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Eden Parris Advocacy Coordinator Communication Rights Australia.

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Presentation on theme: "Eden Parris Advocacy Coordinator Communication Rights Australia."— Presentation transcript:

1 Eden Parris Advocacy Coordinator Communication Rights Australia

2 Formerly CAUS Advocacy and information for people with little or no speech Statistics: 730,000 Victorians who have a communication disability Communication Disability often listed secondary

3 Purpose of Session There has been much discussion in recent years about a human rights-based approach to advocacy. What are some practical ways we can incorporate human rights legislation into our advocacy, so that people with disabilities can experience greater justice in their lives?

4 We are going to explore the WHY and the HOW

5 WHY use human rights legislation? 1. To achieve a just OUTCOME Advocacy often operates in the grey area between persuasion and compulsion. Advocacy often follows a series of ‘escalating’ steps: 1. Phone calls/ s 2. Letters 3. Meetings 4. Complaint 5. Tribunals, Disability Services Commissioner 6. Media 7. Minister

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8 Using human rights: Builds in the compulsion at the early stages of advocacy ( s, calls, letters, meetings). It increases your leverage early on. It is all about getting the result and using a method that does not rely on emotion or criticism but which builds respect dignity into the process

9 WHY use human rights legislation? 2. To Educate and Achieve Systemic Change as we go The Historical Shift described by the UN: The Convention follows decades of work by the United Nations to change attitudes and approaches to persons with disabilities. It takes to a new height the movement from viewing persons with disabilities as "objects" of charity, medical treatment and social protection towards viewing persons with disabilities as "subjects" with rights, who are capable of claiming those rights and making decisions for their lives based on their free and informed consent as well as being active members of society (UN ENABLE) If we want our work as advocates to have a social development dimension then we should embed human rights into our advocacy practice so that we can be part of this historical movement.

10 HOW? – the ‘nuts and bolts’ 1. FRAME YOUR ADVOCACY CASE IN TERMS OF HUMAN RIGHTS What human rights? Not enough to say “human rights.” Not enough to say just ‘Freedom Respect Equality Dignity’. Risks of oversimplification. CRA developed a database that enables us to frame advocacy cases in terms of particular human rights Note: If you can’t frame your case in terms of an infringement of human rights or policy it may not be an advocacy request (vs case management)

11 Actual documents 1. United Nations Convention on the Rights of Persons with Disabilities 2. Victorian Charter of Human Rights and Responsibilities 3. UN Convention on the Rights of the Child 4. Universal Declaration of Human Rights 5. Disability Act 6. State Disability Plan 7. Disability Standards (DHS) 8. Disability Discrimination Act 9. Disability Standards for Education

12 Examples of Rights include: Freedom of expression Freedom of movement Access to Justice Right to be free from exploitation or abuse Right to family Right to adequate standard of living Right to Education Right to Privacy Right to be included in the community Right to Health

13 1. Framing your case Example Greg Jones is aged 62, in nursing home, muscular dystrophy, barely getting outside. Wants to get a motor scooter to visit shops and river Opposition from family, nursing home, no case manager Concerns about finances and safety ‘we know what’s best for him’

14 STEP 1: FRAME YOUR ADVOCACY GOAL AS AN ACHIEVABLE SENTENCE WITH A DATE “FOR GREG JONES TO BE ACCESSING HIS LOCAL COMMUNITY AT LEAST TWICE WEEKLY ON A MOTOR SCOOTER WITH APPROPRIATE SUPPORT BY JULY ” STEP 2. NOMINATE THE HUMAN RIGHTS THAT MAY BE BEING BREACHED: Freedom of Movement Right to Mobility Right to access community

15 STEP 3: NOMINATE THE ACTUAL SECTIONS THAT RELATE TO THESE RIGHTS So it is not just - Freedom of Movement But Freedom of Movement – s12 Vic Charter, Art. 18 UNCRPD Have a ready means of accessing the UNCRPD and the Vic Charter At Communication Rights Australia we have broken them down into Word Documents for Easy Access on our system

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17 Example 2 Christine James is in Year 7 at a mainstream high school. She has autism and very little speech. She communicates using an AAC device which she uses independently after it is set up and she is encouraged to use it. Independent testing has confirmed her to be mid to high range IQ. Christine’s parents have discovered that her device is not being taken out of her school bag by her teacher’s aide, and that Christine is being given colouring in during Maths and Science. Recently the vice principal has suggested to Mrs James that Christine would be better suited to a special school. They approach your organisation for advocacy.

18 Christine’s AAC Device

19 1. Frame Advocacy Goal “For Christine James to remain at mainstream high school and to be using her communication device in all classes with the support of appropriately trained aides by 1 June 2012” 2. Nominate Human Rights and relevant Sections Right to Communicate – Vic Charter s15(2), UNCRPD Art 21 Right to Education – UNCRPD Art 24

20 Commence your advocacy 1. s and Phone calls “Dear [Integration Coordinator] Communication Rights Australia is a government funded advocacy service for people with little or no speech. We have been invited by the parents of Christine James (Year 7) to attend the upcoming Student Support Group Meeting on 3 April This is to confirm our attendance at the meeting. It is our hope that issues to do with Christine’s right to inclusive education and her right to communicate in the classroom will be able to be resolved and the training of teacher’s aides in using her device will commence.”

21 s and phonecalls (cont.) Polite but firm Mentioning the specific rights i.e. “right to communicate” Not mentioning the sections or legislation (don’t go overboard at this stage) Note: strategy would be to get the parents to request this as an agenda item which you speak to

22 Attending meetings Have relevant human rights legislation and sections printed out and highlighted for your reference Introduce the topic – people may not be aware Read the section out REFRAME conversation from ‘problem’ to ‘rights’ Have a couple of excerpts ready to hand out (see next slide for example) Don’t forget to lead into your concrete request i.e. a) For a communications book to be completed every class, recording how the Christine’s communications device was used b) For an agreement that Christine’s two teacher’s aides will receive fortnightly training sessions for 3 months in using her communications device

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24 Writing Letters Key area to incorporate human rights Once again – moral force, power of trump card Trumps what? Resources argument (give eg), outdated practices Remember: Human Rights are inherent to each individual Human Rights are individual Human Rights are indisputable Human Rights are inseparable Should be straightforward if you have already framed your case in terms of human rights sections. You’ve already done your research.

25 COMPONENTS OF LETTER 1. To Whom 2. Importance of Title – reference specific rights (to communicate you are serious and to generate concern and urgency) 3. Introduction to your concerns and reference rights 4. Summary of facts 5. Excerpts from Human Rights legislation 6. Finish by stating what you want done 7. Request a response within X days Note on length: Use appendices if necessary

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29 Complaints Mechanisms Disability Services Commissioner Tribunals (AHRC, VEOHRC, Health Services Commissioner, VCAT) Ombudsman Court Continue to use specific human rights sections. Will get varying levels of interest depending on forum Using specific human rights strengthen your argument

30 Minister, Media Continue to use specific human rights sections. Will strengthen your argument

31 Questions?

32 Links UNCRPD Victorian Charter ACT: Summary with sections and click ‘Charter Rights’ Communication Rights Australia


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