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Barriers to research participation Diagnosis of Depression in People with Intellectual Disability Jennifer Galea & Teresa Iacono Centre for Developmental.

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Presentation on theme: "Barriers to research participation Diagnosis of Depression in People with Intellectual Disability Jennifer Galea & Teresa Iacono Centre for Developmental."— Presentation transcript:

1 Barriers to research participation Diagnosis of Depression in People with Intellectual Disability Jennifer Galea & Teresa Iacono Centre for Developmental Disability Health Victoria Monash University

2 Beyond Blue… Diagnosis of depression in people with intellectual disability Diagnosis of depression in people with intellectual disability Increase direct support worker and GP awareness of depression in adults with intellectual disability Increase direct support worker and GP awareness of depression in adults with intellectual disability Provide a tool that will help direct support workers to gather information needed by the GP Provide a tool that will help direct support workers to gather information needed by the GP Assist GPs in identification and treatment of depression Assist GPs in identification and treatment of depression

3 Tasks Complex project requires ‘wading through’ complex explanatory statements Complex project requires ‘wading through’ complex explanatory statements Obtaining proxy consent sometimes difficult Obtaining proxy consent sometimes difficult Supervisor’s permission required in order to participate Supervisor’s permission required in order to participate Completion of detailed forms Completion of detailed forms

4 Collaboration Liaising with GP sometimes problematic Liaising with GP sometimes problematic Quality of interaction dependent upon previous relationship Quality of interaction dependent upon previous relationship Experiences of “Shooting the messenger” Experiences of “Shooting the messenger” Communicating with other staff members and professionals Communicating with other staff members and professionals

5 Practical issues Getting clients to assessments Getting clients to assessments Staffing issues/backfill Staffing issues/backfill Casual staff attending appointments Casual staff attending appointments Assumptions that support workers have a detailed client history Assumptions that support workers have a detailed client history Relationship with family/significant others Relationship with family/significant others

6 The Report Understanding it Understanding it Following through on recommendations Following through on recommendations Service gaps Service gaps - BIST waiting list - Lack of local services Missing information Missing information Knowledge of limitations of the study Knowledge of limitations of the study - Crisis point -What happens beyond the assessment?

7 Value of Assessment? Will other practitioners use information? Will other practitioners use information? Will it help you argue for services/extra funding? Will it help you argue for services/extra funding? Is it difficult to follow up on recommendations? Is it difficult to follow up on recommendations? Providing evidence for what support workers already know? Providing evidence for what support workers already know? Case for diverting resources to particular areas? Case for diverting resources to particular areas?

8 How do Direct Support Workers Benefit from Being in the Study? Access to a service – at least for an assessment Access to a service – at least for an assessment Strategy for collecting information that will be needed by the GP Strategy for collecting information that will be needed by the GP Information about their client with intellectual disability – increased understanding about behaviours, symptoms etc. Information about their client with intellectual disability – increased understanding about behaviours, symptoms etc. Acknowledgement of difficulties faced (?) Acknowledgement of difficulties faced (?) Recommendations about what can be done and potential services (?) Recommendations about what can be done and potential services (?) Others ….. Others …..

9 Further Information For more information about this study contact Jenny on or at For more information about this study contact Jenny on or at For further information about the CDDHV visit our web site: For further information about the CDDHV visit our web site:cddh.med.monash.edu.au


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