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Overview: 2013 Advocacy Summit Your Questions Answered.

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Presentation on theme: "Overview: 2013 Advocacy Summit Your Questions Answered."— Presentation transcript:

1 Overview: 2013 Advocacy Summit Your Questions Answered

2 Im registered for the Summit; my bags are packed, now what? We are coming early to visit the sites. Is that okay? Im in DC, how do I get to the hotel? What should I expect at the Summit? I have a child attending the Kids Summit. What do I need to know? Help! I dont know what to tell my Member of Congress! How should I share my Summit experience on social media? Do you have any final tips for me?

3 Preparing for Your DC Trip Pre-Summit Emails late Jan-Feb March in DC? Be prepared for any type of weather. Summit Dress is business casualno jeans for Hill meetings. (for kids Sunday best)

4 Getting Around DC Washington, DC has three Airports: Washington Reagan (DCA) Washington Dulles (IAD) Baltimore-Washington International (BWI) Metro/Taxis AMTRAK Visit the Summit Website for details on the Transportation tab

5 Summit Hotel: Marriot Crystal Gateway Check In/Out (4pm/noon) Luggage storage is available Indoor, heated pool On site restaurants Close to other dining/shopping Ten minutes from Airport (free shuttle to DCA)/close to Downtown DC Metro Accessible There are many hotels in the area with similar names. Please make sure that you are reserving a room at the Marriott Crystal Gateway.

6 Things to Do In Washington, DC Near hotel in Crystal City: In Washington, DC:

7 Summit Overview Meeting Registration 1pm-6:00pm Monday and Tuesday morning for late arrivals – Pick up your Summit schedule, agenda book, bag, and Summit t- shirts. – Ambassadors & State Coordinators; dont forget your badge ribbons! Information desk available during the Summit.

8 Summit Overview Day 1 Discovery to Treatments Session (NIH/FDA)* Mandatory Advocacy Trainings (Three Levels) Day 2 Morning Welcome and Keynote Program* U.S. Senate Appointments Celebrating our Achievements Dinner Day 3 U.S. House Appointments *Live Streamed event

9 Kids Summit Overview Parent Orientation is mandatory. – A program targeted for children from K-8 th Grade – Creating projects to present to Senators and Representatives – Training on how to speak with their Members/Senators – Talk with Pediatric Rheumatologists – Games and Activities Weve designed a fun program for your children; parents are strongly encouraged to send children K-8 th to the Kids Summit not the adult program.

10 Congressional Meetings: Getting to the Hill Summit Shuttle Buses Shuttle Bus Schedule will be posted at the meeting and in your Program book Shuttles will leave regularly from the hotel and Hill Metro: Finish your meeting early? Feel free to Metro-- the hotel is located at Crystal City on the Yellow/Blue Lines.

11 Congressional Meetings You will meet your members over 2 days U.S. Senate Meetings (Tues. 2pm-5pm) U.S. House Meetings (Wed. 9am-4pm) You will drop off materials to other members of your state delegation

12 Congressional Meetings STATE COORDINATORS State Coordinators are the lead for each state delegation. The main point of contact for all Hill Meeting schedule questions or changes. Organize the group of attendees that will attend meetings together. Look for the lime green ribbon!

13 What are we advocating for? Issue: Insurance companies are placing certain high costs medications on a special tier and charging a percentage of the cost of the medication. Ask: Support legislation to end this practice and require co-payment vs. percentage of the cost. (Patients Access to Treatments Act of 2013 H.R. 460)

14 What are we advocating for? Issue: There are currently 11 states without a single board-certified, practicing pediatric rheumatologist and 7 states with just one. Ask: $5M to help support loan repayment for pediatric rheumatologists

15 What are we advocating for? Issue: More research is needed to reduce the arthritis burden on our nations warfighters, veterans and civilians. Ask: Include post traumatic osteoarthritis and rheumatoid arthritis research at the Department of Defense (DoD)

16 Networking Café Share with advocacy staff your notes from your Congressional meetings. Send thank you notes to your Members of Congress. Complete your Summit evaluations.

17 Awareness = Advocacy Social Media @ Advocacy Summit 2013 POST. Share your story with others on the Arthritis Foundations Wall. CHECK IN. Tell your friends youre on Capitol Hill by checking in at your Congressional visits! TWEET. Share your experience with @arthritis_org and dont forget to mention your elected official, too! GRAM. Take pictures around the Summit and with your elected officials. Mention @Arthritis_org and tag #FaceArthritis2013 #FaceArthritis2013

18 Housekeeping: Final Tips Reimbursements for travel award winners Other final tips

19 QUESTIONS? Answers to many questions are available at (see 2013 Summit section) Feel free to contact your regional advocacy staff person or a member of the DC staff.

20 Contact UsNational Staff Amy Melnick, Vice President, Advocacy Maria Spencer, Director, Federal Affairs Kimberly Beer, Director, Government Relations Laura Keivel, Advocacy Operations Coordinator Laurie Markle, Grassroots Advocacy Manager Email: Phone: 202-887-2913

21 Contact UsRegional Advocacy Staff Regional Advocacy StaffRegion Pam Fields pfields@arthritis.orgpfields@arthritis.orgGreat Lakes Region Johanna Lindsay jlindsay@arthritis.orgjlindsay@arthritis.orgGreat West Region Michele Guadalupe mguadalupe@arthritis.orgmguadalupe@arthritis.orgHeartland Region Cecil Wallace cwallace@arthritis.orgcwallace@arthritis.orgMid-Atlantic Region Sue Nesci snesci@arthritis.orgsnesci@arthritis.orgNew England Region Michele Greco mgreco@arthritis.orgmgreco@arthritis.orgNortheast Region Krystin Herr kherr@arthritis.orgkherr@arthritis.orgPacific Region Serena Heins shines@arthritis.orgshines@arthritis.orgSouth Central Region Pam Snow psnow@arthritis.orgpsnow@arthritis.orgSoutheast Region Lori Obluck lobluck@arthritis.orglobluck@arthritis.orgUpper Midwest Region


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