Maximize Relief With Optimal Service Education Counseling Care Management Support Groups Respite Care In-home Day Care Residential
Maximize Effectiveness with Optimal Dosage Quantity Frequency Timing
The caregiving career is a process of identity change Wife to Caregiver Husband to Caregiver Daughter to Caregiver Son to Caregiver Friend to Caregiver
An optimal change process: Continuous - not abrupt Accelerates the period between self identification (#2) and seeking service (4) Lengthens the period between seeking service (#4) and nursing home placement (#6)
Optimal supports facilitate identity shift Teach caregivers about the caregiving role Inform caregivers about options for care behaviors Inform caregivers about options for supports Teach caregivers to use supports
Education Programs Children: –Disease Process –Community Based Services –Legal and financial information Spouses –Coping skills –Behavior management –In-home supports
Support Groups Children –Extending support network –Knowledge of community services –More easily attend if offered at the right time of day Spouses –Changes in marital relationships –Encourage seeking and using supports –Options for respite care –Coping with grief and guilt –Self care –Often need transportation and respite care to attend
Three Patterns of Respite Use Brief use: 2 months or fewer Average Users ( 9 to 12 months) Long Term Users (18 or more months)
Brief Users comprise 30% of Clients families who seek services that do not meet their need Dissatisfied Consumers
Brief Users Cost Money Add to turnover Increase need for marketing efforts Increase staff time Take up spaces that others could benefit from
Day Care Best for clients with –limited disabilities –who are non-aggressive –who do not engage in problem behaviors Well used by minority groups when –appropriately targeted –appropriately marketed Not easily used when care needs are high Preferred by working caregivers when –Hours match work schedules –Available daily
In-Home Respite Most Used Recipient resides with Caregiver Most impaired clients White Caregiver is a Spouse
Implications for Providers Not all services meet the needs of all people. Day Care programs can reduce the number of brief users by Appropriate marketing Relating clear expectations to clients In-home programs best when they are staffed by paid staff who can provide personal care and Assist with health needs.
Implications for Delivery of Services Identify the “Serviceable Moment” clear expectations respect flexibility Communicate
Remember the client is the family Support means help for the caregiver that is more valuable than the cost of using the service.
Reference RJV Montgomery & K.D. Kosloski, “ Change, Continuity and Diversity Among Caregivers” http://www.aoa.gov