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1 Patient and public involvement in clinical audit Kim Rezel – PPI lead, HQIP

2 PPI at HQIP Representatives from National Voices and the Royal colleges Found members from local organisations Word of mouth Social media

3 The Service User Network Meet four times a year Advisory group Initiate ideas in PPI and clinical audit Eg – How to develop a patient friendly clinical audit report Monitor the development of HQIP resources Eg – Involved in working group for online learning tools Participate in HQIP managed programmes Eg – Active steering group members of CORP, COP, NJR

4 Logo and picture Graphs and images here Is your graph readable to your audience? Would summary lines of text work better?

5 PPI pages

6 How to – patient friendly clinical audit report The SUN wanted HQIP to help the national audit teams present their results in a less complicated and more engaging way A working group developed the short guide, benefitting from SUN consultation throughout the whole process. Two case studies were used: National Joint Registry who had recently completed their first public and patient guidetheir first public and patient guide Diabetes UK who were about to embark on the development of their first patient-friendly report.first patient-friendly report

7 Why is it important to patients? The reports allow patients access to data and information about the treatment they may receive It empowers patients to ask questions about the care they should receive, the benefits and risks Patients can use the reports to make comparisons between standards of care The reports can provide patients with greater knowledge and give them more control over their own care

8 How to – patient friendly clinical audit report The results provide vital data, information and analysis relating to how care meets current standards and identifies areas for improvement. For example: STANDARD All people living with diabetes should receive nine healthcare checks each year THE CLINICAL AUDIT 2.15 million diabetes patients records were examined in 83% of GP practices in England THE RESULTS 54% of patients had received all nine checks

9 Group discussion Do you have examples of PPI in clinical audit? What are the benefits to having patients and public involved in clinical audit? What does effective PPI look like? What do you need to do to achieve this in your own organisation? Does your organisation have the aspiration and resources to support PPI? To what level? What are the barriers? How can you overcome these?

10 Benefits Patient perspective Responsive to local needs Organisational buy-in Data collecting Project continuation Improved outcomes

11 Recruiting lay memberss Patient information Posters, fliers, leaflets Open day Presentations

12 How? Clinical audit patient panels Volunteers Local groups National charities

13 Action plan to create a patient panel

14 Training for patients

15 Barriers Culture Resources Finance Staff Expertise Clinical leadership Board support -NED & ED

16 Fighting off barriers with... Sticks Legal obligations Strategy and policy New NHS structure – CCGs – HWBs – HealthWatch NEDs Carrots Identify clinical champion(s) Patient stories Clinicians stories Case studies NEDs

17 Does it make a difference? Staley (2009) conducted review of 89 published research studies that actively involved the public in health and social care research internationally and identified a number of impacts: improving the research design and relevancy of research questions helping researchers develop ethically acceptable research improving recruitment and response rates enhancing the collection and analysis of data enhancing dissemination of findings in an accessible way to the general public Alan Simpson Professor of Collaborative Mental Health Nursing School of Health Sciences, City University London

18 Case studies

19 Changing Our Lives - quote “When services have such a profound influence on the way people experience significant periods of their lives it is only right they have a real influence in shaping how these services are run.” Black Country Partnership Foundation NHS Trust

20 WWL - quote “When I attended my first audit meeting and learned that at my hospital they couldn’t reach the standards of a national audit as we didn’t have a piece of equipment and the board wouldn’t agree to purchase it, I became involved in the project and the Board had some explaining to do. We now have the correct equipment and re-audit shows that we meet the national standards. Patient Power Rules.” Wrightington, Wigan and Leigh NHS Foundation Trust – Lay audit member

21 Thank you Kim Rezel – 020 7469 2511

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