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Including persons who are civilly committed in research – comments from a researcher Marit Helene Hem, PhD, Post doc researher Center for Medical Ethics.

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Presentation on theme: "Including persons who are civilly committed in research – comments from a researcher Marit Helene Hem, PhD, Post doc researher Center for Medical Ethics."— Presentation transcript:

1 Including persons who are civilly committed in research – comments from a researcher Marit Helene Hem, PhD, Post doc researher Center for Medical Ethics Institute of Health and Society Den 3. nasjonale konferansen om forskning og kunnskapsutvikling om bruk av tvang i det psykiske helsevernet Holmen Fjordhotell april 2011

2 Introduction Ethically permissible to include in research those persons who are admitted against their own will to a psychiatric ward?

3 The qualitative researcher, vulnerable research subjects and ethical conduct The qualitative researcher: exploration of people’s experiences; in-depth understanding; open-ended and unpredictable Vulnerable research subjects: in need of protection? Nature of mental illness? Ethical conduct: moral sensitivity, mindfulness

4 Research ethics review Protection of the rights and welfare of research subjects Standardization and control of research Informed consent – what does it mean to be informed? What does it mean to consent? When is a consent informed and voluntary? Process consent?

5 Communication between review boards and researchers Institutional control is neccessary Researchers are powerful – the need for control Participants are powerless and vulnerable – the need for protection Communication and mutual trust


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