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Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Parkinson Disease Caregiver Training Program Philosophy Goals.

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Presentation on theme: "Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Parkinson Disease Caregiver Training Program Philosophy Goals."— Presentation transcript:

1 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Parkinson Disease Caregiver Training Program Philosophy Goals Purpose of Training Outcome – expectations Certificate of Completion

2 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. What is Parkinson Disease? A chronic (ongoing) and slowly progressive neurological (involving the nervous system) condition….medically classified as a movement disorder The cause is unknown and there is no cure – treatments are to minimize symptoms and maximize functional abilities *********************** 1.2 Million people in the US have PD 4.0 Million world-wide Page 4

3 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Early Detection of Parkinson Disease Initially, mild symptoms can come and go -- often mistaken for normal aging. The most commonly noticed first symptom -- one-sided shaking of the hand 25% do not have a tremor, but may feel -- Easily fatigued Slow moving Change in gait (walk) and balance Page 4

4 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Hallmark Signs of Parkinson Disease Hallmark Signs of PD include: 1. Resting tremor – when limb not in motion 2. Slowness – Bradykinesia 3. Rigidity – stiffness in limbs 4. Loss of balance, tendency to fall backwards Page 5

5 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. What Caregivers Should Watch For Difficulty arising from chair Difficultly changing position in bed Hands and fingers less mobile Muffled speech or low voice volume Shuffling gait – tendency to drag foot Reduced eye blinking Less frequent swallowing Anxiety and depression, difficulty concentrating Constipation, low blood pressure, sleep disorder Page 5

6 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. What is Wearing-Off? When symptoms begin to reappear or become noticeably worse before it is time to take the next scheduled dose of medication ****** Important to know this so you can adjust therapy to provide better control of the symptoms Page 11

7 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Performing Caregiving Duties Yourself You can receive training from: Social service agencies Hospitals Community schools The American Red Cross Area Agency on Aging Page 56

8 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Safety, Safety, Safety Among all age groups falls ranked as the second leading cause of unintentional injury deaths in the United States. Of those who survive a fall, percent will suffer debilitating injuries that affect them the rest of their lives. (National Safety Council, Report on Injuries in America, 2003) FIRST PRIORITY IS SAFETY Many accidents can be prevented Ask a relative or friend to survey the home Your comfort, convenience, and safety are also important Leave a blanket, pillow, and phone on the floor. In case of a fall, the person can stay warm and call for help. Page 60

9 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Dressing Someone with PD Dressing is easier with a routine – dont be rushed Dress the person while sitting - lay clothes out in the order they will be put on – choose loose-fitting garments and avoid busy patterns if the person has dementia Try adaptive equipment, such as a button hook, or Velcro fasteners If a person is bedridden, avoid wrinkles in clothes and bedding. Page 154

10 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Where to Borrow Equipment and Supplies PD Support Groups, Salvation Army, Red Cross, Visiting Nurses Association National Easter Seal Society, Muscular Dystrophy Association, American Cancer Society, Charity organizations, churches, senior centers, leisure clubs Never buy equipment from a telephone solicitor, a door-to-door salesman, or a person who calls on you before the doctor or hospital discharge planner has told you what equipment will be needed. Page 81

11 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Special Diet for Parkinson Disease Protein management may be helpful for some patients with on/off motor fluctuations in response to levodopa. Levodopa and protein interaction Nutritional guidelines for those with PD PD slows gastric mobility Most benefit from taking levodopa on empty stomach Page 197

12 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Basics of Exercise Good fitness is made up of three types of exercise: Stretching – always stretch before exercising. Strengthening – in home or gym 3-lb easy grip weights are useful Aerobics – works heart and lungs as well as large muscles Page 209

13 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Preventing Back and Neck Injuries To prevent injuries to yourself, get plenty of rest and maintain: optimal nutrition physical fitness / muscular strength good body mechanics a stress management program Page 228

14 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Emergencies Many injuries can be avoided through preventive measures Once a serious accident or sudden illness is obvious, do not delay calling for help. Make sure 911 is posted on your phone Page 244

15 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Eating (3) Eating Problems and Solutions – Drooling- remind the person to swallow – Spitting out food – offer/suggest small bites – Difficulty chewing & swallowing – Eating with fingers Page 177

16 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Dressing Someone with PD Dressing is easier with a routine – dont be rushed Dress the person while sitting - lay clothes out in the order they will be put on – choose loose-fitting garments and avoid busy patterns if the person has dementia Try adaptive equipment, such as a button hook, or Velcro fasteners If a person is bedridden, avoid wrinkles in clothes and bedding. Page 154

17 Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher. Speech and Swallowing Speech Most people with PD have gradual decreases in voice volume or ability to speak clearly Targeted speech therapy programs (LSVT) Singing – great exercise for the voice! Swallowing Swallowing changes Swallowing evaluation Swallowing checklist How to improve swallowing Coping with drooling Page 178


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