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STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 1 Scene 1Scene 1aScene 2Scene 3 Image Title.

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Presentation on theme: "STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 1 Scene 1Scene 1aScene 2Scene 3 Image Title."— Presentation transcript:

1 STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 1 Scene 1Scene 1aScene 2Scene 3 Image Title Slide Image Quote Image Picture of me holding Dalton Image Picture of mom and Dalton Script Changing the World – One Challenge at a Time By Miranda Fuller Script When one door of happiness closes, another opens; but often we look for so long at the closed door that we do not see the one which has been opened for us.~ Helen Keller Script Like most seven-year old girls, I wanted a little brother or sister. When my beautiful brown-eyed brother was born, I was thrilled! But Dalton didnt developed quite like other kids. Script Concerned, our mom took him to the doctor. Its only an ear infection, they said. Mom consulted doctor after doctor. After a long exhaustive process, Dalton was diagnosed with Fragile X Syndrome. Music/Sounds When Stars Collide by Josh Woodward Music/Sounds Wheel StrokeWhirlwind Checkerboard,Across

2 STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 2 Scene $4Scene 5Scene 6 Image Picture of Dalton with Fragile X Image Pic of aunt Image Picture of Chromosome Script Fragile X is the most common inherited cause of mental impairment. It occurs in approximately 1 in 3,600 boys and 1 in 5,000 girls. Script Although there had been no known family history, my aunt had a baby with Fragile X the year after Daltons birth. Script I have learned that I also may be a carrier of the Fragile X chromosome. This has caused me to reconsider having children, and my own future. Music/Sounds When Stars Collide by Josh Woodward Music/Sounds Eye Fan,out

3 STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 3 Scene 7Scene 8Scene 9 Image Picture of Dalton School Picture in 8 th grade Image Picture of Dalton trying to put shoes on. Image Picture of Dalton Script You may wonder what it is like to live with Dalton. Physically, he has an enlarged head and ears; he cant form sentences but repeats words and sounds over and over again. He is hyperactive, bites his own hands and fingers when nervous or upset, and his feelings are easily hurt. Script He is also loving, funny, adventurous, curious, independent, and one of the most courageous people Ive ever known. Script Dalton needs attention around the clock. He wants to be independent but there are many things he cant do for himself. His needs come first, and its hard for other family members not to feel left out. School is very frustrating for Dalton. He gets bullied a lot, comes home angry, and becomes physical at home. Music/Sounds When Stars Collide by Josh Woodward Music/Sounds Filled V. DownBars

4 STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 4 Scene 10Scene 11Scene 12 Image Picture of family Image Picture of my mom and Dalton Image Challenger picture Script These are challenges our family never expected, and when Dalton was diagnosed, we literally didnt know what to do. With the help of doctors and therapists, my family slowly began to find a new normal but even now I wonder Why was my brother the one to be like this? Script The doctors expect that Dalton will always need the help of an aide, but we hope one day he will be able to live on his own. Teaching him the skills he will need is a big job, and there arent a lot of resources for special needs people in our area so Mom took child advocate classes, and she became inspired to help other families. Script With the support of the Stockton Optimists Club, in 2008 she and my aunt formed Challengers United, which started with 6 families of disabled children and adults; two years later 13 families are involved. Music/Sounds When Stars Collide by Josh Woodward Music/Sounds Bow Tie, HorizontalFilled V, Right

5 STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 5 Scene 13Scene 14Scene 15 Image Challenger Activities Image Challenger Picture Image Picture of Kids Script We sponsor Easter Egg Hunts, Bowling Tournaments, picnics in the park, Dodge Ball and Kick Ball tournaments and parties at Christmas and Halloween. Everyone can take part, and families have time to talk and provide support to each other. Script People with a wide variety of disabilities come to our events -- members have Fragile X Syndrome, Reactive Attachment Disorder, Attention Deficit Disorder and ADHD, Bipolar Disorder and Aspergers Syndrome. Script Some kids, like Dalton, are physically very strong, but have difficulty communicating. Some are confined to a wheelchair; others are aggressive, hyperactive and easily frustrated. Music/Sounds When Stars Collide by Josh Woodward Music/Sounds HeartKeyhole

6 STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 6 Scene 16Scene 17Scene 18 Image Picture of kids Image Picture of me and Dalton Image Picture of Dalton Script Challengers United works to raise awareness that these invisible and different people are a part of our community too, and to alert others that parents of disabled children need all the help they can get. We distribute brochures, write newspaper articles, and speak to clubs like Optimists, the Agape House, the VFW, and my FCCLA chapter. Script Living with a special needs brother is difficult, frustrating and challenging, but it has also been a great experience. Helen Keller said, We could never learn to be brave and patient, if there were only joys in the world. Script Because of Dalton, Ive learned something new every day about sharing time, energy, and responsibility. Many loving, caring and helping hands are needed to ease the load. The old saying, it takes a village to raise a child was never truer than when speaking of a child with disabilities. Music/Sounds When Stars Collide by Josh Woodward Music/Sounds Page Curl, Up LeftIris

7 STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 7 Scene 22Scene 23Scene 24 Image Picture of me Image Picture of family Image Script I am often told that my generation is the future. Special needs children are part of the future too, and deserve to become productive, functioning citizens. Script While my family still has questions about what tomorrow holds for Dalton, we hope the community will change its attitudes towards people with special needs. If we can change our community, we can transform the world! Script Music/Sounds When Stars Collide by Josh Woodward Music/Sounds CircleBars

8 STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 8 Scene 22Scene 23Scene 24 Image Bibliography 1 Image Bibliography 2 Image Bibliography 3 Script Bibliography Fragile X Syndrome: Abrams, M.S, Liane J. "Summary of Fragile X Syndrome." National Fragile X Foundation: Summary of Fragile X Syndrome. National Fragile X Foundation, 29 Dec Web. 5 Jan Photos: Taken by Miranda Fuller and Julie Stone, except the following: Fragile X Carrier Chart. Digital image. Wikipedia: Sex Linkage. WikiMedia Foundation, Aug Web. 11 Jan Script Quotations: Johnson Lewis, Jone. "About.com: Women's History -- Helen Keller Quotes." About.com: Women's History -- Helen Keller Quotes. The New York Times Company, Web. 6 Jan Music: Woodward, Josh. "When Stars Collide." Rec Breadcrumbs. Josh Woodward. Josh Woodward, Josh Woodward Free Creative Commons Music. Josh Woodward, Web. 12 Jan Script "Changing the World, One Challenge at a Time" by Miranda Fuller is licensed under a Creative Commons Attribution- Noncommercial-No Derivative Works 3.0 United States LicenseCreative Commons Attribution- Noncommercial-No Derivative Works 3.0 United States License Created with Microsoft Movie Maker by Miranda Fuller, January 2010 Music/Sounds When Stars Collide by Josh Woodward Music/Sounds


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