Presentation on theme: "Gracia Violeta Ross. More visibility Keep targeting AIDS key leaders from the global south to speak on TB-HIV issues Make TB topics understable for PLHA."— Presentation transcript:
Gracia Violeta Ross
More visibility Keep targeting AIDS key leaders from the global south to speak on TB-HIV issues Make TB topics understable for PLHA (most people just do not know) Document successfull community driven experiences (e.g. Mexico) TB-PLHA as speakers in major TB conferences’s but in main sessions
More Training Train PLHA with “the basics” of TB advocacy, if it does not exist completely, we will invent Train other community members, those who are also at risk of TB who could create a safer environment for PLHA Train biomedical sector on “the basics” of community involvement, such as listening and horizontal approches
TB-Transformation What can we learn from other health achievments of the XX and XXI centuries that can benefit the TB response? Maybe we need to change the language, do people understand the difference among ”TB control” and “TB patient control”? Focus on the PERSON not the bacilo Trust the community for TB control, they want to help Partnership of persons with TB with health providers in a horizontal way Involve younger people and more women and you will see we will rock TB response
EMPOWERMENT Why is the TB so called “patient” so patient? Need urgent training and awarness on Human Rights of patients TB is no longer the property of one sector, other sectors have to take responsability, we have to make them accountable, this includes, political leaders, pharmaceutical companies, UN agencies, health clinics, persons affected AND PLHA Develop our own vision of TB response as a complement to tradional practices Persons with TB are part of the solution not the problem
Deal with TB stigma What is fueling the stigma around persons wit TB? Is it because it is contagiuos? Do people ignore that is curable? Is not a sexy disease? Why do people run away from services when they are coughing? Can it be that the TB awarness messages given to community fuel stigma?
Why I never got TB in a country with TB prevalence (Bolivia)? Tested for HIV right after being infected Treated for HIV inmediately Befor ART, for 1 year, automatically under isionazid and cotrimoxazol profilaxis, peer counselors explained to me the benefits, cheap medications provided by peruvian government while I studied master course in Lima. NEVER GOT ANY OPPORTUNISTIC INFECTION Since my HIV test, I learnt about my infection. First test to take: X rays, not suggested by doctors, but understood by myself after reading about the risk of oportunistic infections Trained my family so they would not add risk to my space, including preventing all types of flu, safe food, TB prevention, etc.
LISTEN TO PEOPLE What is needed and what will work? People know, if we only ask them and listen, they will tell us Is not a Geneva paper that will transform TB-HIV services but what people and communities do locally Benefit from social science to develop community driven responses Thokozile from South Africa
Why I need to learn about TB? Many AIDS activist have not been personally affected by TB, thus they don’t imagine the burden If some information was provided to them in a dedicated way (Hayleyesus for me) they will understand and take responsability. There is progress on this in some african communities “We are affected by TB, my community is dying of TB” AIDS no more in competition with other health problems