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National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.

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Presentation on theme: "National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead."— Presentation transcript:

1 National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead

2 National Cancer Survivorship Initiative What are Macmillan H&WB Clinics? One-stop-shops providing information and support to help patients and carers to prepare for the transition after treatment Aims to increase health and well being through support with: lifestyle management, managing your cancer, potential signs and symptoms, and how to get help Volunteers play key roles in supporting clinics

3 National Cancer Survivorship Initiative Key findings of 15 pilots 2010/11 Increased patient knowledge and confidence reported reduced anxiety and greater empowerment more appropriate use of services earlier intervention – may link to improved outcomes One-stop shop enabled access to services reassurance of knowing support there in case of future need Patients valued volunteers Created relaxed atmosphere - put patients at ease Providing information and signposting, explaining in simple terms, offering empathy & understanding Volunteers personal experience of cancer gave encouragement to patients about their future

4 National Cancer Survivorship Initiative Success Factors Tailored approach to target audience for recruitment, delivery and environment Information about HWB and what services patients can access Successful processes for recruitment / attendance inc. Event integrated in pathway (93% invited to Barts clinic attended ) Booking systems which require patients to book appointment Consultant referral; Confirmation letters/phone calls Volunteer Support & Role Targeting BME groups in partnership with community organisations

5 National Cancer Survivorship Initiative How to set up a Macmillan Health and Well Being Clinic Review evaluation material Engage MDT and Medical lead Agree survivorship pathway Agree case of need Agree operational policy (include awareness raising/marketing) Decide content Set up steering group to monitor project Lots of help on LearnZone!

6 National Cancer Survivorship Initiative Health and wellbeing clinic component options Awareness & Engagement Community & patient / Third sector MDT via attendance at NSSGs / Primary care / HWB Integrated in cancer care pathways Training packages for Staff /Volunteers Pre HWB Assessment HNA undertaken Pre HWB questionnaire from patients/carers to shape event Referral Mechanisms, inc. self referral, booking, confirmation Administrative Support (paid/voluntary) Pre HWB Inputs

7 National Cancer Survivorship Initiative Health and wellbeing clinic component options Processes – Tracker system Intervention – HNA and care plan (supported by volunteer) –Self management tool and techniques, folder & action plan – Exercises eg Relaxation techniques Communication Models – Presentations / CDs/ video/ photo loops – Market stalls – One to one support / Group work/open discussions – Music/song/dance/drama Information Giving – Health and wellbeing messages and services to access – Information leaflets – Volunteer navigated support and signposting HWB Clinic Event

8 National Cancer Survivorship Initiative Health and wellbeing clinic component options Documentation Letter to GP, copy to patient and action in notes Follow up card with contacts, signs/symptoms of recurrence Action plan revisited at agreed time Post clinic evaluation and targeted support eg Belfast/Leeds model Buddy Support Programme Patient referred to peer support programme where exist Timely Referral & Access to Other Services Third sector eg Sister to Sister group Leeds Dedicated programmes eg fatigue management Information Information pack/health and wellbeing booklets/rehab folder HWB Outputs

9 National Cancer Survivorship Initiative Why do Health and Wellbeing Clinics work? Health and Wellbeing Clinics help people to take control by: Focusing on an individuals role in maximising their own quality of life Enabling attendees to find out more about what matters to them Supporting an holistic approach by involving a wide range of support services Acting as a springboard for continuing activity Aiming to increase self-efficacy

10 National Cancer Survivorship Initiative What is self-efficacy? Confidence in the power to master the environment influences active participation in health enhancing behaviours (Lev, 1992) Your belief in your ability to make a difference to your life Four methods used for enhancing self efficacy: Mastery experiences – actual skills performance Vicarious experience – seeing others succeed Verbal /social persuasion – positive feedback; suggestion; self instructed performance Physiological feedback – emotional arousal

11 National Cancer Survivorship Initiative How can Macmillan help you? – Getting Back in the Driving Seat/Taking Charge resource Providing focus for person to think about what matters to them Gives physical space where important issues can be recorded & reflected upon

12 National Cancer Survivorship Initiative Contents of Taking Charge Introduction about self management Tips to support self management Useful information Prompts for consideration of issues affecting health & wellbeing Plan for action to help move forward - focus on: motivation for change action to be taken desired result plan for setbacks reward for achievement utilising available support

13 National Cancer Survivorship Initiative Taking Charge – supporting people to self manage

14 National Cancer Survivorship Initiative How can Macmillan help you? – Getting the Right Messages Across presentation Underpins aim of Health and Wellbeing Clinics to enable attendees to manage day- to-day issues as independently as possible. Customise with local information and images & order different silhouettes at be.macmillan.org.uk be.macmillan.org.uk Additional information for presenters in notes Can be used as training resource as well as in clinics Addresses issues of:Vocational Rehabilitation/ Work support Cancer-Related Fatigue DietEmotional IssuesFinancial Issues Sexual IssuesPhysical abilityPractical support

15 National Cancer Survivorship Initiative How can Macmillan help you? – Learn Zone learnzone.macmillan.org.uk Contains all information about Macmillans face-to-face L&D and e- learning offer for PABC, volunteers, health and social care professionals and Macmillan staff (need to register) Health and Wellbeing Clinics section: –Click on Special Interest Groups on top left side of home page –Select Health and Wellbeing Clinic from list of groups Presentations and Resources section – Setting Up A Clinic

16 National Cancer Survivorship Initiative Contact us at Macmillan setting up a Health and Wellbeing Clinic: –Fay Scullion –Jane Rudge self management support training for volunteers and resources –Suma Surendranath Stephen Hindle


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