COUNCIL OF INTELLECTUAL DISABILITY AGENCIES WWW.CIDA.ORG.AU
Peak body representing non- government, not-for-profit agencies which provide services to Victorians with intellectual disabilities. Established in 1954 100 members throughout Victoria
The services we establish both reflect and confirm society’s belief at the time about what ‘they’ need and deserve. Managing for Inclusion, Scottish Human Services
SHIFT FROM EMPHASIS ON NEEDS TO EMPHASIS ON RIGHTS AND REQUIREMENTS FOR EXERCISING RIGHTS. HUMAN RIGHTS NOT SPECIAL NEEDS SHIFT TO EMPHASIS ON CHANGING SOCIETY NOT SIMPLY ADAPTING/ADJUSTING THE INDIVIDUAL FROM COMMUNITY PRESENCE TO COMMUNITY INCLUSION
ACCESS TO GENERIC SERVICES, FACILITIES, ENTITLEMENTS RE-SHAPE GENERIC SERVICES / FACILITIES TO REFLECT COMMUNITY DIVERSITY WHOLE OF GOVERNMENT / WHOLE OF COMMUNITY APPROACH
SHIFT MINDSET FROM PROVISION OF SERVICES TO PROVISION OF SUPPORT TO LIVE ‘REAL’ LIVES CHOICE ABOUT THE KIND OF LIFE A PERSON WANTS AND THE KINDS OF SUPPORT THEY WANT
REAL LIVES INCLUDE: ‘…Living in a house in a street, being known by the neighbours or the person in the corner shop, having people visit, going to concerts, taking a trip on a canal boat, visiting restaurants.’ Kellaway and Burton
IMPORTANCE OF COMMUNITY Reciprocity, belonging and being important to someone are perhaps the things that help us to be fully human. It is difficult to see how these can exist if people are isolated and segregated. Our work…emphasises the centrality of assisting people to lead real lives in real communities. Kellaway and Burton.
SOCIAL NETWORKS Information on 500 adults with intellectual disability receiving different types of residential support Median size of social networks (excluding staff) - 2 Professor Eric Emerson and colleagues, UK
CHANGING ROLE FOR SPECIALIST SERVICES From programs to person centred planning and individualised suites of support From overcoming individual deficits to supporting quality of life and inclusion From providers of programs to agents of social change and community developers / connectors / bridge builders More flexible Changes in funding
FROM MAKE BELIEVE TO THE REAL WORLD ‘We are on a journey: from the artificial world we have created for people with learning [intellectual] disabilities towards the real world where we dream of supporting them in ordinary lives in inclusive communities.’ Changing Days Project
‘ We have become quite sophisticated in helping people with daily living skills but have given a great deal more attention to bed making and budgeting than befriending. We are helping people to be competent but they are still alone.’ Changing Days Project
From tourists to participants in community: ‘We need to create opportunities for relationships not just activities. Shopping malls are great places to observe people but not great places for meeting people ’ Changing Days Project
Where are we now? Most people go to a day centre Centres have changed over the years they now support people to do things in the community but people still spend a lot of time in centres and travelling to them.
What would we expect in a modern day service? Small, local bases More work opportunities More one to one support for joining in community activities Ways for people of all ages to get into learning and training
Things to get good at... Building social supports around people Planning ‘with’ people not ‘for’ them Identifying and developing ‘natural supports’ Working with other people in the community
10 flats, each in walking distance of the others. Each person is the ordinary tenant of their own flat – may choose to share with friends.
Kim, a KeyRing Network resident, welcomes visitors to her flat in Bristol.
The new direction NOW People often required to fit their lives into services Prescriptive, service driven planning processes Focus on $’s as solution to people’s needs Accountability based on inputs and outputs FUTURE People choose and develop supports Person-directed planning Focus on personal networks and community Accountability also based on personal outcomes
Growth funding – IP&S Process Diagram Stages 1-3
INTERNATIONAL SHIFT UK – VALUING PEOPLE WHITE PAPER USA CANADA –BRITISH COLUMBIA
Vision Children and adults with developmental disabilities, supported by family members and friends, will have the opportunities and supports needed to pursue their goals and participate as full and valued citizens in their communities. Community Living British Columbia Interim Authority
Policy development Determining eligibility Approving and providing funding for community services and supports Working in partnership with service providers Working in partnership with families Providing independent planning support Establishing safeguards for individuals and families and ensuring they are followed by service providers Individuals and families sometimes need support to meet their needs and achieve their goals. CLBC will have a variety of responsibilities, including: Community Living Centres and Facilitators will provide information, advice, and practical assistance to families of children with special needs and to adults who have a developmental disability, their families and friends. Facilitators will collaborate with, but work independently from, providers and those making funding decisions. Board of Directors Community Living British Columbia Community Service Providers Individuals, Families and Communities Penticton Osoyoos Kelowna Community Living Centre Princeton
Facilitators will provide information, advice and practical assistance to eligible individuals and families, independent from service providers and funding decisions, to assist them to develop and implement personal support plans. Independent Planning Support: A key element of change Independent Planning Support: A key element of change Community Living British Columbia Interim Authority
Community Living Centres and Community- based Staff Fernie/Sparwood Campbell River Powell River Port Hardy Port Alberni Squamish Salmon Arm Golden Burns Lake Vanderhoof Community Living Centers Armstrong Duncan Trail Merritt Nelson Revelstoke WilliamsLake PrinceRupert Quesnel FortSt.John 100 Mile House Kitimat Hope Mission Smithers Creston Sechelt Penticton Parksville Oliver/Osoyos Chilliwack Princeton Fort Nelson Community Based Staff Nanaimo North Shore Vernon Abbotsford Cas tlegar Burnaby/New Westminster Cranbrook Courtenay/Comox Kelowna Terrace DawsonCreek Prince George Kamloops Vancouver/Richmond Surrey East & West Victoria
It’s my life! ‘Person centred’ means doing things in a way that the person wants and which helps them to be part of their community. If someone is in the centre of something, they are the most important person.
What does person centred planning mean? It means putting the person at the centre of planning for their lives.
Person centred planning is about: Listening to and learning about what people want from their lives Helping people to think about what they want now and in the future Family, friends, professionals and services working together with the person to make this happen
“Person centred planning means that I get to plan my life the way I want. It doesn’t mean that I have to do it on my own. It means that other people who I like and trust help me – on my terms”
CIRCLE OF SUPPORT A group of people who meet together on a regular basis to help a friend or family member who needs some extra support to accomplish their personal goals in life.
an informal network of associates, friends and family acts as a community around the 'focus person' pools skills and resources and shares ideas and tasks to achieve a set of objectives derived from what the focus person perceives as progression towards a fuller life
BUILDING INCLUSIVE AND SUPPORTIVE COMMUNITIES EDUCATION AND INFORMATION CAPACITY BUILDING COMMUNITY DEVELOPMENT AND BRIDGE BUILDING
Is there room in your workplace for someone like me? When I was young they put people like me in institutions not in jobs…Today I have a job that I really love and my boss is happy too because I am good at my work. People called mentally handicapped can do a lot of jobs really well when someone gives them a chance. Barry Smith, Usher
You wouldn’t want to be held back by an outdated label. Neither did we.
INVOLVING ALL NEIGHBORS Building inclusive communities in Seattle Project of the City of Seattle Department of Neighbourhoods
People who know a lot about their neighbourhood and / or are involved in civic associations - assist in connecting a person with an intellectual disability with associations or activities that match their interests.
Staff can expect to work with more autonomy and flexibility, but less comfort Staff expected to work in other people’s homes and workplaces - loss of territory Staff expected to be on tap, not on top - developing adult:adult relationships Staff practice open to view by the public - more ambiguity and risk to manage Staff role more about connecting, less about correcting Implications for staff role and identity Managing for Inclusion, Scottish Human Services
Community Support Facilitator Job Profile Job Purpose To enable men and women with learning disabilities to have more control over their lives through person centred approaches, which maximise community inclusion and participation and are responsive to the needs and wishes of the individual. To act on behalf of the Social Services Department in fulfilling statutory obligations under relevant legislation, providing a safe, flexible and responsive service, when and where needed by service users and their carers.
Giving practical, personal and emotional support to enable service users and their carers to meet their assessed need by maintaining and promoting their health, physical and mental well being and social development. Adopting a service co-ordination role, working in partnership with wider systems, to ensure a person centred approach, whilst enabling the delivery of a flexible and responsive care plan based on outcomes. Enabling people to lead full lives and develop a range of relations through community networking and community building to promote individual inclusion and participation, whilst ensuring that men and women with learning disabilities lead lives that are safe from harm and abuse.
Maximising the involvement of men and women with learning disabilities and their carers in evaluating, monitoring and reviewing the services they receive. Seeking clarity about the responses needed to promote independence, identifying and minimising any risk through the process of Risk Assessment and Risk Management. Working as part of a team or as an individual in a range of community and domiciliary settings, involving a good knowledge of Health and Safety and personal safety issues.
Keeping abreast of practice development and demonstrating a commitment to personal development through formal and informal training opportunities. Administering medications in keeping with the xxxxx County Council Administration of Medication and Related Tasks policy. Taking responsibility for and dealing appropriately with any emergencies that may arise, including adherence to the Protection of Vulnerable Adults from Abuse policy. Developing relevant strategies to facilitate wider communication skills and opportunities for men and women with learning disabilities, e.g. Total Communication systems.
2005 CIDA CONFERENCE TOOLS FOR THE TWENTY-FIRST CENTURY: Modernising supports for people with disabilities Thursday, 12th and Friday, 13th May Melbourne Park Function Centre