The Importance of a Support Group –Lets people know they are not alone –Offers Hope –Provides Information –Gives people a chance to be helpful to others Support
Education Resources –Learn about the Illness –Call Support Group –Websites Schools –Talk to teachers about the illness –Ask how to assist teacher –Focus on what is important - getting an appropriate education for your child Communication is the key!!!!
Learn to advocate for your child –Learn the laws that pertain to your child –Learn how to communicate with doctors, schools and the community. –Learn what your child needs, how to get it and advocate for your child. Advocacy
Stage 1 - Dealing with the News Shock, overwhelmed, confused, lost –How do I deal with it? Denial –This cant be happening to me? –The diagnosis is wrong? Hope –This cant be happening to me? –If I just change how I deal with the behavior, it will all go back to normal?
Stage 2 – Learning to Cope Anger/Guilt/Resentment –What did I do to cause this? –Doesnt the child want to change? –Why cant my child be perfect like my brothers? Recognition –It sinks in…this is my life? Grief –What about the dreams we had for our child? –Will they ever live on their own? –What happened to my little boy (girl), that used to be happy?
Stage 3 - Moving into Action Understanding –We read information and we begin to understand Acceptance –This is our life. We did not cause this. –WE ARE NOT BAD PARENTS Advocacy –Im ready to change the world – what can be done?
I am only one But still I am one I cannot do everything and because I cannot do everything, I will not refuse to do the something that I can do Helen Keller
WARNING Common Emotional Traps Self Pity –"Why does it have to be so hard?" or "Why can't things be different? Resistance –If you use passive - aggressive behavior to defeat them, you also defeat yourself. Temper Tantrum –If you blow up, you prove that they were right about you. Quitting –OK, you quit. Now what?