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INTRODUCING THE GLOBAL SPINAL CORD INJURY CONSUMER NETWORK Jane Horsewell President ESCIF ISCoS, Istanbul, 2013 WWW.GLOBALSCI.NET.

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Presentation on theme: "INTRODUCING THE GLOBAL SPINAL CORD INJURY CONSUMER NETWORK Jane Horsewell President ESCIF ISCoS, Istanbul, 2013 WWW.GLOBALSCI.NET."— Presentation transcript:

1 INTRODUCING THE GLOBAL SPINAL CORD INJURY CONSUMER NETWORK Jane Horsewell President ESCIF ISCoS, Istanbul, 2013

2 o To establish an active global network of consumer groups and organisations of people living with spinal cord injury o To learn from each other, sharing experience and knowledge o To impact the SCI agenda worldwide Why this initiative?

3 o “Developed world”: people living with SCI have formed national self-advocacy organisations, but with limited inter- group collaboration o “Developing world”: national groups are less common, although there are many small group initiatives often led by charity organisations or NGOs Current global situation

4 o To promote the development of SCI consumer groups and organisations in countries where resources are limited o To promote collaborations between organisations in resource-strong countries Challenges … and there are many

5 o To encourage cross-national / world regional collaborations by providing opportunities to meet and discuss Challenges cont. o To encourage cross-national / world regional collaborations by providing opportunities to meet and discuss o To encourage cross-national / world regional collaborations by providing opportunities to meet and discuss

6 The journey so far …

7 The journey so far … In 2012 we held the official launch of the Global SCI Consumer Network at the ISCoS meeting in London, UK.

8 We have formed three working groups o Future organisation of the network o Fundraising and sponsorship o Development of the website Since the launch...

9 At the ASCoN meeting in November 2012 Shivjeet Singh Raghaw was appointed Chairman of the Consumer Committee. Federico Montero has worked to establish contacts in Latin America. Since the launch...

10 o The working groups must present concrete proposals regarding their areas of responsibility by mid-2014 o The Ambassadors in Asia, North America and Latin America should draw up key points for the SCI agenda in their region by mid-2014 o All Ambassadors should start to plan for the meetings in The Netherlands 2014, Canada 2015 and Brazil 2016 Proposals for next steps...

11 o To further collaboration between SCI consumer groups worldwide o To collaborate with SCI professionals on SCI issues including management, research, prevention, education o To work with all stakeholders in the SCI community to improve quality of life of people living with a spinal cord injury We must not forget collaboration


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