loved ones). Even though I might be in the middle of a quarrel with him; if he’s in the hospital, I will turn up. It’s true that we shouldn’t turn up so many at the same time, but it’s because the one who’s sick should see how many people like him. Life is crappy but you get some support from your friends. If there was no one, you would give up. You’d be sad but you shouldn’t give up.
This one time, we sat and they started asking questions: the name of the baby, any diseases, how the baby is being raised. Then suddenly, they (the nurse) asked: are you Romany? Yes, it happens several times, they asking. I don’t know why. Are you Romany? So I said: Yes, why do you ask? As soon as they find out you’re Romany…you are met in a completely different way. You are always last, and even when you could get treated the same way everybody else is, you’re not. There’s no chance we will be treated (equally). So, those who think that there is no racism, no rejection are wrong. There is no way that we are respected and met like everybody else, no way. - Do you feel the difference when you are dressed in Romany clothes? - Oh yes, it’s a huge difference. I have never sought medical help wearing those clothes, I never would. /…/ No, no, if I wear my Romany clothes, I get worse service no matter what it concerns.
We got a room, and they did everything exactly as they were supposed to. It wasn’t that we didn’t get care, absolutely not”, but they were firm and dismissive. Compare Charles Darwin Wallace Friesen and Paul Ekman
I don’t know. It doesn’t seem possible. It could never work. I have never heard that any Romany woman or man could become a police officer, and I’ve even heard from friends that it’s prohibited for us to become police officers or doctors. Although there are different educations similar to being a doctor, isn’t there? If I could chose, I would like to become a pediatrician, but it’s too late. (young woman from Poland). If I worked in the hospital, I could not care for a Romany man. Any other man, but not a Romany. Help him to go to the bathroom and things? No, his own people would have to take care of that. It would be embarrassing, and they would talk. You never know. (Female originating in Serbia).
Explain differentlyTo answer questions I can’t complain about Swedish doctors, but sometimes they are unclear. With a foreign doctor it is sometimes easier to communicate. /… / They sometimes explain more calmly and clearly when they realize that I don’t understand. They explain differently until they see that I do understand. She was a specialist. You can tell straight away with that kind of person. /… / You can tell with that kind of person that they have an education. /… / She answered all the questions I asked her and explained everything to me.
I think this country should invest in heath care. The nurses deserve a better salary for all the work they do. They need to employ more people and encourage people to work in the healthcare system, like those already working to educate themselves. Also they need more doctors in the children’s accident and emergency; the doctor works at the women’s clinic as well. Why should there be only one? He has to run between both places, poor person. Employ more people and pay them what is needed. What do we need the City Tunnel for? You can cycle all around town in a half hour. What do we need the City Tunnel for when we could have invested the money in healthcare?