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MOTOROLA and the Stylized M Logo are registered in the US Patent & Trademark Office. All other product or service names are the property of their respective owners. © Motorola, Inc José C. Lacal Senior Manager; Seamless Health Research IEEE-SA Study Group “Personalized Health Informatics” – PAR Proposal
MOTOROLA and the Stylized M Logo are registered in the US Patent & Trademark Office. All other product or service names are the property of their respective owners. © Motorola, Inc Frame: “Health” vs. “Healthcare”..students of medical economics have long realized that what consumers demand when they purchase medical services are not these services per se but rather better health. Throughout this paper I refer to “health IT” standards, as opposed to “healthcare IT” standards. The difference is huge, in my opinion: “Healthcare” refers to the current paradigm of provider-based, illness-centric services. “Health IT” is a broader term that may or not include a provider, and where the main focus is health maintenance and promotion at the individual level. There are a plethora of healthcare IT standards already in place, and many more are under development. So much so that a recent project tracks all of those standards via a “map” of sort, the Health Care Standards Landscape. Significantly all of those (current and proposed) standards are provider- centric; that is, they place the healthcare provider (physician, clinic or hospital) at the center of and as the host of such healthcare IT systems.
MOTOROLA and the Stylized M Logo are registered in the US Patent & Trademark Office. All other product or service names are the property of their respective owners. © Motorola, Inc Frame: “Fix” vs. “Maintain and Enhance” The current healthcare paradigm is mostly focused on “fixing” the individual once she presents symptoms of an illness or health condition. Once a health condition has manifested itself, the available opportunities for cost-savings are very limited, and the damage to the individual’s health is mostly done. Contrary to the prevailing paradigm, I advance the idea of patient-centric, family-driven health maintenance and enhancement. A framework is outlined for standards to enable Personalized Health Informatics (“PHI”). This is not about healthcare; this is about enhancing individuals’ and families’ health. And, as a direct consequence, society’s health.
MOTOROLA and the Stylized M Logo are registered in the US Patent & Trademark Office. All other product or service names are the property of their respective owners. © Motorola, Inc Personalized Health Informatics Definition: Comprehensive set of Internet-based tools that place the individual (and his/her dependents) at the center of an encompassing architecture of services that promote and enhance health. There is a need for PHI systems to manage all the relationships that influence an individual’s health. The end goal for the proposed PHI standards is to facilitate a world of consumer-mandated demand for data to be posted to her own health-related record. Using the analogy of credit card adoption rates: PHI standards will allow consumers to demand that providers deliver their data to the consumer’s health record. “If you are not PHI-enabled, I will not use your services.” Clear, open, and widely-adopted standards will make this “PHI enabled” sign as ubiquitous as the “We accept Visa, MC, Discover” signs at merchants. IEEE can lead this effort.
MOTOROLA and the Stylized M Logo are registered in the US Patent & Trademark Office. All other product or service names are the property of their respective owners. © Motorola, Inc Considerations Identified need for standard? Yes. Bring health IT to consumers in parallel to many activities trying to bring healthcare IT to providers Stakeholders, benefits them? Consumers; patient rights’ organizations (CF, autism); consumer orgs.; CDC; Public Health agencies; WHO; USAid Area already covered, SDOs? Little known activities starting with and centered on consumer. Could IEEE provide expertise? Yes. Institutional (EMBS; networking; security; privacy); Individual (300K technically competent consumers of health services) Relate w/ standards activities. Yes. Integrates with and leverages all existing provider- centric standards “Critical mass, ” willing SMEs Probably.
MOTOROLA and the Stylized M Logo are registered in the US Patent & Trademark Office. All other product or service names are the property of their respective owners. © Motorola, Inc Next Steps 01 - Determine areas * Consumer-centered health information analysis, distribution and storage. * Reference design PHI system (GPL) * Promote F/OSS systems * Disability perspective * Focus on LDCs 02 - Determine leader Jose C. Lacal, Motorola 03 - Determine title, scope Standards for Personalized Health Informatics (711.xx family of standards) 04 - Find support Working on it Identify willing sponsors Approached EMBS already Complete PAR Draft available for comments Submit PAR
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