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Ethan Hayes & Kaylin Shampo. What is Advocacy?  Advocacy is arguing in favor of something, such as a cause, idea, or policy.  Advocacy occurs when an.

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Presentation on theme: "Ethan Hayes & Kaylin Shampo. What is Advocacy?  Advocacy is arguing in favor of something, such as a cause, idea, or policy.  Advocacy occurs when an."— Presentation transcript:

1 Ethan Hayes & Kaylin Shampo

2 What is Advocacy?  Advocacy is arguing in favor of something, such as a cause, idea, or policy.  Advocacy occurs when an individual engages in dialogue about an issue they care about. It can occur in many forms - - speaking out, letter writing, protesting, voting, and even wearing a t-shirt that makes a statement.

3 3 Major Types of Advocacy  Individual  Systems  Grassroots

4 Advocacy Defined  Individual: Teaching individuals how to communicate to obtain necessary support services from the community, as well as providing advocacy services.  Systems: Directly advocating for changes in the local, state, and federal systems that impact people with disabilities.  Grassroots: Groups made up of every day citizens who want to take action to solve issues facing their community.

5 Individual Advocacy  Help people learn how to speak for themselves  Build skills and self-esteem to enable individuals to ask for what they need  Develop skills so persons with disabilities can impact local, state, and national disability policies

6 Examples of Individual Advocacy  Work with a consumer on a plan to become their own payee  Help an individual who feels they no longer need a guardian  Work with a parent to help regain custody of their children who were put in the foster care system during a time of mental health crisis

7 Discussion  What types of individual advocacy have you done?  What are some of the barriers to successful advocacy at the individual level?  What would you like to learn about individual advocacy?  How can an ILC improve the quantity and quality of individual advocacy?

8 Systems Advocacy  ILC’s work in collaboration with other service organizations, people with disabilities (PWD), and the community to influence change at the local, state, and federal levels.  ILC’s recognize the importance of PWD playing a role in policy making. ILC’s work hard to get PWD involved and to get them to vote.  ILC’s have well developed relationships with federal and state legislators and local governmental representatives.

9 Examples of Systems Advocacy  Lack of dental care for persons on MA  Lack of housing and resources for persons who are homeless  Guarantee consumer involvement in long-term care redesign  Mental Health Parity

10 Discussion  What types of systems advocacy have you done?  What are some of the barriers you have experienced with systems advocacy?  How can our centers be more involved with systems advocacy?

11 Grassroots Advocacy  Work with local community members to identify local issues most important to its members and communities.  Address issues in a number of ways, including educating the public and policy makers, building community partnerships, and drawing media support for issues facing the community.  Educate and empower local citizens on important policy matters.

12 Examples of Grassroots Advocacy  A local group getting their city to install curb cuts.  Attending rallies and events that support policy changes that assist people with disabilities.  Collaborating with individuals in power to address issues in direct ways.

13 Discussion  What types of grassroots advocacy have you done or seen done at your center?  What are some of the potential barriers to successful grassroots advocacy?  How can IL staff educate and encourage consumers to get involved with grassroots activities and groups?

14 How to Pitch Advocacy to Consumers  Identify possible areas of interest that consumer might feel strongly enough about to take a stand.  Carry LOTS of brochures outlining the advocacy opportunities at your ILC and how they can get involved.

15 Signs of Successful Advocacy  Group has created clear, measurable goals.  Participation by a variety of different members of the community – people with and without disabilities.  Extensive knowledge of whom you are trying to reach and what moves them.  Compelling messages that connect with your target audience.  Additional signs of successful advocacy?

16 Signs of Faltering Advocacy  Lack of agreement on goals and issues that need attention.  Insufficient interest regarding specific issues that are trying to be worked on.  Lack of participation and follow through.  Poor communication.  Other signs of faltering advocacy?

17 Barriers to Advocacy  What are some of the real and perceived barriers to creating and sustaining strong advocacy?

18 Fee-For-Service as a Barrier to Advocacy  When doing fee-for-service work for another agency it can be easy to forget that our responsibility is to advocate for the consumer.  If a consumer is having difficulty with an agency or accessing a service they need, it is our job to advocate for them, and help them learn how to advocate for themselves!  Examples of this barrier in your experience?

19 Sharing Consumer Stories  You don’t need to be an expert to be an advocate, you just need to tell your story or the story of someone you have worked with, effectively   Real stories change hearts and minds—use yours to illustrate the need for services for people with disabilities   Your story is always right   Your lived experience has value and meaning   You don’t have to have all the answers—just a clear “ask”

20 Tips for Telling A Powerful Story Legislators are not therapists…  Keep your story brief (aim for a minute or two—or even less)  Illustrate a point  Make a clear “ask” Remember that positive concepts like hope and recovery are powerful motivators

21 Practice Telling A Consumer Story!  Partner up with someone and take a few minutes to tell each other a powerful story you know about a consumer you have worked with.  Try to think of a story that would motivate a legislator to take action.  Remember to keep it concise and to the point!

22 Resources  National Alliance on Mental Illness (Nami),Telling Your Story; n=tools_for_leaders


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