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1 Joint DG INFSO ICT for Inclusion & JRC IPTS Information Society Workshop on: Long-term care challenges in an ageing society: the role of ICT and migrants.

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Presentation on theme: "1 Joint DG INFSO ICT for Inclusion & JRC IPTS Information Society Workshop on: Long-term care challenges in an ageing society: the role of ICT and migrants."— Presentation transcript:

1 1 Joint DG INFSO ICT for Inclusion & JRC IPTS Information Society Workshop on: Long-term care challenges in an ageing society: the role of ICT and migrants Brussels, 19 th January 2010 Results from a cross-country comparison on Germany, Italy, Spain and the UK Stefano Kluzer, JRC–IPTS Information Society Unit Joint Research Centre (JRC) Institute for Prospective Technological Studies The European Commission´ s Research-Based Policy Support Organisation

2 2  Research challenges  Informal caregivers  ICT use in LTC at home  Barriers to ICT opportunities for informal caregivers  Suggestions for action Content of presentation

3 3  Long-term care (LTC) = informal & socio-cultural specific activities Lack of common definitions (scope / content) -> OECD pilot Lack of data (general / comparable)  ICT-specific in LTC Recent, still limited diffusion -> limited information beyond experts Few studies (Empirica)  Migrant-specific Comparable statistics in EU under development Informal work -> limited coverage by labour/employment surveys Undocumented status -> lack of data + difficult to interview migrants Exploratory research + caution on conclusions !!! Research challenges

4 4  Desk-based analysis of reports and statistics -> LTC provision, organization and ICT-related policies + migrant labour in LTC sector  Web searches and interviews with key informants -> ICT-based initiatives and services for LTC at home  in DE, IT and ES, tot. 40 informal migrant caregivers interviewed about their knowledge, use and expectations regarding ICT in care work Research method

5 5 IPTS Formal contract/ social security Payment Recognised nursing qualif. / certification Documented (if migrant) OECD* Formal long-term care workers Care workers Yessalary/payYes Practicing nurses Yessalary/payNoYes Personal care workers Informal caregivers Carers No Yes /No Uncompensated informal caregivers No benefits / allowance NoYes Compensated informal caregivers Informal care assistants Nosalary/payYes /NoYes Undeclared caregivers Nosalary/payNo Undocumented migrants * See (Fujisawa & Colombo, 2009) Caregivers definitions  Migrants in any category: as paid caregivers in all countries; as carers in DE and UK

6 6 Informal caregivers play a crucial in LTC How people in need are cared forMigrant paid caregivers DE 2007 - 44% exclusively family members 50-100,000 100,000 (illegally employed alone) IT 2003 - 90% by family members 740,000 in 2006 (42% undoc; 25% doc/ no contract; 33% doc + job contract) ES 2004 - 75% exclusively informal care 200,000 - 600,000 UK 2001 Almost 6M carers (11% of pop.) 4.4M of working age Few migrant ‘grey labour’ in 2001, > 10% care workers from BME groups in 2006, 16% of 650,000 care workers born abroad (London -> 68%)  Key features of migrant paid caregivers: Significant numbers in all 4 countries Almost only women (informal care assistants) Different migration projects, residence and work contractual status High vulnerability, reflecting low rights (informal care assistants)

7 7 Challenging work/life conditions Critical conditions Needs Time devoted to care (up to 24/7) Balance work and caring functions Coordinate with service providers and professionals Remote access to basic services (shop, bank etc.) Socialization and isolation -> emotional stress Communication with others Share emotions and experiences with other caregivers Specialized support Limited experience and skills Information, training and other support -> manage medical/care aspects: esp. emergency situations, but also everyday tasks (complex with 80+ care recipients) Limited knowledge of services and support opportunities (including technology-related) Available and fast access to information and guidance Sensitive personal information (themselves and recipients) Guarantee adequate security and privacy

8 8 Additional challenges for migrant caregivers Critical conditions Needs Time devoted to care (up to 24/7) Balance work and caring functions Coordinate with service providers and professionals Remote access to basic services (shop, bank etc.) Socialization and isolation -> emotional stress Communication with others Share emotions and experiences with other caregivers Specialized support Limited experience and skills Information, training and other support -> manage medical/care aspects: esp. emergency situations, but also everyday tasks (complex with 80+ care recipients) Limited knowledge of services and support opportunities (including technology-related) Available and fast access to information and guidance Sensitive personal information (themselves and recipients) Guarantee adequate security and privacy - lack social support network - intercultural and language barriers - lack basic understanding of care context (players, rules etc.) - due to work/residence status -> invisible + difficult access to training, support etc. Esp. newly arrived and from ‘culture-linguistically distant’ countries

9 9 Policies pay still limited attention to informal caregivers  LTC policy and informal caregivers (carers) Formally acknowledged, but focus mostly on financial measures UK has established and articulated measures (and robust data on carers)  ICT policies for LTC UK: coherent national strategy / carers’ multiple needs considered DE, ES and IT: no national strategy / carers “play –if at all- a minor role”  Carers movements UK: long-established and effective -> (national level) lobbying, research, information; (local level) carers’ centres, services and support DE: first national carers association Wir pflegen in March 2008

10 10 Cared person Care worker Doctors Healthcare professionals Care organizations Carer Carers Voluntary groups Carers assoc. Informa l care assistant Info&servic e providers Informa l care assistant Actors in LTC delivery at home

11 11 Situation of ICT in LTC at home Cared person Care worker Doctors Healthcare professionals Care organizations Mainstream: social alarms + assistive tech. Pilots: Telecare/Telehealth Carer Carers Voluntary groups Carers assoc. Informa l care assistant Info&servic e providers Informa l care assistant

12 12 Situation of ICT in LTC at home Cared person Care worker Doctors Healthcare professionals Care organizations Mainstream: social alarms + assistive tech. Pilots: Telecare/Telehealth Mainstream: mobile phones, PCs, e- mail, websites … GPS Carer Carers Voluntary groups Carers assoc. Informa l care assistant Info&servic e providers Informa l care assistant Communication & Coordination Emergency mgt On the job support

13 13 Situation of ICT in LTC at home Cared person Care worker Doctors Healthcare professionals Care organizations Mainstream: social alarms + assistive tech. Pilots: Telecare/Telehealth Mainstream: mobile phones, PCs, e- mail, websites … GPS Carer Carers Voluntary groups Carers assoc. Informa l care assistant Info&servic e providers Informa l care assistant Emerging Communication & Coordination Emergency mgt On the job support Emerging

14 14 Situation of ICT in LTC at home Cared person Care worker Doctors Healthcare professionals Care organizations Mainstream: social alarms + assistive tech. Pilots: Telecare/Telehealth Mainstream: mobile phones, PCs, e- mail, websites … GPS Carer Carers Voluntary groups Carers assoc. Informa l care assistant Info&servic e providers Informa l care assistant Emerging Info & guidance Help lines Training Mainstream: phone-based and web initiatives Peer support Info & guidance Help lines Training Communication & Coordination Emergency mgt On the job support Emerging

15 15 Situation of ICT in LTC at home Cared person Care worker Doctors Healthcare professionals Care organizations Mainstream: social alarms + assistive tech. Pilots: Telecare/Telehealth Mainstream: mobile phones, PCs, e- mail, websites … GPS Carer Carers Voluntary groups Carers assoc. Informa l care assistant Info&servic e providers Informa l care assistant Emerging Info & guidance Help lines Training Mainstream: phone-based and web initiatives Peer support Info & guidance Help lines Training Communication & Coordination Emergency mgt On the job support Emerging

16 16 Cared person Care worker Doctors Healthcare professionals Care organizations Carer Carers Voluntary groups Carers assoc. Informa l care assistant Examples of ICT for informal caregivers LifeSensor (DE) Info&servic e providers

17 17 Cared person Care worker Doctors Healthcare professionals Care organizations Carer Carers Voluntary groups Carers assoc. Informa l care assistant Examples of ICT for informal caregivers LifeSensor (DE) Information & guidance - Carers Direct Helpline (UK) - Nottingham (assistive tech) Training - Sercuidador (ES) - Caring with confidence (UK) Info&servic e providers

18 18 Cared person Care worker Doctors Healthcare professionals Care organizations Carer Carers Voluntary groups Carers assoc. Informa l care assistant Examples of ICT for informal caregivers LifeSensor (DE) Info – mutual help - Carers UK - Un cuidador, 2 vidas (ES) - SEKIS (Berlin, DE) Information & guidance - Carers Direct Helpline (UK) - Nottingham (assistive tech) Training - Sercuidador (ES) - Caring with confidence (UK) Info&servic e providers

19 19 Cared person Care worker Doctors Healthcare professionals Care organizations Carer Carers Voluntary groups Carers assoc. Informa l care assistant Examples of ICT for informal caregivers LifeSensor (DE) Info – mutual help - Carers UK - Un cuidador, 2 vidas (ES) - SEKIS (Berlin, DE) Online community - Cuidadoras en Red (ES) Training - Aspasia (IT) Information & guidance - Carers Direct Helpline (UK) - Nottingham (assistive tech) Training - Sercuidador (ES) - Caring with confidence (UK) Info&servic e providers

20 20 ICT can improve Quality of Care Communication Coordination Collaboration Information Training Private life social integration Working conditions health & wellbeing Opportunities ICT in LTC policies migrant specific Barriers Not targeted at carers → Carers’ needs overlooked Lack of knowledge & awareness Few initiatives Use of ICT Privacy/security fears ICT skills: level & match ICT access restrictions at work Limited availability of ICT Technical barriers Language barrier Residence status -> barrier/incentive Large migrant communities with ageing members High ICT use/motivation by migrants Opportunities and barriers for informal caregivers

21 21 migrant specific Use of ICT ICT in LTC policies Breaking Barriers & Seizing Opportunities carers’ needs knowledge & awareness few initiatives privacy/security fears skills: level & match access availability technology language barriers incentive to use ICT Digital inclusion measures: targeted and focused Mother tongue/multilingual - information - (vocational) training - online social networks ICT for language learning Adapt ICT for LTC devices: icon-based/multilingual Awareness raising: - carers’ needs - ICT opportunities - ICT impact Privacy & trust-building solutions

22 22 Thank you !!! s.kluzer@gmail.com


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