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Alzheimer Café or how to develop conviviality Sabine HENRY President of the « Ligue Alzheimer asbl » (B) Vice-president of Alzheimer Europe 15th Alzheimer.

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Presentation on theme: "Alzheimer Café or how to develop conviviality Sabine HENRY President of the « Ligue Alzheimer asbl » (B) Vice-president of Alzheimer Europe 15th Alzheimer."— Presentation transcript:

1 Alzheimer Café or how to develop conviviality Sabine HENRY President of the « Ligue Alzheimer asbl » (B) Vice-president of Alzheimer Europe 15th Alzheimer Europe Conference Killarney (Ireland) – 11th June 2005

2 Ligue Alzheimer asbl2 Alzheimers Disease : LIGHT STAGEMODERATE STAGESEVERE STAGE ALZHEIMERS DISEASE

3 Ligue Alzheimer asbl3 Alzheimer Café : What is that in fact ? DEFINITION: A convivial place of meeting for patients, families, professionals, interested people,… A view of an Alzheimer Café in Charleroi (Belgium)

4 Ligue Alzheimer asbl4 Alzheimer Café in Belgium : From where does that come ? ORIGINS: a) an initiative of Bere Miesen, Doctor in psychology (Mariëhaven, Holland). The general difficulty for all to talk about the disease (taboo). b) the dance-cafés in Germany. An opportunity to maintain social, interhuman abilities

5 Ligue Alzheimer asbl5 Alzheimer Café : Where is this in Belgium ? Brussels Neufchâteau Liège Namur Eupen Charleroi Ottignies (in preparation) citizens people with dementia

6 Ligue Alzheimer asbl6 Alzheimer Café in Liège : A view of Liège (Belgium)

7 Ligue Alzheimer asbl7 Alzheimer Café : Who takes part ? Families Public authorities Patients Students Carers Media Ligue Alzheimer Dog

8 Ligue Alzheimer asbl8 Alzheimer Café : A field for new experiences Maintaining abilities &learning by doing Alzheimer Café

9 Ligue Alzheimer asbl9 Alzheimer Café : Why ? A lack of information OBJECTIVE: Spend a pleasant moment with each other Be informed (informally) and exchange within a normal (not institutional) framework and so facilitate the acceptance of the disease for everyone A view of an Alz. Café in Charleroi (B)

10 Ligue Alzheimer asbl10 Alzheimer Café : Whats necessary ? ORGANIZATION, CO-OPERATION: with the local group of self-help (animation, group line, topics, material) local and private support (room, sponsoring of drinks, transport) Definition of a yearly program, once a month, at firm times and working days Announcement for the concerned public via press, TV, Ligue Alzheimer,…

11 Ligue Alzheimer asbl11 Alzheimer Café : How is this made ? METHOD: Open group, indefinite number of participants. Informal framework with a season-adapted decoration. Orienting and normalizing behavior of the group line TIMING: in each case +/- 2 hours in the early afternoon UNFOLDING: individual greetings - Café/thé - topic of the daily before the group - free exchange - scatter into small groups - Café/thé - progressive locking Vade-mecum

12 Ligue Alzheimer asbl12 Alzheimer Café : What do we do ? Different activities and discussions according to the season, the mood, the desires,… ALZHEIMERS DISEASE & DEMENTIA

13 Ligue Alzheimer asbl13 Alzheimer Café : SILENCE Here we answer to everything !

14 Ligue Alzheimer asbl14 Alzheimer Café : Key words

15 Ligue Alzheimer asbl15 Alzheimer Café : Juste like in a sports team…, a « coach » shows the way to follow, the aim to reach,…

16 Ligue Alzheimer asbl16 Alzheimer Café :

17 Ligue Alzheimer asbl17 Alzheimer Café : which costs ? EXPENSES: As low as possible, with optimal quality a) Room b) Drinks, pastry, napkins, etc… c) With prof. group line 3 hours of preparation time 3 hours of work time locally d) Dispatch of the announcement, invitations away (postage, telephone, )

18 Ligue Alzheimer asbl18 Alzheimer Café : which costs ? (2) INDIRECT COST: A lot of time for… a) Preparation b) Contacts, telephone, s,… c) Information work in the local group d) Search for sponsors

19 Ligue Alzheimer asbl19 After an Alzheimer Café : Alzheimer Café Liège (Belgium)

20 Ligue Alzheimer asbl20 Ligue Alzheimer asbl : Alzheimer Café among others…Activities First « public » targeted Alzheimer Cafés Patients with their carers Self-help groups Families ConferencesFamilies & professional carers Training sessions Circle of care Families Training sessions Accordé Professional carers Free telephone helpline Families but also professionals, students, interested people,… WebsitesEverybody

21 Ligue Alzheimer asbl21 What about a « european Alzheimer Café »? Please come in touch with us !!!

22 Ligue Alzheimer asbl22 Ligue Alzheimer asbl Montagne Sainte-Walburge 4bis B-4000 Liège BELGIUM Tel. & fax : 0032 – 4 – Website :


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