Patient- and Family-Centered Care Overview “An approach to the planning, delivery, and evaluation of health care that is grounded in mutually beneficial partnerships among health care providers, patients, and families.” *Partnering with Patients & families to Design a Patient- and Family-Centered Health Care System: A Roadmap for the Future. A Work in Progress *Institute for Patient- and Family- Centered Care Website www.familycenteredcare.org/tools/downloads.html
Patient- and Family-Centered Care Key Principles Dignity and Respect Meaningful Information Sharing Participation Collaboration * Partnering with Patients & families to Design a Patient- and Family-Centered Health Care System: A Roadmap for the Future. A Work in Progress *Institute for Patient- and Family- Centered Care Website www.familycenteredcare.org/tools/downloads.html The Institute of Medicine’s 2001 report, Crossing the Quality Chasm: A New Health System for the 21 st Century The Institute for Patient- and Family-Centered Care American Hospital Association The Joint Commission Resources The Advisory Board Company
Testimony “We have observed that in a growing number of instances where truly stunning levels of improvement have been achieved, organizations have asked patients & families to be directly involved in the process. And those organizations’ leaders often cite this change— putting patients in a position of real power and influence, using their wisdom & experience to redesign and improve care systems—as being the single most powerful transformational change in their history.” *Institute for Healthcare Improvement, Seven Leadership Leverage Points, 2008, page 17.
Find a Doctor who agrees with family-centered care practices. Express you intentions to your doctor. Help your doctor help you. Make sure you understand every test that is order. Make decision together always with the best interest of your child in mind.
What can I do to help my child? Please tell me the whole truth of the situation, even if it uncomfortable? I do not understand medical talk, can you please explain it to me in a way I can understand? Who are you? And what role do you play in my child’s health care team? Please let me tell you about our situation, so you can try to understand us as a family? Adapted from: http://www.childrenswishingwell.org/5-questions-every-nicu-parent-should-ask/