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Pain in Europe Survey Pan-European Results. The Pain in Europe Research Largest survey ever undertaken into pain -Prevalence data based on >46,000 interviews.

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Presentation on theme: "Pain in Europe Survey Pan-European Results. The Pain in Europe Research Largest survey ever undertaken into pain -Prevalence data based on >46,000 interviews."— Presentation transcript:

1 Pain in Europe Survey Pan-European Results

2 The Pain in Europe Research Largest survey ever undertaken into pain -Prevalence data based on >46,000 interviews -Attitudinal data from almost 5,000 interviews Striking results demonstrate the devastating impact of chronic pain

3 Objectives Estimate the prevalence of chronic pain conditions across Europe Understand and quantify the sources and causes of chronic pain; Explore the demographics of sufferers; Explore the impact of pain on sufferers quality of life Understand current treatment practices & levels of satisfaction Explore the attitudes of sufferers toward and experiences with pain

4 Methodology

5 CATI (Computer Assisted Telephone Interviewing), random dialling Screener Questionnaire (2,900 average) -Determine the prevalence of chronic pain by country Detailed Questionnaire (300) Inclusion Criteria -Adult (18 years old or older); -Suffered pain for at least 6 months duration -Has experienced pain within the past month -Experienced pain at least several times a week -Pain intensity >5/10 -Has not participated in medical studies.

6 Pain in Europe: Countries Covered

7 The Data

8 Prevalence

9 Pain - A Widespread Problem Strikes almost one in five adults across Europe = 19% (75 million people) -Prevalence highest in Norway, Poland and Italy (>one in four) -Prevalence lowest in Spain, but still more than one in ten (11%) One-third of all European households are affected by chronic pain

10 Prevalence of Chronic Pain by Country – Based on Complete Screener Data – Severe Moderate Norway (n=2,018) Poland (n=3,812) Italy (n=3,849) Belgium (n=2,451) Finland (n=2,004) Austria (n=2,004) Sweden (n=2,563) Netherlands (n=3,197) Germany (n=3,832) Israel (n=2,244) Denmark (n=2,169) Switzerland (n=2,083) France (n=3,846) UK (n=3,800) Ireland (n=2,722) Spain (n=3,801) 30% 27% 26% 23% 21% 19% 18% 17% 16% 15% 13% 11% Overall Prevalence = 19% (n=46,394) Moderate13% Severe 6%

11 Source: SQ6. For how long have you suffered from pain due to your illness or medical condition? Duration of Pain Reported by Chronic Pain Sufferers (n=4,839) Patients Forced to Live in Pain On average, sufferers live with chronic pain for 7 years A fifth suffer with pain for more than 20 years %

12 Source: SQ8. How often do you experience pain? (Read list) SQ7. When was the last time you experienced pain? (Read list) How Often Does it Hurt? One third of sufferers report experiencing chronic pain all the time Frequency (n=4,839)

13 Nature of Chronic Pain

14 Source: SQ11. Where is your pain located? SQ12. Please tell me the illness or medical condition that is the cause of your pain. Q1. Is your pain caused by…? Most Common Causes of Pain Reported by Chronic Pain Sufferers (n=4,292) Where does it hurt? The most frequent cause of chronic pain is arthritis / osteoarthritis (34%) The most common location is the lower back %

15 Source: Q4. Thinking about the intensity of your pain when it was at its worst, which of the following statements best describes your tolerance level of this pain? Tolerance Level for More Pain (n=4,785) And How Much? One third reported that their pain was so severe they could not tolerate any more

16 Quality of Life

17 Chronic Pain is Insidious Over 40% of sufferers report feelings of helplessness or inability to think or function normally One in six say the pain is sometimes so bad they want to die

18 * Higher=Agree more strongly with the statement Source: Q37. Now we would like to understand how pain affects your life. I am going to read a list of statements that could be used to describe how people who are experiencing pain think and feel about it. For each statement I read, please think about yourself and your own pain and tell me how much you agree or disagree with each statement using a 5-point scale where 1=Disagree Completely, 2=Disagree Somewhat, 3=Neither Agree nor Disagree, 4=Agree Somewhat, and 5=Agree Completely. (Read list) Chronic Pain is Insidious %

19 And Can Devastate Lives Chronic pain has an undoubted impact on the daily lives of sufferers Chronic pain impacts on daily activities such as lifting, exercising, sleeping and working outside One quarter (26%) feel that their pain impacts employment 15 working days a year are lost to pain (estimate on 6 month data) One in five reports -losing a job (19%) -or have been diagnosed with depression as a result of their pain (21%)

20 Source: Q6a. Have any of the following ever happened as a result of your pain…? (Read list) Q6b. Have you ever been diagnosed with depression by a medical doctor as a result of your pain? And Can Devastate Lives Weighted Total UK (n=243) France (n=232) Germany (n=232) Italy (n=233) Spain (n=255) Poland (n=220) Sweden (n=292) Norway (n=289) Denmark (n=298) Lost job19%25%15%14%17%22%14%24% 29% Changed job responsibilities 16% 12%11%28%8%19%28% 21% Changed jobs entirely 13%18%12%8%20%4%13%25%22%11% Been diagnosed with depression 21%24%18%20%22%29%14%24%28%11%

21 And Can Devastate Lives Netherlands (n=294) Belgium (n=286) Finland (n=290) Ireland (n=272) Switzerland (n=274) Austria (n=279) Israel (n=299) Lost job29%15%22%15%16%20%25% Changed job responsibilitie s 20%9%19%24%15%20%17% Changed jobs entirely 16%9%14%23%12%11%14% Been diagnosed with depression 19% 22%19%18%21%16%

22 Doctors and Patient Relationships Revealed

23 Patients See Different Clinicians But Rarely Pain Specialists Consultations were most frequently with GPs Orthopaedists and to a lesser degree Rheumatologists and Neurologists are also seen Only 23% report seeing an actual pain specialist

24 * Other includes Alternative Medicine/Homeopathy, Anesthaesiologist/Anesthaetist, Cardiologist, Chiropractor, Ear Nose Throat, Gastroenterologist, Gynecologist, Hematologist, Infectious Disease, Oncologist, Ophthalmologist, Physical Medicine, Plastic Surgeon, Psychiatrist, Pulmonoloigst, Radiologist, Sports Medicine, and Urologist. Source: Q12c. What kinds of doctors are you currently seeing specifically for your pain? Q12d. Have you ever been to see a pain management specialist? Chronic Pain Patients See Many Different Clinicians Physician Specialty % Who See General/Family Practitioner Orthopaedist/Orthopaedic Surgeon Rheumatologist Neurologist//Neurosurgeon Internist Physiotherapist General Surgeon Pain Management Specialist Osteopath Other * When asked specifically whether ever been to a pain management specialist 70% 27% 9% 10% 7% 6% 3% 2% 20% 23%

25 * Higher = better Source: Q14d. How satisfied are you with the doctor who currently treats your pain? (Read list) Q14e. Why do you say you are not very/not at all satisfied with the doctor who currently treats your pain? Doctors Defended The majority (62%) are very or extremely satisfied with the doctor who treats their pain have seen them 1.3 times in last six months %

26 But There are Still Problems Some patients worry about their doctors willingness and commitment to treating their pain A sizeable proportion (43%) of chronic pain sufferers believe that their physicians are more focused on their illness than their pain In making a diagnosis or deciding on treatment, few doctors use pain rating scales (10%) Most discussions are patient initiated

27 Source: Q37. disagree with each statement using a 5-point scale where 1=Disagree Completely, 2=Disagree Somewhat, 3=Neither Agree nor Disagree, 4=Agree Somewhat, and 5=Agree Completely. (Read list) Source: Q13c. How does the doctor who generally treats your pain determine how much pain you are in? Q14a. Has any doctor or medical professional ever scored you on a pain scale? But There are Still Problems %

28 Feelings about Treatments Two thirds of sufferers are always willing to try new treatments But almost as many are worried about potential side effects of pain medication

29 * Higher=Agree more strongly with the statement Source: Q37. Now we would like to understand how pain affects your life. I am going to read a list of statements that could be used to describe how people who are experiencing pain think and feel about it. For each statement I read, please think about yourself and your own pain and tell me how much you agree or disagree with each statement using a 5-point scale where 1=Disagree Completely, 2=Disagree Somewhat, 3=Neither Agree nor Disagree, 4=Agree Somewhat, and 5=Agree Completely. (Read list) Feelings about Treatments %

30 Use of Prescription Medicines Pain sufferers are proactive with 69% of chronic pain sufferers treating their pain in some way, mainly via prescription medications Over one in four (26%) have tried then stopped taking prescription pain medication

31 Source: Q11a. Is your pain currently being treated in any way? Q15a. Have you ever taken prescription medicine for your pain? Q16a. Are you currently taking prescription pain medicine? Chronic Pain Sufferers Reporting Currently Treating Their Pain in Any Way (n=4,827) Use of Prescription Medications To Treat Chronic Pain (n=4,839) Use of Prescription Medicines

32 NSAIDs (44%) are most used class of pain medication Other commonly prescribed drugs are weak opioids (23%) and paracetamol (18%) Mean number of pills taken everyday is 3.4

33 Source: Q18. Which prescription pain medicines are you currently taking for the specific pain we have been discussing? Use of Prescription Medicines % Weak Opioids Strong Opioids

34 Classes of Prescription Pain Medications Chronic Pain Sufferers Report Currently Using for Pain – European Summary – (n=2,063) Source: Q18. Which prescription pain medicines are you currently taking for the specific pain we have been discussing?

35 Weighted Total UK (n=300) France (n=300) Germany (n=302) Italy (n=300) Spain (n=301) Poland (n=300) Sweden (n=300) Norway (n=304) Denmark (n=303) NSAIDs 44%23%25%54%68%49%71%27%24%38% Weak Opioids 23%50%19%20%9%13%28%36%50%8% Paracetamol 18%38% 2%6%8% 26%45%0% COX-2 Inhibitors 6%3%6%8%7%2%1%7%11%8% Strong Opioids 5%12%4% 0%1%4%3%6%11% Source: Q18. Which prescription pain medicines are you currently taking for the specific pain we have been discussing? (most common mentions)

36 Netherland s (n=300) Belgium (n=301) Finland (n=303) Ireland (n=300) Switzerland (n=300) Austria (n=303) Israel (n=322) NSAIDs36%42%54%32%48%58%53% Weak Opioids 14%15%22%19%18%14%5% Paracetamol11%33%26%5%12%4%3% COX-2 Inhibitors 16%13%16%8%13%4%36% Strong Opioids 5%7%2%13%2%5% Source: Q18. Which prescription pain medicines are you currently taking for the specific pain we have been discussing? (most common mentions)

37 Source: Q18. Which prescription pain medicines are you currently taking for the specific pain we have been discussing? Use of Non- Prescription Medicines Non-Prescription (OTC) Classes and Medications Chronic Pain Sufferers Report Currently Using for Pain (n=1,914)

38 Alternative Therapies % Source: Q28. What other methods, remedies or treatments, apart from medications have you ever tried to relieve your pain for the medical condition or illness we have been discussing?

39 How Patients Rate Treatments The majority (64%) of pain sufferers feel their treatment is inadequate at times Chronic pain sufferers report that there is considerable room for improvement in the effectiveness of pain treatments

40 Source: Q21. Do you ever experience an increase in pain during the day as a direct result of an activity you did? Q20. Are there ever times when your pain medicines are not adequate to control your pain? Adequacy of Pain Control from Medication (n=2,450) Pain from Activity (n=4,787) How Patients Rate Treatments

41 Source: Q36. Where do you hear about new methods for treating pain? Learning About New Pain Treatments Over one quarter of all chronic pain sufferers feel they never hear about new methods of treating pain Majority rely on newspapers, TV and magazines Just 5% surf the Net for new options

42 Source: Q36. Where do you hear about new methods for treating pain? Where Chronic Pain Sufferers Report Hearing About New Pain Treatments (n=4,586) Learning About New Pain Treatments %

43 The Largest Pain Survey in the World


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