1. Prepared by Marnie Jones Physiotherapy Unit Head Port Kembla Hospital September 2012 Trinity Amputation and Prosthesis Experience Scale – Revised Early data at P&O Clinic

2. TAPES - R P Gallagher presented this survey at the ISPO conference in Sydney. Gallagher P & MacLachlan M 2000, Gallagher P, Franchignoni F, Giordano A, MacLachlan M 2010 The questionnaire is to be completed by the person with a prosthesis. www.psychoprosthetics.ie pamela.gallagher@dcu.ie www.psychoprosthetics.iepamela.gallagher@dcu.ie Moderate correlation between the Amputation Body Image Scale (ABIS – R) and TAPES psychosocial adjustment subscale. Gallagher P et al 2007 2MWT was a significant predictor of performance of ambulation in the community as measured by the TAPES Activity Restriction subscale. Parker et al 2010 To be used for improvement of our understanding of aspects of prosthesis use to develop better services.

3. Survey method Volunteer Amputee Peer Support Visitors (VAPS) conduct the survey to amputees attending Prosthetic Clinic at PKH. Data entry by Physiotherapist in Amputee Rehab. Intended project is to compare surveys completed at a prescription Clinic, then a second after they have received the prescribed change. To date, only the first phase results have been collected. Discussion for additions or corrections are welcome.

4. Results Number surveys n=26 Male (%)58 Completed the survey independently (%) 44 averageminmax Age61.393381 Time since amputation (years)14.190.247 Time with any prosthesis13.140.146 Time with this prosthesis2.150.16.3 Hours wear prosthesis11.79418

5. Results TTATFAKDAOther Type Prosthesis (%)662455 PVDDiabetesAccidentOther Amputation Result of from (%) 23194612 Very poor 1poor2fair3good4Very good5 General Health34108 Physical Capabilities 137142

6. General Adjustment subscale Stronglydisagree 1 Disagree 2 Agree 3 Stronglyagree 4 average I have adjusted to having a prosthesis 1411 3.23 As time goes by I accept my prosthesis more 231192.96 I feel that I have dealt successfully with this trauma in my life 2110133.31 Although I have a prosthesis, my life is full 610 3.15 I have gotten used to wearing a prosthesis 510113.23

8. Social Adjustment subscale

10. Adjustment to limitation subscale

12. Average Adjustment Disagree

13. Activity Restriction scale Having a prosthesis limits me: Yes limited a lot 2 Limited a little 1 No not limited at all average Vigorous activities, running, lifting heavy objects, strenuous sports 18521.64 Climbing several flights of stairs12771.19 Running for a bus20411.76 Sport and recreation16731.5 Climbing one flight of stairs410120.69 Walking more than a mile11 41.27 Walking half a mile12681.15 Walking 100 metres56150.62 Working on hobbies49120.68 Going to work66110.78

15. Average Activity Restriction Yes, a lot

16. Aesthetic Satisfaction with Prosthesis subscale Not satisfied1 satisfied2Very satisfied3 Colour of my prosthesis2166 Shape3175 Appearance4164

17. Functional Satisfaction with Prosthesis subscale …Of my prosthesis Not satisfied1 Satisfied 2Very satisfied3 Weight4175 Usefulness4139 Reliability1169 Fit8117 Comfort8135

19. Pain and Medical Problems % yesEpisodes/ week Duration each episode Range Residual limb pain 5876.87 minutes1 – 30 min Phantom limb pain 625.5712.37 minutes 15 sec – 60 min Medical problems 466 Continuous, varied, constant, 1-2 wks, 2 hrs, 15 min

20. Pain and Medical Problems Excruciating 5horrible4distressing3discomforting2 mild1 Residual pain - level 11292 Residual pain – interfere with life 11544 Phantom pain – level 21261 Phantom pain – interfere with life 12256 Medical problems – level 1432 Medical problems – interfere with life 13352

22. Pain Levels and Interferes with life excruciating mild

23. Discussion Need Power to complete ethics application Items with potential to change by effecting prescription Acquittal vs later follow-up Ideas to change program for greater adjustment