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Do we have a clear / true picture of what is going on in our patients lives? Amanda Smith Member of the Ostomy Forum group.

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Presentation on theme: "Do we have a clear / true picture of what is going on in our patients lives? Amanda Smith Member of the Ostomy Forum group."— Presentation transcript:

1 Do we have a clear / true picture of what is going on in our patients lives? Amanda Smith Member of the Ostomy Forum group

2 Heard from the patients : I dont feel normal I am never totally naked It is like being a child again I have to rely on a bag I am always worried Everybody will know I hate it!

3 Revised Follow-up form

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7 Problems experienced after stoma surgery

8 Stoma observations

9 Incidence of patients reporting peristomal skin complications.

10 Case study 1

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14 Intervention Advice and support from ET Reassessment of appliances Sucralfate powder

15 Case study 2

16 1 st clinic appointment =3/08/06

17 Intervention Tacrolimus 0.3% in orabase paste underneath steroid impregnated tape. Advice and support from local ET Reassesment of appliances

18 2 nd clinic appointment=17/08/06

19 3 rd clinic appointment =29/09/06

20 Pain 6 months post surgery

21 Output

22 Problematic Output Problematic Stoma Problematic Skin 1-2 weeksColo Ileo weeksColo Ileo weeks Colo Ileo weeks Colo Ileo The odds of psychological problems when patient has problematic output, a problematic stoma, or problematic skin, as compared to non-problematic.

23 Conclusion Long term access to an ET nurse. Ongoing input and support is needed. 40 % fail to maintain their progression to normal status. Patients take longer to adjust to the psychological, sexual and social aspects of life with a stoma. Advanced counselling and listening skills are needed. Evidence based practice. The forms allow movement of patients and records between different hospitals and countries Easy to use forms


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